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Crohn's Disease Forum » Treatment » Imuran/Azathioprine/6-MP » Imuran - has this helped you


06-07-2013, 09:09 AM   #1
Daunting
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Imuran - has this helped you

My doctor mentioned to me yesterday that imuran might be our next stop I am scared

Has his drug works for anyone and did you have any side effects.
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Finally been told I have Crohns


B12 injections started on 14/03/2013
Astmatic (ventolin when needed)
Paxil 15mg started again 18/09/2013
Synthroid .075mg
Lomotil as needed
Xanax to sleep when needed
Doctor switched me from Salofalk to Mezavant
Not sure why
06-07-2013, 08:09 PM   #2
hawkeye
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Been on it since 1991 with no side effects
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Diagnosed since 1990
Current Medications: None currently. Was on Imuran (150mg/day) and 5-ASA (3000 mg/day) as maintenance meds prior to surgery
Surgeries: Left hemicolectomy 2014.
06-07-2013, 08:20 PM   #3
lblair
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I was on the drug for 4 weeks and my and I went toxic I was on 200mg a day!!! I need to wait for my blood work to be normal and then I will start Humura hopefully by july. I had to go back up to 30mg of my predisone because I'm having a bad flare up.

But yes was not hungry and some hair loss. Everyone reacts to it different and have differnt side effects.

Hope this helps
06-07-2013, 08:57 PM   #4
Jmrogers4
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My husband has been on it for 8 years and no side effects and my son was on it for 2.5 years with no side effects and worked really well for both of them.
There are tests you can have prior (TMPT) that tests how you metabolize it to see if you can tolerate, You will also have regular blood tests to check theraputic levels and liver toxicity. My husband has them every 3 months but it depends on your GI to some extent. My son had them every 6 months after he reached theraputic levels.
Some people experience nausea after taking and taking at night with full meal can help that.
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
06-07-2013, 09:20 PM   #5
Daunting
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Join Date: May 2011
Thanks all

Do you always need to try imuran before trying the others.


A friend of mine said her urine changed to green is this true ???
And will these meds potentially help with ibs symptoms if those are there as well ??
06-07-2013, 09:34 PM   #6
Jmrogers4
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Neither hubby's or son's urine turned green. I've never heard that but ???
As for helping with ibs symptoms, which symptoms are you talking about? As far as I understand in very general only a mom not a doctor terms the Imuran turns off/down your immune system so that it does not attack your intestine. There are many more on here who can most likely explain it better and hopefully they will be along soon.
Do you have IBS as well?
06-07-2013, 09:45 PM   #7
lblair
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My urine did change to real dark everyone's Dr has a different starting plan.
06-08-2013, 04:00 AM   #8
Daunting
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Join Date: May 2011
Yes they do for believe I have ibs as well. And I'm scared that it won't help that part
06-08-2013, 05:21 AM   #9
rollinstone
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Hi daunting, I don't know if imuran can help your ibs but I know that paleo diet and SCD usually fix people's Ibs right up, have you considered giving either a try? Getting enough calories can be hard on the diets but they definitely should be something to look at
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