Hello I am married to a man with Crohns, and it often seems there is nobody to discuss how challenging it can be to live with someone who suffers daily. We have been together 2 years and the learning curve of being with someone in chronic pain is rough!
There is the lack of sex drive, sleeping on the couch for fear of mishap in bed, the refusal to seek new treatments (he has had for 25 yrs and is convinced doctors know nothing and he has figured out what works for him-it does not work for 'us' though), the expectation that I read his mind to know when he feels poorly or not... the feeling invisible when he is so consumed by how his gut is behaving...
I love him madly and want to be understanding and supportive (I am a nurse by profession-but not GI). It makes me sad somedays cuz when he feels good we have so much fun!
There is the lack of sex drive, sleeping on the couch for fear of mishap in bed, the refusal to seek new treatments (he has had for 25 yrs and is convinced doctors know nothing and he has figured out what works for him-it does not work for 'us' though), the expectation that I read his mind to know when he feels poorly or not... the feeling invisible when he is so consumed by how his gut is behaving...
I love him madly and want to be understanding and supportive (I am a nurse by profession-but not GI). It makes me sad somedays cuz when he feels good we have so much fun!