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Crohn's Disease Forum » Parents of Kids with IBD » Can getting off a schedule cause symptoms


 
06-08-2013, 09:27 PM   #1
Jmrogers4
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Can getting off a schedule cause symptoms

I'm hoping it is nothing and I have not jinxed anything but last couple of days Jack has complained of stomach pains and not eating muchHe hasn't had a BM in a couple of days but says he is not constipated.
He is down to 94lbs and certainly is now where near what he weighed a few months ago, he was at 100lbs last week when we did our weigh in.
I'm hoping it is the effects of summer and staying up too late and we are not heading in the wrong direction. He has his next GI appt on the 9th.
Sorry just stressing about it and hoping we have a much longer remission then just this few months.
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Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
06-08-2013, 09:32 PM   #2
my little penguin
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Can you ask the Gi for a blood draw and fecal cal?
Especially if it continues.
I would say schedule but .....
Our past experience has been with those symptoms
Are typically not good at least for ds
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06-08-2013, 09:41 PM   #3
Jmrogers4
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He is scheduled for blood and FC for next appt. we usually have it done a week or two before appt so he has results at appt.
He is also getting ready to leave for camp so if he was feeling really bad he would most likely not tell me for fear he would not be able to go, so I'm going back and forth whether or not to call GI or give it a week and see. He is flying to camp with one of the other GI's at the office since he is going as one of the volunteers so I'm not really worried about him going to camp.
06-08-2013, 09:48 PM   #4
Mehita
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He's lost 6 pounds in a week?
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06-08-2013, 09:48 PM   #5
Clash
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At 16, C doesn't have a schedule, not one that I would keep, anyway, haha. But, his has changed this summer since he is at his Dad's visiting and working. I've wondered if those two weeks that he had loose bms the day of the MTX were maybe due to the change in activity and schedule.

In our case, the symptoms have usually been the start of something. We do our fecal cal the same way. I understand not being concerned about camp, surrounded by IBD professionals, is definitely better than the waiting and wondering at home!! I hope he has a blast and this is all just a blip from summer activity!!!
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06-08-2013, 10:08 PM   #6
Jmrogers4
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6 pounds in 2 weeks Mehita, he was down to 98 last week and wasn't too concerned as he has gone up and down on those 2 lbs one week he will be 98 and the next 100 so 2 pounds last week and 4 this week.

Clash - what is it with teenage schedules??? He slept until 2:30pm on Friday!!! Went to bed at 1am. I was at work and he called me then and tells me I'm up, I was like "You just woke up?" I leave a list of chores to do before I get home and before he can play video games when I get home at 4:30 it doesn't leave a whole lot of time to get through the list and play videos.
06-08-2013, 10:11 PM   #7
Clash
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I don't know, I worry at times that C's is IBD related because if you ask him about it he says I can't go to sleep but when he does go to sleep he can sleep til 1 or 2 the next day!! But then he is a teen and my non IBD daughter will sleep for hours on end, it is like her defense mechanism for boredom!!!
06-08-2013, 10:23 PM   #8
Jmrogers4
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This teenage world is a whole new experience for me. I swear he could be practically fall asleep at 7pm but by the time 10pm roles around he is wide awake
06-08-2013, 10:27 PM   #9
Tesscorm
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Ugghh! I know how easy it is for the worry to build! With Stephen, he has had days when he's had mild symptoms (loose BMs, tiredness, etc) but they have always resolved after 2-4 days. But, if Jack's don't seem to be improving or worsening, perhaps a call to GI would be a good idea.

Regardless, the camp sounds great and he cudnt be in better hands!!

And, sleeping... S is exactly the same!! Can easily sleep until 1 or 2 if I let him!
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06-08-2013, 10:36 PM   #10
Clash
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I am so glad you brought up this schedule thing Jmrogers and that you and Tesscorm gave those responses because I have been quietly worrying about this! Hopefully, this is a teenage thing and I'm just making up things to worry about!

Hoping for the best with Jack and a fun week at camp!!
06-08-2013, 10:45 PM   #11
Tesscorm
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Last summer, S was at home (part time job was in the evening) and I'd be at work... Don't know how many times I'd worry bcz I'd call home at 12 - no answer, 1 - no answer, 2 - maybe an answer!!! I think the latest he ever woke up was close to 3 (when I called AGAIN!)... I don't worry abt it anymore (at least not from a health perspective... What it implies abt his future... well... )
06-08-2013, 10:50 PM   #12
Clash
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Hahaha!! I am right there with Tesscorm! I wonder how this sleep schedule works when he is off at college or has a full time job!

Like I said though, non IBD daughter was the same. Since starting college, I never know when to call due to her sleep schedule and she spends every Sunday in her pajamas...all day long!
06-08-2013, 10:56 PM   #13
DustyKat
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Who knows with Sarah, out of sight, out of mind! Well that is what I tell myself any way.

As for Matt, well like your lot he marches to the beat of a different drum. (sigh) One day he can be up at sparrow fart and the next you are left wondering if he is just sleeping late or should you actually go in and see if he is still alive! ugh!

I wonder if it is the change of schedule too Jm and the excitement of the upcoming camp.
My kids are loss of appetite and weight type kids when it comes to stress, whether that be stress be good or bad.

I haven't said anything until now but over the past couple of weeks Matt has had stomach pain and some loss of appetite. For him it is the wind up of semester and exam time. His workload this semester has been huge, much more than I have liked, and I think it is taking its toll. He had bloods done a couple of weeks ago and all is good bar his CRP being ever so slightly raised but he also sustained quite a nasty ankle injury at soccer prior to the bloods being done so I don't know if that is feeding into it as well. I am biding my time until this coming week is over as that will finish everything up and I will reassess then. Mind you I do think as each piece of the semester finishes he is looking better. Fingers crossed!

I hope all is well with your lad Jm and he has a fab time at camp!

Dusty. xxx
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06-08-2013, 10:59 PM   #14
Tesscorm
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Well, the good news is that S has been working at my office since Sept; part time till Jan and full-time since Feb. We hv to leave home by 730 am and don't get home till 6pm! Took him a while to get used to the schedule but he's now making 'adult' comments... 'There aren't enough hours in a day!' ...

But, so funny... We get to parking lot by 8:30-8:40ish, he has to be in by 8:50... He sets the alarm on his phone and sleeps for the extra 5-10 minutes!!! I'm just waiting for the day he doesn't hear the alarm...
06-08-2013, 10:59 PM   #15
Jmrogers4
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It just amazes me, this is the same kid who was always up by 7 and up and ready to go. I need time in the morning "to rise" and when he was younger he would bring me a cup of coffee in bed in the morning and ask if I could get up now.
Well I'm glad that it seems like at least the sleeping part is normal for teenagers.
06-08-2013, 11:07 PM   #16
Clash
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Jmrogers, I know it is like you wake up and there is a different kid in the house! It is so strange. The upside has been in the past "living for Saturday" wasn't in my vocab since C was up with sun...now Saturday has a whole new meaning for me!!! A little extra sleep and a full cup of coffee in complete peace and quiet!!
06-08-2013, 11:10 PM   #17
Tesscorm
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I have read articles saying that teens really do have a naturally different sleep schedule. By chance, my kids' high school actually attempted to work with this 'different' schedule to try to match teens' "needs"! Their first class didn't start until 9:40 am! They were the envy of many of their friends who went to different schools that started btwn 730-9am.
06-08-2013, 11:13 PM   #18
Tesscorm
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Totally with you Clash!!! Love that I can sleep a bit more and still wake up to a quiet house!!!
06-08-2013, 11:18 PM   #19
Clash
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Tesscorm, how long did it take S to adjust to the full time schedule? I'm just wondering when I should start to demand a decent bedtime in an effort to be on go when the new school year starts!

C was even off schedule during school this year at times and it was funny because his 9th grade english teacher raved about him to the 10th grade english teacher, he's so engaged in class room instruction and puts such effort into the in class essays...10th grade eng was 1st period and I think he was a disappointment since he basically zombied through!!
06-08-2013, 11:35 PM   #20
Tesscorm
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After he started full time, I wud say it took a good 3 weeks bfr he adjusted. At the beginning, I really did have concerns bcz he'd even go nap in the car at lunch!?! Who does that?!?

But, I quickly realized he was still just staying up too late! Even in bed, he'd be talking to friends on his computer or phone. Stephens a bit older than C so I didn't give S a 'bedtime', but gave lots of bedtime suggestions/reminders and he eventually figured it out on his own. I think he still goes to bed way too late (12ish) but, being a night owl too, - do believe him when he says he just can't sleep.

But, u said preparing for school schedule... That never worked for me (at least as teens), I gave it a shot but really it was the 'tiredness' that the new Fall schedule wud bring that wud eventually shift Em's and Stephen's sleep schedules after a couple of weeks.

That first class 'zombie' - hated when my kids had a tough first class.. I knew it wud be even more difficult being at that time!
06-08-2013, 11:38 PM   #21
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Thanks, Tess!!
06-09-2013, 06:33 AM   #22
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I think there may be something to the change in schedule theory. Here's hoping it's just that and things settle soon!
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06-09-2013, 02:37 PM   #23
crohnsinct
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Would someone give O the teen sleep memo?! These 5:00 a.m. warm up times for swimming absolutely suck! And when there isn't a meet 8:00 a.m. practice. What teen does that willingly? And Tess...I drop O at the pool and nap in the car in the lot until the meet actually starts!

can't wait for O to go to college...my younger one at 9 has already read and mastered the sleep memo!
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06-09-2013, 02:58 PM   #24
momoftwinboys
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How is jack feeling? Hope.he is doing better

Has his LDN dosing timing changed since school has let out? Perhaps that is out of whack
Are allergens high up there recently? MLP recently posted an article regarding allergies Just throwing out ideas...
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06-09-2013, 03:17 PM   #25
crohnsinct
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Did I read in another post that he was done with his appetite enhancing medication? I am wondering if thte end of that has anything to do with his lack of appetite and if he isn't eating well if that is contributing to hos fatique, weight loss and constipation etc?
06-09-2013, 06:15 PM   #26
Jmrogers4
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He has stopped the periactin but it has been about a month so it defintely decreased then but has really done so the last week or so.
He seems to be feeling fine just a little off, nothing huge right now.
He still takes his LDN at 9:00 at night but since it works with natural endorphin releases maybe those are off since his sleep habits are off. I just don't know.
It could be anything, one thing or everything. And yes pollen is extremely high right now, I'll have to look into that more. Would taking a allergy pill work then to keep symptoms in check?
06-09-2013, 08:20 PM   #27
DustyKat
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Did you see this post by mlp yesterday Jm?...

http://www.crohnsforum.com/showthread.php?t=52255

...it may well be worth a try giving an antihistamine and see what happens. I don't see that it could do any harm?

Dusty. xxx
06-09-2013, 08:55 PM   #28
Jmrogers4
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Thanks, he has never had bad allergies but I have noticed a lot more sneezing, runny nose going on and I'm usually pretty good in the spring I generally get more allergies in the fall but I've noticed some scratchy throat, sneezing when I'm outside as well.
Maybe I'll give him an antihistamine for a few days and see what happens.
06-09-2013, 09:12 PM   #29
my little penguin
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Typically it takes about a week or so for the immune system to calm down
Once antihistamines are started.
Most have a half life of 4 days.
06-10-2013, 02:37 AM   #30
Kimberly27
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The only thing that really bothers me about Reed sleeping in so late in the summer is that he is missing a meal, and he's so thin.

For those with teens that sleep in, what are you doing about that? Advice?

Kimberly
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