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12-18-2013, 05:56 AM   #61
Catherine
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Kerry saw her eye specialist last week. Kerry mentioned to her specialist that she has night blindness. Specialist asked whether she had celiac disease. I advise the blood test was negative.

So we are awaiting on vitamin a level and further eye testing if vitamin a is ok.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
04-23-2014, 03:15 AM   #62
Catherine
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Quick update on Kerry.

Vitamin A result was normal.

She started treatment again last week for severe acne.

Her ferritin level is now 14.
Vitamin d is now normal (which it should be at the end summer and taking supplement)

GP has asked that she start supplementing and order faecal calprotectin at my request.

Current symptoms
Bad skin (moderate to severe cystic acne)
No growth over summer
Stomach ache with dry land training (sometimes travelling to the back)
Cold sores
Slow healing sores
04-23-2014, 05:59 AM   #63
DustyKat
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Thanks for the update Catherine.

I am so very sorry to hear that Kerry is having problems. What is your gut telling you?

Dusty. xxx
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04-23-2014, 06:22 AM   #64
Catherine
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I don't know what to think.

I actually don't understand why the GI didn't want to treat the low iron 6 months ago.

But also don't understand with a drop from 17 to 14 the gp wants to treat the low iron with twice the dose rate for an adult. As in two ferro-grad c tablets per tablets per day.

The chemist said that it can be use at higher rates if advised by a doctor but has never spoken to anyone else who has been advised to do so.

Last edited by Catherine; 04-26-2014 at 07:29 PM.
04-23-2014, 06:33 AM   #65
DustyKat
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Can you ask the GI or his nurse the reasons why?

Dusty. xxx
04-23-2014, 06:42 AM   #66
Catherine
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The GI made feel like I was looking for something that wasn't there and any further testing would not find anything.

My oldest daughter must have had symptoms other low iron. This was all said in front of my then 14 year old.
04-23-2014, 06:48 AM   #67
DustyKat
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{HUGS} to you Catherine.

That sucks! Well let them walk a mile in your shoes and not have the dread that another of your children will end up with this disease. Off handedness and flippancy is the realm of those that nothing to fear.

Dusty. xxx
04-23-2014, 07:03 AM   #68
Catherine
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He did say I could have faecal calprotectin and inflammatory markers but Kerry wasn't interested.

What are usual causes of low iron?
04-23-2014, 07:22 AM   #69
DustyKat
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The most common are:

Dietary - not enough in intake.

Bleeding - whether through a medical cause and/or for females menstruation.

Increased need - Growth spurts and puberty.

Activity - large amounts of exercise/training can increase the body’s need for iron.

Absorption - you would well know about this one. It doesn’t necessarily mean that it is IBD but that would be one cause.

Dusty. xxx
04-23-2014, 07:33 AM   #70
Catherine
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The most common are:

Dietary - not enough in intake.

Bleeding - whether through a medical cause and/or for females menstruation.

Increased need - Growth spurts and puberty.

Activity - large amounts of exercise/training can increase the body’s need for iron.

Absorption - you would well know about this one. It doesn’t necessarily mean that it is IBD but that would be one cause.

Dusty. xxx
Dietary - we eat too much meat for this one.

Bleeding? Yes she female

Increased Need? Wouldn't you need growth for this one

Activity - her active levels are very high. Can't remember why but Sarah's GI said this one is rarely seen.

Absorption - Crohn's/caelic disease. Some other reason but likely cause.
04-24-2014, 09:47 PM   #71
DustyKat
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It may be one cause, like absorption, but being a teenager, female and highly active may be feeding into it too, I know you are way to smart not to know that!

Good luck Catherine, I hope you soon get solid answers for your girl and they are easily treated ones.

Dusty. xxx
04-26-2014, 06:38 AM   #72
Catherine
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Your right DustyKat, she has low iron of unknown origin.
04-26-2014, 07:14 PM   #73
my little penguin
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Fwiw DS takes 50mg of elemental iron which he started when his ferritin was 9.
Hope the supplements work for her .
Maybe give her time on the fecal cal . Since she would only have to "leave it behind " for you .
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04-30-2014, 06:21 AM   #74
Catherine
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She is currently taking dried ferrous sulfate 325mg with sodium ascorbate 562.4 mg. The gp wants her on twice this dose.

Still working on getting the fc sample.
04-30-2014, 06:50 AM   #75
my little penguin
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It should have the amount of elemental iron in it.
Since each compound is different .
04-30-2014, 07:58 AM   #76
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105mg of elemental iron.
04-30-2014, 11:35 AM   #77
my little penguin
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:wow:
04-30-2014, 05:35 PM   #78
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We have gone from one extreme to the other.

GI who didn't want to treat ferritin of 17.

GP who I can't understand why wants to treat with 210mg of elemental iron for ferritin 14.

So we have started with 105mg as per chemist which I believe is the middle path.

Sarah's GI has suggested we get blood tests for coeliac, vit d, ESR and CRP.
04-30-2014, 05:41 PM   #79
my little penguin
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Were any of her other iron study numbers way off?
04-30-2014, 05:54 PM   #80
Catherine
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I don't have a copy of the test results but 3 of the 4 were out of range on the previous test.
04-30-2014, 06:05 PM   #81
my little penguin
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That may be why DS only had low ferritin and high something else .
His hgb was normal though .
05-01-2014, 06:47 AM   #82
DustyKat
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Couple of articles re: Iron Studies. They each have tables at the end showing what results may indicate…

http://www.aacb.asn.au/documents/item/641

http://www.melbournehaematology.com....on-studies.pdf

No doubt there will always be exceptions to the rule though!

Dusty.
05-05-2014, 05:34 PM   #83
Catherine
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Get the sample is going to kill me. She says she has only had one BM and that was on Thursday.
05-05-2014, 05:38 PM   #84
my little penguin
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Turn off the water to the toliet so she can't flush - line the bowel with plastic wrap ??
05-07-2014, 05:56 AM   #85
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Thursday??

Has she gone yet Catherine?

Dusty. xxx
05-07-2014, 08:06 AM   #86
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Did sample night, I will take in tomorrow.
06-04-2014, 03:20 AM   #87
Catherine
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Faecal calprotectin has come back as <19.5 (19.5 - 50) ug/g

Comment: low/absent inflammation of the GIT.

I think we can rule out inflammation as the cause of low iron.
06-04-2014, 07:38 AM   #88
gotumtum
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Hi Catherine

If your daughter continues to have sore tummies may I suggest that she get a Giardia test done (I think it is a stool test sorry!) I had this when I was doing a lot of swimming when I was about her age and only had sore tummies- although adults usually present with vomiting and diarrhea. It is usually treated with a short but strong course of antibiotics.

good luck - it is not fun to have sick kids of any age.
07-08-2014, 10:44 PM   #89
Catherine
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Quick update.

We going have some more blood tests done to monitor the low ferritin levels.

The gp printed off the vitamin d results from April.

The vitamin d is back in range at 84 nmol/L (75-200) So increased from 54, while taking 1000mg vitamin d and over summer.

Kerry seems ok with having the blood test done, if mean taking less supplements.

Starting to second guess myself.
07-15-2014, 11:47 PM   #90
Catherine
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In a normal healthy child (eg non IBD). How soon would you expect an improvement in iron levels?

Is two and half months long enough?
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