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Crohn's Disease Forum » Surgery » Stoma Subforum » It's Official!!!


09-19-2013, 09:33 PM   #1
Crohnzie Girl
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It's Official!!!

Yaaaay! I'm now officially a member of the stoma club. Today is "Ginny's" bday! She was made at around 4 something in the afternoon! Lol. So excited can't wait to begin a brand new journey!!! Be ready my forum friends I'm sure I'll have some quest and advise that will be coming up as I learn to live with my new friend!!
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I have been on Asacol, Flagyl, Cipro, 6MP, Remicade, Humira, Cimzia and Azathiaprine. I failed each one of them. I'd be in remission for 6 mths at a time but then it come back full force!

Colostomy since 2013 best thing for me!

Looking for support and sharing stories.
09-19-2013, 09:46 PM   #2
Justanothercp
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Love you attitude!! Good for you!
09-19-2013, 09:47 PM   #3
nogutsnoglory
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Welcome to the club. You need to rest up today and take it easy. If you can tomorrow start walking as much as you can to wake up those bowels. When you fart, or pee and poop your nurses will be all excited and you may be able to have a liquid diet in the next day or two and graduate to a soft low fiber one.

I just had my ileostomy made too. It's a tough journey and I'm learning so much. There are great people here to help you along and I will help as much as I can too.
09-19-2013, 11:01 PM   #4
Crohnzie Girl
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Thanks NGNG! Yup we are newbies. And I saw some of your concerns w leakage so thank you for preparing me w all of those quest w my wound nurse. Little did u kno u helped me to expect the unexpected. Lol
09-19-2013, 11:48 PM   #5
nogutsnoglory
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I think every question on here big or small is worth it. If you can think it you aren't the only one with that question.

Definitely check out the United Ostomy Association of America, they are chock full of info and run support groups. It's a great org.

Http://ostomy.org
09-20-2013, 12:43 AM   #6
Crohnzie Girl
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Wow! Thanks for the info. The video alone was loaded w jammed pack great stuff. Soooo looking forward to doing many things they are doing. That's awesome!
09-20-2013, 05:31 AM   #7
2thFairy
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Happy birthday newborn stoma Ginny! May you serve CG well and cause little trouble.

Well, CG, you are now officially one of the cool kids. wooHOO!! I hope you are resting well and not in too much pain. Let your questions fly...
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Ulcerative colitis

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"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation
09-20-2013, 05:58 AM   #8
Crohnzie Girl
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Thank You 2thFairy! I'm so ready to get my day started and take a little walk around my room. But first gonna take a little nap since the nurses has been in my room since 4:30 am. I'll keep posting later in the aft let u guys kno how it all goes.
09-20-2013, 06:22 AM   #9
Jimena
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Yay! You sound very energetic so that's good! You and Ginny get along just great when you get to know each other!
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Severe Crohn's since 2002. Tried every longterm medicine there is, Pentasa, Azamun, Remicade, Humira...
Temporary colostomy 2013 -> Parastomal hernia
Surgery, mesh, end colostomy 2014 -> deep wounds that didn't heal, three fistulas around stoma
Colon removal and ileostomy 2015 -> So far so good

And after every stoma surgery, nasty Pyoderma Gangrenosum around my stoma.
09-20-2013, 10:32 AM   #10
Nyx
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Welcome to our little club!! Take it easy
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

09-24-2013, 02:56 AM   #11
annawato
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Welcome to the world ginny. May you continue to provide cG with lots of relief and healing.
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Anna

you name it, i've tried and failed it! currently on- waiting to see whats new and reducing pred
temp. ileostomy reversed feb 2011, new ileostomy, nov 2012
4 resections plus removal of adhesions etc, recurrent intestinal abscesses
lyme disease, depression, sacroileitis, chronic pain and......Crohn's..........
07-13-2015, 10:12 AM   #12
Crohnzie Girl
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Aww.. I'm reading my old posts and I guess I was oddly chipper for my first day. I'm sure I was on a pretty high dosage of Dilauded. Haha. Anyway yes walking took some time but I was back to my normal self within a month from my surgery. I was really prepared thanks to my stoma nurse and my forum friends. It's been quite a journey but I'm still happy happy happy with Ginny! There's talk about it being permanent since I'm still not healing. At this point I have a little mixed feelings because in my head I thought it be temporary. But I have faith that whatever needs to be done it would be for the best! Thanks again everyone for all of your support! 😊
07-26-2015, 12:54 PM   #13
fuzzy butterfly
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Hi cg aw sorry to hear your not healing to quick.glad your happy with Ginny, my hetty was my best friend for 12 months she saved my life as far as I'm concerned .now she is back inside, but if she has to come back out at some point I'll welcome her back with open arms because of the relief she gave me from all of the pain I suffered before she was born.!! best of luck what ever happens!
07-26-2015, 02:01 PM   #14
Crohnzie Girl
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Thank you MandyK. I'm really hoping that it can be reversed but if I have it for life I know I'll be ok. Like you said Ginny saved my life too and my kids still have their momma.
07-26-2015, 02:31 PM   #15
fuzzy butterfly
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No worries hun,ooh yes your babies having their momma is the most important thing in the world.I say God bless.Ginny and hetty+all the other stomies out there that keep us alive and kicking. I know stomas bags can be a pain in the arse lol.but lord knows they are life savers.I know my family and I think they are wonderful things. I cried a bit when hetty went to be honest I kind of miss her.You take care and keep well. If you want know anything regarding reversal just ask. IM happy to help as much as I can. God bless you and your family.safe
07-26-2015, 02:32 PM   #16
fuzzy butterfly
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Sorry it meant to say and keep you all safe!!
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