I'm Robb, and I was diagnosed, after a lengthy hospital stay well over 25 years ago, with Crohn's Disease.
I have been lucky, in regards to Crohn's... While did the whole treatment roller-coaster for the first few years, I had an open-minded and understand GI who helped me to eventually get off all drugs and get my Crohn's under control with diet and stress management. He passed in 2005.
I have been able to to keep things under control by following the advice he gave before his death. It was working, and I saw no reason to change it.
Recently, however, it doesn't seem to be working anymore.
I am having horrible flare-ups, regardless of my diet and stress levels. I am getting infections that I have never had to deal with. In the last 5-6 weeks, I have had what seems to be the flu, followed by a severe flare, another bout of what seems to be the flu, and now what appears to be pink eye.
After doing some research online, I see that eye problems are not uncommon with Crohn's. Have I just been lucky all this time? Is this something I'll have to deal with from this point on, now that it's started?
I thought that after so long, I pretty much knew what I needed to know about Crohn's, but I feel like I'm learning this thing all over again, and it's kind of frustrating. Any advice would be appreciated.
As I said... Maybe I've been lucky, but... Does Crohn's change that radically, that quickly, after so many years of being "under control" ?
I have been lucky, in regards to Crohn's... While did the whole treatment roller-coaster for the first few years, I had an open-minded and understand GI who helped me to eventually get off all drugs and get my Crohn's under control with diet and stress management. He passed in 2005.
I have been able to to keep things under control by following the advice he gave before his death. It was working, and I saw no reason to change it.
Recently, however, it doesn't seem to be working anymore.
I am having horrible flare-ups, regardless of my diet and stress levels. I am getting infections that I have never had to deal with. In the last 5-6 weeks, I have had what seems to be the flu, followed by a severe flare, another bout of what seems to be the flu, and now what appears to be pink eye.
After doing some research online, I see that eye problems are not uncommon with Crohn's. Have I just been lucky all this time? Is this something I'll have to deal with from this point on, now that it's started?
I thought that after so long, I pretty much knew what I needed to know about Crohn's, but I feel like I'm learning this thing all over again, and it's kind of frustrating. Any advice would be appreciated.
As I said... Maybe I've been lucky, but... Does Crohn's change that radically, that quickly, after so many years of being "under control" ?