Hi,
My name is Maia, I'm from the UK, I'm 20 and I got IBD in January of this year. Originally my doctor thought it was an infection, but after a few more visits they thought it might be IBD. My doctors are mostly sure that it's Crohn's as I had a colonoscopy a few weeks ago. I've been given mesalazine (also called mezavant xl) to take everyday, and this has really helped as I was in a lot of pain, was going to the toilet 10 times a day (painfully i might add!), had little or no energy and was throwing up as well. All of these made a pretty sucky mixture and made it really difficult to leave my house.
So far I've had a lot of ups and downs, especially as I got ill in the second week of January so I haven't been able to do anything this year. I really hate when people ask me what I've been up to and the only thing I can tell them is that I've been ill!
I've also been really scared for my future, about what jobs I can do and what I'll be able to do. Basically just worrying about what my limitations are now. I know people say you can live with it, and I know this is true. But at that the same time I know that I'm not gonna be able to have a normal life ( well, like I used to have anyway I know there's no such thing as normal).
What I'd really like to get from this forum, is just to hear people's experiences and find out what its actually like to live with Crohn's as opposed to all the medical stuff. In particular work and travel as these are two things that are on my mind at the moment. (I have a holiday planned in September and I'm kind of worried about it).
Thanks for reading!
Maia
:luigi: Here is Luigi because I like his little dance!
My name is Maia, I'm from the UK, I'm 20 and I got IBD in January of this year. Originally my doctor thought it was an infection, but after a few more visits they thought it might be IBD. My doctors are mostly sure that it's Crohn's as I had a colonoscopy a few weeks ago. I've been given mesalazine (also called mezavant xl) to take everyday, and this has really helped as I was in a lot of pain, was going to the toilet 10 times a day (painfully i might add!), had little or no energy and was throwing up as well. All of these made a pretty sucky mixture and made it really difficult to leave my house.
So far I've had a lot of ups and downs, especially as I got ill in the second week of January so I haven't been able to do anything this year. I really hate when people ask me what I've been up to and the only thing I can tell them is that I've been ill!
I've also been really scared for my future, about what jobs I can do and what I'll be able to do. Basically just worrying about what my limitations are now. I know people say you can live with it, and I know this is true. But at that the same time I know that I'm not gonna be able to have a normal life ( well, like I used to have anyway I know there's no such thing as normal).
What I'd really like to get from this forum, is just to hear people's experiences and find out what its actually like to live with Crohn's as opposed to all the medical stuff. In particular work and travel as these are two things that are on my mind at the moment. (I have a holiday planned in September and I'm kind of worried about it).
Thanks for reading!
Maia
:luigi: Here is Luigi because I like his little dance!