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06-27-2013, 04:53 AM   #31
lizbeth
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Thank you 723,,,
Tomarrow I have an appointment with my psychatrist he doesnt know about this last thing with my husband (Last Monday he tried to commit suicide but I stopped him). So Im going to see if my psych can switch my Ssri & up my benzo. Ive been on so many psych meds that I may just be burned out on the Ssri's. My husband hasnt been hateful for the last three days (due in part to the pot I gave him. No jugdement. It really helps his symptoms).
I don't think any one here will judge you, we understand and want to help support you .

Upsetmom...I'm glad you found this group, welcome and please feel free to vent away and know that we are here .

I had to call my dad's psychiatrist cos we think he's suffering a hepatic encepholopathic episode, thankfully I feel like we have finally been listed too and he is going to arrange a home visit which is amazing. Dad is convinced he is infested with bed bugs, that they are in his mouth, eyes and ears. There is nothing there but he can't accept that. It's really upsetting that we can do nothing to help him . I'm so glad his Dr is doing something, fingers crossed dad gets some help. This has been going on for months and countless gp visits have not helped. Dad is hard work but it's not right that he suffers like this.
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06-27-2013, 08:20 AM   #32
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I don't think any one here will judge you, we understand and want to help support you .

Upsetmom...I'm glad you found this group, welcome and please feel free to vent away and know that we are here .

I had to call my dad's psychiatrist cos we think he's suffering a hepatic encepholopathic episode, thankfully I feel like we have finally been listed too and he is going to arrange a home visit which is amazing. Dad is convinced he is infested with bed bugs, that they are in his mouth, eyes and ears. There is nothing there but he can't accept that. It's really upsetting that we can do nothing to help him . I'm so glad his Dr is doing something, fingers crossed dad gets some help. This has been going on for months and countless gp visits have not helped. Dad is hard work but it's not right that he suffers like this.
So sorry about your Dad! That is horrible. Has he ever had dementia? Hoping and praying they find out what is causing this and he can get back to normal.
06-27-2013, 11:36 PM   #33
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Lizabeth, I hope all goes well with your Dad! My papaw had dementia from Alzheimers and he had those kind of delusions also.... My thoughts are with you. It is truly hard to see that happening with your one of your parents xx
06-30-2013, 10:03 AM   #34
lizbeth
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Thank you for your thoughts . The gp said it could be part of his personality disorder or the start of dementia? His psychiatrist seems quite concerned. Dad got his mattress taken away and fumigated and said he was told it's Australian spider beetles. He is still seeing and feeling them but they are definitely not there.
06-30-2013, 10:36 AM   #35
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Poor guy! I have mental illness and delusions are unsettling but those kind must be terrifying for him! I hope its something the docs can treat easily. What personality disorder has your dad been dx with?
06-30-2013, 03:45 PM   #36
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Thank you for your thoughts . The gp said it could be part of his personality disorder or the start of dementia? His psychiatrist seems quite concerned. Dad got his mattress taken away and fumigated and said he was told it's Australian spider beetles. He is still seeing and feeling them but they are definitely not there.
Your poor dad. I hope they can help him.
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06-30-2013, 03:58 PM   #37
upsetmom
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Does anyone know if this sounds like dementia.

My dad is 68 and lately he has become very forgetful...its mainly his short term memory. My mum will tell him where there're going and on the way there he'll ask where they where going. The other day i got a call from my mum saying he went shopping 3hrs ago and wasn't back. I found him in the carpark looking for his car...he had no idea where he had parked it...i found the car on the opposite side of the shopping centre...no where near where he had thought it was. And he seems to repeat stories all the time....sometimes within minutes.

He saw a specialist who doesn't think he has dementia. Hes doing some blood tests at the moment.
06-30-2013, 06:33 PM   #38
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My grandmother started doing things just like that during early stages of either Alzheimer's or dementia (I forget which came first but I know she had both). She would go for a walk and be gone for hours then my dad would get a call from the police saying that they had his mother and to come pick her up. She had gone for a walk to the little bread store quite a ways away and seemed to forget how to get home (I believe the cops picked her up because she was walking back and forth at a crosswalk in the street). Her symptoms got worse later on. She did repeat stories often yet later on she didn't really know who we were. She told me I was pretty a lot I remember which I got creeped out by when I was younger but thinking back on it she probably didn't remember telling me.
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07-01-2013, 05:09 AM   #39
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Does anyone know if this sounds like dementia.

My dad is 68 and lately he has become very forgetful...its mainly his short term memory. My mum will tell him where there're going and on the way there he'll ask where they where going. The other day i got a call from my mum saying he went shopping 3hrs ago and wasn't back. I found him in the carpark looking for his car...he had no idea where he had parked it...i found the car on the opposite side of the shopping centre...no where near where he had thought it was. And he seems to repeat stories all the time....sometimes within minutes.

He saw a specialist who doesn't think he has dementia. Hes doing some blood tests at the moment.
On the surface it sounds like Dementia but like many diseases (Crohn's included it would seem!) it is something you would not like to label someone with without looking into other things first.

The type of things that the doctor may like rule in or out first as they can mimic the symptoms of dementia may be things like:

- Reactions to medication.
- Nutritional deficiencies.
- Infections. That may lead to a condition called delirium.
- Metabolic disorders e.g. thyroid.
- Cerebral disorders like tumours or haemorrhages.
- Lung and heart conditions can cause hypoxia, a lack of oxygen that cause symptoms of confusion.

Many of these conditions will show up with blood or urine tests.

Good luck hun. I hope it turns out that it is something easily fixed.

Dusty. xxx
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07-09-2013, 02:32 PM   #40
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Hi all. I hope you guys are doing well. I just stopped in to vent a little. Hubby was doing better but then he lost his Flagyl and symproms started again. I just found it about an hour ago. Its been a few days since the med was lost so Im really hoping that it doesnt affect the effectiveness. He havingtrpuble eating, he says it feels like hes digesting glass :-( I feel so helpless. He really likes ice cream but lactose is on the bad list but I found some chcolate lactose free ice cream that has the same amount of calories as regular. So I started making him lactose free milkshakes with vanilla soy milk, a little coconut milk & 4 Tbs of pure local honey. The shakes have been a Godsend. He can drink them and not feel too full but get a good calorie boost plus the salicylate in the honey is great for inflammation. It beats Ensure! Im just feeling a little (a lot) overwhelmed. My psych thinks Im dissociating and I do too. Just from worry and hi stress/anxiety. I wish there was a magic pill to help hubby his weight back. I think hes is depressed about his thin appearence. Its really messing with his self esteem. I dont know how to handle that other than reassuring him. His family doesnt help cause theyre always telling him how "bad" or "tired" he looks. I almost want to say " Have you put on weight? Cause you look chunky" but Im chunky and that wouldnt be very nice. Im sure that stress is a huge contributing factor in this flare. He is under enormus stress. Financial, emotional and family relationship stress. His brothers girl friend has his whole family believing hubby is on drugs. So they are always questioning him and accusing him (we barely pay our bills Idk how they think we could afford to buy drugs). And theyre not nice about it at all. We live right next door to them, so its hbard to avoid them.....
Ugh. Its a mess! Sorry for rambling! Thanks for reading
07-13-2013, 06:29 AM   #41
upsetmom
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I'm starting to get very worried about my dad. I'm getting a call just about everyday that he has gone out and not returned...Today l went looking for him for an hour and never found him. He eventually showed up and didn't know where he had gone. I've told my mum not to let him go anywhere on his own but she still does...Thursday l take him back to see the DR hopefully he has some answers ... I have enough running around to do with my husband and daughter and now this..
07-15-2013, 08:11 PM   #42
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I think Hubby lost the new GP today. He spent all day yesterday in the ER cause of shooting pain that went from his left side to the right. Its very bad. The ER didnt do anything for his pain they said his GP would. So he went to his GP to get relief and GP said that "abdominal pain" dont meet the new criteria for pain meds. So hubby got into an argument with him. And they both stormed out. Abdominal pain, yea right. I have abdominal pain what my hubby is having sounds like burning your skin off and rubbing sandpaper on the burn. Except its in his intestines and the sandpaper is food and stool. SMDH! I dont have CD nor am I a doctor and even I can see that it isnt just "abdominal pain"! Im so mad right now!!
07-16-2013, 03:00 PM   #43
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Well, hubby gained 3 lbs in a week! I know its not abig deal to most but yall get why it is! Hopefully itll continue
08-02-2013, 12:35 AM   #44
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So we found out today that my grandpa might have pancreatic cancer. He had a ultrasound of his liver where they noticed something odd on the pancreas so went in for an ultrasound for the pancreas where they found and mass and his GP thinks it may be cancer. So now we're waiting for the insurance to approve a biopsy to find out for sure. Dunno when that's going to happen.

He just had a pacemaker put in on the 22nd of July so he could live longer yet if he has cancer then, well this just sucks.
08-02-2013, 02:06 AM   #45
upsetmom
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So we found out today that my grandpa might have pancreatic cancer. He had a ultrasound of his liver where they noticed something odd on the pancreas so went in for an ultrasound for the pancreas where they found and mass and his GP thinks it may be cancer. So now we're waiting for the insurance to approve a biopsy to find out for sure. Dunno when that's going to happen.

He just had a pacemaker put in on the 22nd of July so he could live longer yet if he has cancer then, well this just sucks.
..I'm so sorry to hear this.
08-02-2013, 02:35 PM   #46
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So we found out today that my grandpa might have pancreatic cancer. He had a ultrasound of his liver where they noticed something odd on the pancreas so went in for an ultrasound for the pancreas where they found and mass and his GP thinks it may be cancer. So now we're waiting for the insurance to approve a biopsy to find out for sure. Dunno when that's going to happen.

He just had a pacemaker put in on the 22nd of July so he could live longer yet if he has cancer then, well this just sucks.
I'm so sorry Jennifer really hoping it's not, good luck.
09-19-2013, 12:06 PM   #47
Moogle33
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Hi there!

I am a caregiver for my mother and uncle. Both of them are diagnosed with schizophrenia. My mother is 64 and also has congestive hearth failure as well. I started looking after them since my grandfather passed in 2009.

Not too coincidentally, I've been diagnosed with IBS since 2009. My symptoms started a few years before, but got really bad after some food poisoning. In 2010 I was diagnosed with gastroparesis after a gastric emptying exam. I was tested for crohn's but it was negative.

It's been challenging to care for my family and our house while dealing with the stomach issues. I'm doing OK though. I'm currently looking for p/t work because income is really tight. This is probably the best support group forum I've been on btw. I am really happy to be here!
09-19-2013, 02:18 PM   #48
upsetmom
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Welcome Moogle33

I'm sorry to hear that your dealing with so much.

Remember looking after others can take a toll on your own health so please look after yourself as well.

Take care xxx
09-19-2013, 03:00 PM   #49
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Thanks upsetmom. I'm doing my best. I saw your post above. Is your Dad doing ok?
09-19-2013, 03:42 PM   #50
upsetmom
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No hes actually getting worse.

He had a CT done the other day but we don't see the Psychiatrist till next month. He thinks its Alzheimer's Disease.
09-20-2013, 02:57 AM   #51
upsetmom
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My dads Psychiatrist called me today.
The CT showed excess fluid on the brain...he did tell me the name but l can't remember.
Have to make an appointment on Monday to see the specialist. Hopefully it will be soon.
09-20-2013, 05:31 PM   #52
lizbeth
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Upsetmom, gee that's not so good, i really sorry to hear your news.

Moogle, welcome , I've getting to know you on another thread and goodness you do have a lot on your plate .

I sometimes wonder how we keep going? I think we all deserve medals.
09-20-2013, 06:02 PM   #53
upsetmom
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Upsetmom, gee that's not so good, i really sorry to hear your news.
e medals.
Actually it is good news.. I think..

I remember the name..NPH Normal Pressure Hydrocephalus
If caught early the outcome is good. Just have to wait and see what the specialist says.
09-21-2013, 02:37 AM   #54
lizbeth
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Actually it is good news.. I think..

I remember the name..NPH Normal Pressure Hydrocephalus
If caught early the outcome is good. Just have to wait and see what the specialist says.
Well I hope you can get a quick appointment, good luck.
09-21-2013, 08:14 AM   #55
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Hey, thanks Lizbeth! We all deserve medals and a lot of hugs!
09-21-2013, 10:36 AM   #56
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Yeah hugs are good too.
09-21-2013, 06:40 PM   #57
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I thought today was going to be a good day. I woke up and tried questran to help with my D. It did help, but I ate some foods that made me feel bad anyways. I'm really stressed out about being a caregiver. I don't like being like my mom's parent. Because of her mental illness, she acts like a child. It's so awkward for me. We've been in this spot for about four years. I've tried to move out and get work out of town, but my health was degrading which forced me back home.

Just needed to vent. Thanks for giving me this forum! I don't have much energy tonight. My stomach feels like hell. I just took a bentyl, can't wait for it to kick in. I'll take my amitriptyline in an hour and get ready for bed soon.
09-22-2013, 04:26 AM   #58
lizbeth
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Have you tried using heat when your tum is bad? I use it daily and it really does help me. It is such a fantastic thing having somewhere to go and talk or vent with understanding people.

I know what you mean about having to be the parent, my dad's behaviour is very childish, wants to be the centre of attention all the time. For an example, this is a big weekend for me cos my youngest has left home for uni so today we have to go home and leave her, but it makes my dad jealous cos she and I will be getting a bit of attention that he isn't, so he suddenly starts having falls (which I believe are set up), his Dr checked him out and found nothing wrong so he took himself to casualty (where they found nothing either). He just wanted the focus on him. He behaves like a baby throwing his take out of the pain!! It's very hard being his carer when he has no regard for my health so I've started to think if he's not bothered about my health why should I care about his? Problem is I do .

Oops sorry for the vent....he just makes me mad.
09-22-2013, 07:25 AM   #59
Moogle33
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lizbeth, yes! That is just like my mom. She isolates herself at home and gets depressed. As soon as I get a job and spend time with friends, she wants attention. Usually ending up with hospital stays and pain killer abuse. I manage her meds now, so I hide them.

I've decided to pay the credit card off and put it away. I've fallen victim to the fallacy of the ease of use of credit. It's a silent killer from financial stress. It feels like I'm losing control sometimes. I've never really been in control since I've been a "caregiver". It is the biggest regret of my life, but I know that my mom and uncle don't have anyone else that would care about them. It's sad. I've done the best I can. Now all I can do is pray that the future will be brighter for all of us.
09-23-2013, 08:25 AM   #60
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Yes Moogle, that's exactly the same! He's in and out of hospital all the time.

It took me a while to realise that I do NOT have to be the one who looks after dad, before mum died she left my two sisters and I a note to say`keep an eye on your dad` not `look after`. Dad expected me to leave my home and family to go and take care of him and told me I had nothing here to stop me moving to him. He has absolutely no regard for anyone but himself. He has been so draining on my wee sister this weekend, he has no boundaries and says anything he wants no matter how cruel.

Please don't put them first. I say this cos I put dad first, not intentionally, it just happened and my family got left out, my aunt reckons that's why I've gotten sick, running around after him, working ful time and trying to look after my family. At one stage my daughter said I might as well be with my dad cos when I wasnt with him I was on the phone with him....and do you know she was right! It was the wake up call I needed, just wish my wee sister could get one she needs a complete break from him.
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