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Crohn's Disease Forum » Support Forum » Vent Away » I'm tired of pretending


07-17-2013, 12:37 AM   #1
parisandbrandi
 
Join Date: Jul 2013
I'm tired of pretending

I'm tired of pretending I don't hurt.
I'm tired of pretending I'm okay.
This stupid disease makes me want to escape my own body and that's not okay.
07-17-2013, 03:55 AM   #2
Cross-stitch gal
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Join Date: Dec 2011
Location: Vancouver, Washington

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I'm sorry to hear all of this But, there are many of us who have been there. Thank you for opening up to us! Sending many hugs and support your way.
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Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday, Canasa Suppositories (when needed) 1000mg 1xday

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


UP Support Group http://www.crohnsforum.com/showthread.php?t=68350
07-17-2013, 04:31 AM   #3
afidz
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Join Date: Jun 2012
Location: Mckinney, Texas

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Hang in there, this disease is VERY hard to deal with.
Could you tell us a little about yourself? Maybe we can give you pointers on how to deal or just simply be there for you to listen.
You don't have to pretend, were not ok. Crohn's wears on every aspect of your life, mental and physical and a lot of times its hard to find the support you need from friends and family because simply put, unless they have this disease they don't understand. And of course thats no fault of their own.
I'm glad you found this forum, in the year that I have been on it I have been blessed by so many people willing to help me through the toughest parts. We are all there for eachother, even if its half way around the world through a computer screen :P
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Crohn's since 2007
15 Abdominal Surgeries since 2008
Severe Non-repairable abdominal hernia
Ankilosing Spondylitis
Inflammatory Arthritis

Failed meds:
Humira
Remicade
Asacol HD
Cimzia
Methotrexate
07-17-2013, 07:12 AM   #4
nogutsnoglory
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Join Date: Sep 2009
Location: New York

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Hugs! You don't have to pretend here. We are all in this struggle together. It totally sucks, no sugar coating it but at least we can battle the stickiness of this disease together here. Tell us more about what's going on for you.
07-17-2013, 10:30 AM   #5
CrohnsChicago
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Join Date: Aug 2012
Location: Chicago, Illinois

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I'm sorry you are feeling this way right now

The majority of us here, including myself, are all too familiar with this feeling. I wish there was a way to make everyone understand up front what it is that we have to deal with. Unfortunately we sometimes truly do have to "fake it" sometimes just to get by.

On the PLUS side of this situation.... sometimes faking it can actually show you that you can live a reasonably normal life with this disease. But of course we need to learn to find a healthy balance between coping with it and moving on with our lives given our circumstances.

I really hope things start to look up for you very soon. And of course you always have us here as an outlet and for support. You don't ever have to "fake it" here on the forum


I'm tired of pretending I don't hurt.
I'm tired of pretending I'm okay.
This stupid disease makes me want to escape my own body and that's not okay.
__________________
Crohn's-Colitis May 2012
Current Meds:
6-MP (100mg) / Asacol (4800mg)
Past Meds:
Prednisone/ Entocort / Flagyl
Current Supplements:
B12 Shot (1cc/mo) / Multivitamin / Vitamin D (1000iu) / Calcium (1200mg) / Omega 3 Fish Oil (4800mg)
Additional Info:
Anemia/Borderline Anemia - whole life
Generalized Anxiety Disorder - 2009 (Cognitive Behavioral Therapy, mindfulness meditation)

07-17-2013, 08:41 PM   #6
scanners20
 
Join Date: Jul 2013
I am so sorry... This is very hard to deal with at times... People that don't have it have no clue what we have to deal with.... I'm going to the bathroom a lot and I am getting so frustrated cause i am trying to get a test scheduled and can't cause the doctor WONT CALL ME BACK!
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