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07-19-2013, 05:54 PM   #61
DustyKat
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IIRC oral Prednisone dosages for children with Crohn's are normally calculated at 1-2mg per kilo with a maximum of 40 mg set as the upper dose limit for children.

So that would be 45lbs = 20kgs. So 20mg is the lower dose based on that weight and 40mg fits nicely with the 2mg per kilo dose.

Please don't take what I have said above as gospel as my mind isn't always the sharpest knife in the drawer and so I may well be wrong!

Maybe she needs a higher dose of Pred to kick the Crohn's butt into remission??

Dusty. xxx
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07-19-2013, 06:03 PM   #62
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Too slow!

Thanks mlp!
07-19-2013, 06:10 PM   #63
my little penguin
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That is what happens when your older !
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07-19-2013, 06:12 PM   #64
DustyKat
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Well I could either say shut up! or...at least I have made it this far!

Meh, I'll say both.
07-19-2013, 06:14 PM   #65
DustyKat
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Do you really want know what did it?

Calculating that age old imperial system into metric!
07-19-2013, 06:27 PM   #66
my little penguin
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Sure just keep telling your self that (...if it makes you FEEL better)
07-19-2013, 06:50 PM   #67
DanceMom
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She just passed about 4 more thin blobs, like the last. Guess she isn't completely blocked but things sure aren't coming out easily.
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07-19-2013, 06:54 PM   #68
DustyKat
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Sure just keep telling your self that (...if it makes you FEEL better)
It does make me feel better actually...happy thoughts.
07-19-2013, 06:56 PM   #69
DustyKat
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She just passed about 4 more thin blobs, like the last. Guess she isn't completely blocked but things sure aren't coming out easily.
Poor love.

You are doing a fab job mum...

Dusty.
07-19-2013, 07:14 PM   #70
my little penguin
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For DS - he has trouble passing even soft stool some times - Gi feels his tract goes in spasms which cause him not be very productive. This leads to his rectum inflaming.

Hope she feels better soon.
07-19-2013, 08:26 PM   #71
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You're doing a great job, Mom! Hang in there!

Sorry things are so stressful right now.

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Mom of 17 year old son with Crohn's
2000 mg Pentasa
125 mg. Azathiorpine
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Metronidazole (Flagyl), Ciprofloxacin, Levofloxacin, Xifaxin, Zosyn, Augmentin-ES, VSL#3
07-20-2013, 08:26 AM   #72
DanceMom
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Oh my....large stool this morning! Seriously looked like about 3 days worth! It wasn't hard, but could she still be constipated? Would Miralax help?
07-20-2013, 08:46 AM   #73
DustyKat
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Under normal circumstances you would say no, she isn't still constipated after passing that amount of stool. BUT if you suspect that she may be backed up then although not constipated as such she may still have quite a bit of evacuating to do and in that case a stool softener wouldn't go astray.

Dusty. xxx
07-20-2013, 08:54 AM   #74
my little penguin
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not sure on your DD but my Ds can and has proven to be constipated after that still-- he had to have an X-ray- clean out then a large daily dose of miralax to keep it from happening again ( as often)
07-20-2013, 09:54 AM   #75
DanceMom
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I think I'll try some Miralax and see if that helps the pain. I'm wondering if that large stool was blocking things and causing pain, and if that's the case I'd like to try and prevent that! She's not one to get constipated, but I'm definitely thinking something is going on.
07-20-2013, 10:19 AM   #76
Mehita
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DanceMom... our two continue to live identical gastro lives! What is it with them? We just started the Miralax too.
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Last edited by Mehita; 07-20-2013 at 10:36 AM.
07-20-2013, 10:27 AM   #77
DanceMom
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I've thought the same thing! They are so similar it is scary! But are you as nutty as I am?? Lol
07-21-2013, 05:36 PM   #78
DanceMom
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No doubt, A is in a flare. More diarrhea today and also blood. She also has 2 EN spots on her legs. On a positive note, she has a great appetite and has been happy and playing all day. I'm wondering if the Neurontin is helping with the pain. I need to email the GI nurse tomorrow to ask about bloodwork (A should be due for labs the end of the week) so I'll update her. Just disappointed.
07-22-2013, 05:42 AM   #79
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I am so sorry to hear this DanceMom. Good luck with the labs hun.

Thinking of you both.

Dusty. xxx
07-22-2013, 04:05 PM   #80
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Sorry she's flaring again. Did anyone ever figure out why she was bleeding from the mouth?
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*J, 18, Crohn's diagnosis 1-2013 (age13), controlled with 6MP.
Osteoporosis, Scoliosis, EDS, Asthma, Lymphedema, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety postural tachycardia/POTS and multiple food allergies.
07-22-2013, 04:52 PM   #81
DanceMom
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No, and it never happened again. So strange!
07-22-2013, 04:56 PM   #82
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My son is in complete remission and still requires Miralax everyday. He would be very constipated without it.
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07-23-2013, 10:17 AM   #83
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Sorry to hear about the flare. Hope it doesn't last too long!
07-24-2013, 06:40 PM   #84
DanceMom
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Today has not been a good day. The girls and I went to dinner and then to the grocery store. As soon as we got there A rushed to the bathroom, my other daughter followed, and I told them to meet me at the pharmacy. My youngest comes out and loudly announces, "Mom, you need to go in there! The toilet is full of blood!" I go in, and sure enough she's had bloody diarrhea and the toilet water is red. Lovely. She says she feels a little better so we start shopping. Half way through the store - back to the bathroom for more of the same. I tell her we have just a few more things to get, then we'll be on our way (stupid me) and then she vomits in the middle of the aisle. Yep, time to go home!

This feels strangely familiar...as in nearly the same thing happened 2 weeks ago! Keeping a close eye on her and praying she starts feeling better soon!
07-24-2013, 09:45 PM   #85
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..I hope she feels better soon.
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07-24-2013, 09:50 PM   #86
DanceMom
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Diarrhea several more times.... vomiting small amounts as well. She's refusing fluids right now as well. Giving it a little longer before calling the on-call.
07-24-2013, 10:01 PM   #87
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Diarrhea several more times.... vomiting small amounts as well. She's refusing fluids right now as well. Giving it a little longer before calling the on-call.
I'd call now.
07-24-2013, 10:02 PM   #88
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Ditto^^^

Poor sweetie.
07-25-2013, 03:46 AM   #89
DustyKat
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How are things going DanceMom.

Dusty. xxx
07-25-2013, 10:04 AM   #90
DanceMom
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Luckily her stomach settled enough for her to get some sleep last night. This morning she feels pretty crummy but wanted to eat some toast and eggs. She just made her first bathroom trip of the morning - loose but no visible blood. That is somewhat of an improvement but she literally screams in pain as it comes out. Says it feels "like it just doesn't fit". And she still has a lot of pain in her lower left abdomen. I'm emailing the nurse to update her and see if she has any recommendations.
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