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07-05-2013, 09:49 AM   #1
Dee825
 
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Join Date: Jul 2013
Location: Lafayette, Indiana
What is it?

So 3 years ago I had my Gall Bladder taken out due to low function and pain under right rib cage. I noticed after that I always had un normal poo. It would be green and smell horrible, alot of times I would have to go to the bathroom 20 minutes after eating and it didn't matter what it was. Then last August I started noticing my vision seemed messed up sometimes and my fingers and toes felt like they had pain in them. I woke up on August the 18th with pain on my left side under neath rib cage that would move to my right side. I also had pain under breast bone on right side if I touched it I would burp. Finally went to ER they said ulcer, well medicine didn't work so I went to a Specialist here in Indy Dr Lehman. He cut my Sphinter of Oddi cause of the pressure so that pain went away but pain on left side did not get better. Now after every test I have had done they all come up negative. I have been to Mayo clinic to hear its only IBS, I have changed my diet, nothing! I had a barium xray they found narrowing local GI says oh you were just having spazms on table its ibs! I have pain in my joints when I eat(about 2 Hours after) tons of yellow stool mucus, vision gets cloudy, pain three inches above belly button and below, green stool always in pieces, they did find blood three times, my veins in hands get huge when pain starts. So I had Endro removed from my ovaries 4 weeks ago and while my OBGYN was in there he seen 10-12 inches of my small bowl looked abnormal( he took pics), my local family Dr is pushing for me to have more testing. So I sent to Mayo they say oh its ok, and then call and I get crappy and GI says well it could be Crohns. So I take pics back to Dr. Lehman ( he is known thru the world) and he looks them over and says it could be Crohns, goes to Crohns Dr and she wants me there on the 18th for Colon check, the first Dr that did it was not very good and sorta flacky left in the middle of the night...uggghhh any idea guys? I'm at a loss and my family just wants me better.
07-05-2013, 09:56 AM   #2
Clash
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Welcome. So if I'm reading your story right you have pics that show your small bowel looking abnormal and your are going to have your second colonoscopy? The colonoscopy can only see into the very end of the small bowel so if you get normal results you may want to ask for a pill cam or MRE(better visual than MRI) or possibly a small bowel follow through.

Hope you get some answers soon.
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Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
07-05-2013, 09:59 AM   #3
Dee825
 
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Location: Lafayette, Indiana
You are correct well the reason they want to do the Colon again is because the with the first one they could not get all the way to the small intestine like they wanted, then they want another pill cam(was not cleaned out goo for 1st one). An MRI huh, have never had one to show anything but that my Sphinter of Oddi was not working , but from what I understand that can happen with Crohns! Thanks for the info, somebody also told me PET Scan ????
07-05-2013, 10:03 AM   #4
Clash
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The fact they couldn't get through the IC valve the first time would seem to indicate narrowing but I'm no doc, hopefully this next colonoscopy will give you some answers. Tell them you want plenty of biopsies!
07-05-2013, 10:05 AM   #5
Dee825
 
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Location: Lafayette, Indiana
Thanks I will, you are very right! First Dr was a complete quack, Dr Lehman in Indy in know all over world and he is very good. I have hit my outta pocket so any test should not be a problem What is a MRE?
07-05-2013, 10:26 AM   #6
Clash
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If you click on MRE in your post(it is highlighted) it will take you to the forum wiki and give you info about it.
07-09-2013, 08:20 PM   #7
Chickadee
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Have you tried cholestyramine?
07-09-2013, 09:25 PM   #8
dannysmom
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Hi -
My son's GIs said that sometimes the TI cannot be accessed and it does not necessarily mean abnormalities. An MRE is an MRI that is done after drinking some oral contrast. I am glad more testing is being planned and hope you do get answers.
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Jeanne
Mom to Danny (16), sick since Dec 2008 but current diagnosis uncertain.

(Danny's story)
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