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Crohn's Disease Forum » Treatment » Humira/Adalimumab » Humira and Fistulas


08-14-2013, 03:58 PM   #1
lgpcarter
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Humira and Fistulas

For those of you who have had success with Humira healing your fistulas - how long did it take? I have been on it since March, and on weekly doses for a least a month, and it's not helping my fistulas. Wondering if I should give it a bit more time or try something else (already done Remicade, can't go back).
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Diagnosed in with Crohn's in large and small bowel in 2000.

Seton placement (2) and fistulotomy December 2013. Setons removed July 2014.

Laparoscopic Right Hemicolectomy July 2016, 25 cms removed

Current meds: Entyvio every 8 weeks, Imuran 50 mg, Flagyl and Cipro 500 mg twice a day
Previously: Remicade, Humira, Simponi, Pentasa, Sulphasalazine, Entocort, Stelara, Methotrexate, Prednisone
08-15-2013, 09:15 AM   #2
mehtadone
 
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I was on Humira for about 6 months. My fistula seems to be closing now but I don't know if thats because of the drug or because my surgeon has been opening it up ever 5 months or so for the last 2 years. I was on Remicade before but I developed anti-bodies.
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Diagnosed Crohnie 1990, Age 9.
Steroids, Diets, drugs etc
2001. 1st Resection - Feeling great.
2007. 2nd Resection - Feeling great again!!
2011. Fistula found. Bum surgery ongoing

Current meds
Traditional: Humira, 50mg Azathioprine, Calci-chew Forte D3
Supplements: Multivitamin, VSL

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08-15-2013, 09:40 AM   #3
PsychoJane
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For me, it took less than a month for them to close but Aldo less than a year for them to reopen :$
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Diagnosed UC 1999 then refractory CD.
Past Meds: Prednisone, asacol, cyclosporine, cyclophosphamide, mp6, Humira

Currently taking: Omega-3, D-3, med-free for the time being.
~~Oh! n sorry if what I write seems strange at times, English is not my main language!~~

You'd like to chat and feel facebook would ease this point,
send me a private message and i'll do so =)
08-15-2013, 11:44 AM   #4
lgpcarter
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Thanks! Giving up on the Humira and heading for clinical trials.
08-16-2013, 11:04 AM   #5
mish2575
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Its not helping mine at all. I started Remicade first, which worked but had to switch to Humira after so many years of stopping/starting Remicade.

A recent MRI shows complex fistulae in the anal area and another on the otter labia majora that "communicates" with the complex set. All internal. All developed (I assume) since being on Humira for the past 2 years.
08-16-2013, 11:05 AM   #6
mish2575
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Thanks! Giving up on the Humira and heading for clinical trials.
Like what?
08-17-2013, 01:03 PM   #7
lgpcarter
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Its not helping mine at all. I started Remicade first, which worked but had to switch to Humira after so many years of stopping/starting Remicade.

A recent MRI shows complex fistulae in the anal area and another on the otter labia majora that "communicates" with the complex set. All internal. All developed (I assume) since being on Humira for the past 2 years.
Ah, crap. Sounds a bit like me. Anything to be done surgically? I am waiting for a surgical consult.

The clinical trial is for a drug similar to Stelara, but it only targets IL-23 instead of both 23 and 12, so apparently less infection risk. MEDI 2070 is the name of it for now. Phase 2 trial, for people who have failed on the Anti TNFs.

Last edited by lgpcarter; 08-17-2013 at 01:03 PM. Reason: typos
08-25-2013, 06:57 PM   #8
MikeinBklyn
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While taking H on a 2 week schedule, my fistula would comme very close to closing but at ten days it would open again.

After going to a ten day schedule the fistula closed in two days.

Good Luck
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