Share Facebook
Crohn's Disease Forum » Parents of Kids with IBD » MLS and her cancer journey


 
06-17-2013, 02:32 AM   #1
Mylittlesunshine
Senior Member
 
Mylittlesunshine's Avatar
 
Join Date: Dec 2012

My Support Groups:
MLS and her cancer journey

MY DEAR FRIENDS...
I'm not sure where to start but wanted
To explain why I've not here much.
In middle of April I went to my GP
Because my left thigh a the top swelled
To triple the size and very painful
Even worse at night.

Anyway the doctor told me that I had
Skin infection and gave me
Strong antibiotics and said it would be
Better after 48hrs.
Hmm how wrong she was.

5 days after taking antibiotic it was worse
I took myself to local A&E
They did bloods and said no infection
Or signs that I had one
Then was sent for x-ray.
The X-ray showed and abnormality
But they wouldn't say WHAT.

I had to wait 2 days to have appoint with
A bone speaicalist,
They booked me for MRI
Which revelead I had a large tumour
In new bone that has grown.

To cut the story short I was sent to a speaical
Tumour centre who diagnoised me to be
Having a RARE TYPE OF BONE CANCER
CALLED CHODROSARCOMA.

On the 1st of July I go for a full
Body bone scan to check it hasn't gone
Any where else.
Then on the 9 th of July I'm scheduled
To have surgery for 9 th July
Where I have half my thigh bone removed
With the tumour.
Also possibility that I have to have chemo .

I just wanted to explain what was going on
As my friends have been so
Great, caring towards me and my family
I thought you all deserved to know.
Hugs
__________________
Currently on EN
Neacate LCP
Multivitamin
Folicacid
Iron
Dalavit
Calcium sandos
Dyclavlovin
Inhalers x3
Pred tapering
06-17-2013, 02:40 AM   #2
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
....I'm so sorry.

I hope everything goes well with your surgery and it hasn't spread.
__________________
Daughter dx CD March2012...
(aged 14)

Currently on:
40mg Humira
125mg Imuran




Dx Premature Ovarian Failure 2014




Last edited by upsetmom; 06-17-2013 at 05:04 AM.
06-17-2013, 04:55 AM   #3
Catherine
Moderator
 
Catherine's Avatar
 
Join Date: Jan 2012
Location: Melbourne, Victoria, Australia

My Support Groups:
Wishing you a successful surgery. Thinking of you and your family.
__________________
Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
06-17-2013, 05:19 AM   #4
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Oh my goodness Mls......I am so very sorry to hear that you are going through this.

I hope more than anything your scan is clear of any further problems and your surgery and recovery are smooth and uneventful.

Sending loads and loads and loads of love, luck and healing thoughts your way.

Dusty. xxx
__________________
Mum of 2 kids with Crohn's.
06-17-2013, 06:20 AM   #5
crohnsinct
Senior Member
 
Join Date: Mar 2012
Location: Connecticut

My Support Groups:
OH MLS! I am so sorry to hear about all of this. Definitely praying for you and the surgeons and that all has the best possibke outcome!
__________________
Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Methotrexate (12.5mg wkly - oral)
Vit d 2000IU
Multi vitamin plus iron
Calcium
Folic Acid
Previously used - Prednisone, Prevacid, Enteral Nutrition

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohns
Methotrexate (15mg weekly oral)
Enteral Nutrition
Entocort
IBD-AID Diet
Vit d 1000IU
Calcium
Folic Acid
Previously used: Mtx injections
06-17-2013, 06:42 AM   #6
ellie
Senior Member
 
Join Date: Apr 2010
Location: Sydney Australia

My Support Groups:
Sending you hugs and best wishes...


HD
06-17-2013, 07:01 AM   #7
Jane and Nick
Senior Member
 
Jane and Nick's Avatar
 
Join Date: Apr 2013
Location: Kuala Lumpur, Malaysia

My Support Groups:
Dear MLS, I am sending you lots of positive thoughts, I know how much anxiety comes along with waiting for the scans and then the results, we to are waiting for my husbands scans. Please try and stay as positive as you can because attitude and mind sett are SO important, you have to believe you can beat this sneaky son of a b. My hubby has lung cancer that spread to his brain, never smoked in his life, he is now after many courses of chemo and radiotherapy tumour free in his brain and seems to be doing very well. Keep positive and strong, sending love.
__________________
DOB 13/8/2001
Height 5ft 2" 48 kg
Salofalk x3 twice a day
Imuran 100mg
06-17-2013, 07:13 AM   #8
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
I'm so sorry to hear of how much you've been dealing with! Also sending lots of wishes for the best possible outcomes from both the surgery and scans!

Keeping you in my thoughts and prayers!
__________________
Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
06-17-2013, 07:14 AM   #9
Farmwife
Forum Monitor
 
Farmwife's Avatar
 
Join Date: Apr 2012
Location: Michigan

My Support Groups:
Hugs and Prayers

Do they think they has something to do with your heart condition?
__________________
I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
06-17-2013, 07:30 AM   #10
CrohnsKidMom
Senior Member
 
CrohnsKidMom's Avatar
 
Join Date: Mar 2013
Location: (Canada), Nova Scotia

My Support Groups:
Dear MLS, I am so tremendously sorry to hear your news. I am praying for you.
06-17-2013, 07:33 AM   #11
greypup
Senior Member
 
greypup's Avatar
 
Join Date: Apr 2013
Location: St. Louis, MO

My Support Groups:
MLS

Sending prayers for you that your scan will reveal no more affected areas, that surgery and recovery goes very well and that you are able to find strength and peace. And I will continue to send these.

(((hugs)))
__________________
Linda
Mom to 18 yr old daughter, M, dx'd Crohn's April 2013
TI resection surgery June 2013
Imuran
supplements=Vit D, L-Glutamine, Omega D, Probiotic, Curcumin
06-17-2013, 08:14 AM   #12
Devynnsmom
Forum Monitor
 
Devynnsmom's Avatar
 
Join Date: Jan 2012
Location: Toronto, Ontario
(((((((MLS)))))) I'm so sorry to read this. I hope you get good news with the scan and that the surgery will take all of the cancer. I will also pray that you do not need chemo.
__________________
Samantha, AKA Devynn's mom


Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
06-17-2013, 08:24 AM   #13
Tink572
Senior Member
 
Tink572's Avatar
 
Join Date: Mar 2012
Location: Alabama
I am so sorry you're going through this. Lots of good thoughts and prayers for you.
06-17-2013, 09:22 AM   #14
Jmrogers4
Moderator
 
Jmrogers4's Avatar
MLS you know already how much support and prayers I've been sending your way! Hope the body scan goes well. Take care and stay positive dear friend!
__________________
Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
06-17-2013, 09:37 AM   #15
Clash
Forum Monitor
 
Clash's Avatar
MLS, so sorry to hear this!! Sending prayers and hugs your way!
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
06-17-2013, 09:58 AM   #16
Amy2
Senior Member
 
Join Date: Mar 2013
Location: Lafayette, Colorado

My Support Groups:
How frightening! I'm very sorry and wish you the best outcome possible!!!
__________________
Three passions, simple but overwhelmingly strong, have governed my life: the longing for love, the search for knowledge, and unbearable pity for the suffering of mankind. Bertrand Russell
06-17-2013, 11:03 AM   #17
Sascot
Forum Monitor
 
Sascot's Avatar
 
Join Date: Aug 2011
Location: Falkirk, United Kingdom

My Support Groups:
Thinking of you often! Hope things go well for the surgery.
06-17-2013, 05:16 PM   #18
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
My thoughts and prayers are with you and your family
__________________
DS - -Crohn's -Stelara
06-17-2013, 05:29 PM   #19
killcolitis
Senior Member
 
Join Date: Feb 2012
So very sorry about your diagnosis. I hope the treatment goes as smoothly as possible and this is soon fully in the past for you.
06-17-2013, 08:40 PM   #20
ChampsMom
Senior Member
 
ChampsMom's Avatar
 
Join Date: Mar 2011
Location: North East Coast - USA

My Support Groups:
MLS - Sending up tons of prayers for you, your family and the doctors!!!!

God bless...

(((((((((((HUGS))))))))))))))
__________________
Shell

Mom of Champ (Alex)
Dx: CD April 2010
Meds: 04/25/13 switched back to Pentasa 3,500mg/day - Lialda brought lower abdominal cramps & exhaustion); 04/05/13 switched to Lialda 1.2GM 3 pills/day verse Pentasa 3,500mg/day, prevasaid 15 mg x 1/day, elemental iron, daily vitamin, calcium w/mag D, 50,000 mg Vitamin D/week, B12, B6 supplements, Cetrizine (for sinus issues)
Prayer
Priesthood Blessings
06-17-2013, 11:00 PM   #21
Mehita
Forum Monitor
 
Mehita's Avatar
 
Join Date: Nov 2011
Location: Minnesota

My Support Groups:
Been thinking of you all day. Just one day at a time, MLS...
__________________
Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
06-18-2013, 01:02 AM   #22
jmckinley
Senior Member
 
jmckinley's Avatar
 
Join Date: May 2012
Location: Alabama
So sorry about what you are going through. I hope the surgery goes well. (((Hugs)))
06-18-2013, 05:10 AM   #23
Johnnysmom
Forum Monitor
 
Johnnysmom's Avatar
 
Join Date: Oct 2011
Location: Cincinnati, Ohio

My Support Groups:
I will pray for you MLS. (((Hugs)))) I know this is unbelievably hard on you right now. Try to keep in good spirits and take one day at a time.

We are all here for you!
__________________
Mom of Johnny
Dx Oct 11 2011 Crohns disease
Prednisone done 12/30/11
6mp 50mg every day
Allopurinol 50mg -discontinued per new G.I. on 11/01/12
Multi Vitamin
Vitamin D3 1000mg
Prayer
06-18-2013, 12:32 PM   #24
Mylittlesunshine
Senior Member
 
Mylittlesunshine's Avatar
 
Join Date: Dec 2012

My Support Groups:
Thank you so much for all your
Kind messages it's so kind of you all.
It's like a nightmare that won't go
Away x
06-18-2013, 12:34 PM   #25
Mylittlesunshine
Senior Member
 
Mylittlesunshine's Avatar
 
Join Date: Dec 2012

My Support Groups:
Farmwife- that was my question
About my heart being connected
To the cancer, they don't know
They said they need to put all the pieces
Together.
06-18-2013, 12:37 PM   #26
Mylittlesunshine
Senior Member
 
Mylittlesunshine's Avatar
 
Join Date: Dec 2012

My Support Groups:
Jane and nick
Thank you for your kind message
I really hope your husbands scans
Are good news, hugs x x
06-29-2013, 02:49 PM   #27
Mylittlesunshine
Senior Member
 
Mylittlesunshine's Avatar
 
Join Date: Dec 2012

My Support Groups:
For appointment for my pre op on 1st July
And full body scan.
Then a week to go before my dreaded surgery .
06-29-2013, 02:51 PM   #28
Sascot
Forum Monitor
 
Sascot's Avatar
 
Join Date: Aug 2011
Location: Falkirk, United Kingdom

My Support Groups:
Was just thinking about you today! Good luck for the pre-op and then the surgery. I really hope it goes well and your recovery is quick. I will be away when you have your surgery, so I will not be able to send get well wishes then. Will check in once I get back!
06-29-2013, 03:31 PM   #29
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
Thinking of you ....
06-29-2013, 05:01 PM   #30
araceli
Forum Monitor
 
Join Date: Nov 2012
Location: El paso, Texas

My Support Groups:
Hugs and Prayers for you.
__________________
Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
Supplements
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
Reply

Crohn's Disease Forum » Parents of Kids with IBD » MLS and her cancer journey
Thread Tools


All times are GMT -5. The time now is 05:04 AM.
Copyright 2006-2017 Crohnsforum.com