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Crohn's Disease Forum » Treatment » Imuran/Azathioprine/6-MP » Good things about Aza?


10-06-2013, 07:10 AM   #1
lsgs
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Good things about Aza?

So I'm on the cusp of being diagnosed. I'm probably not going to be diagnosed with crohn's or colitis but a more generic 'inflammatory bowel disease' and now unfortunately ankylosing spondylitis.

As such I'm due to be going on azathioprine after I have a spine/pelvis MRI. If there's inflammation on the MRI I'm going on sulfasalazine and if there's none I'm going on azathioprine. My rheum has run the TMPT test so I know he's serious now

I've heard every horrible story about azathioprine but I don't hear any good and I'm freaked out about going on it. My doctors attitudes haven't helped much either.

Has anyone had any good experiences with little to no side effects and complications? I am hoping it's just that you only hear the bad and not the good!

Thanks
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Sjogren's syndrome - 2009

Presumed IBD - 2012

Cholecystectomy, liver biopsy and lymph node excision - 2015

Primary Biliary Cholangitis - 2016

Bile Reflux Gastritis - 2016
10-06-2013, 08:05 AM   #2
hawkeye
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I've been on it since 1991 with no side effects. Varying doses over the years, now at 150 mg/day.
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Diagnosed since 1990
Current Medications: None currently. Was on Imuran (150mg/day) and 5-ASA (3000 mg/day) as maintenance meds prior to surgery
Surgeries: Left hemicolectomy 2014.
11-22-2013, 10:34 AM   #3
greypup
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My teenage daughter just began 150 mg dosing. I hope you don't mind me asking a personal question...did you conceive that beautiful baby on Imuran?
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Linda
Mom to 18 yr old daughter, M, dx'd Crohn's April 2013
TI resection surgery June 2013
Imuran
supplements=Vit D, L-Glutamine, Omega D, Probiotic, Curcumin
11-22-2013, 10:49 AM   #4
MissCadenza
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The only side effect I got was slight hair thinning. Of course it might be doing hideous things to my insides but we won't know until I have my next blood test, lol. I'm on 75mg daily and it's brilliant, it's kept any nasty symptoms at bay apart from the odd gut ache which is usually caused by unsuitable food.

I'd read all the horror stories too and when I started on it I was like, omg, what is this stuff going to do to me? So far so good though. Fingers crossed!
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11-22-2013, 11:49 AM   #5
Jmrogers4
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My hubby has been on it for 8-9 years with no side effects and has had only a few minor flares. He has been on 150mg. My son was on it for about 2 years with no side effects and it was pretty effective in his case as well.
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
11-22-2013, 11:55 PM   #6
Catherine
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My daughter has been on aza for 22 months, she has no side affects from aza.

Her hair had starting fall out and had stopped growing before starting aza. Her hair is now healthy and very long.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
11-27-2013, 01:34 AM   #7
Shiny
 
Join Date: Jan 2013
Been on it since 1995. Most of time at 100mg a day. Only problem I noticed with it is at the 150mg a day I get headaches, but seem ok at the 100 dosage. Best of luck
01-01-2014, 09:47 PM   #8
hawkeye
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My teenage daughter just began 150 mg dosing. I hope you don't mind me asking a personal question...did you conceive that beautiful baby on Imuran?
Greypup, Yes, not sure what the exact dose would have been but it was at least 75 mg/day.
01-03-2014, 10:05 AM   #9
Andy357
 
Join Date: Jan 2014
Location: Adelaide, South Australia, Australia
It seems that Azathioprine is a drug to which people react to very differently. My own experience was terrible, after only a month of treatment all of my joints were so stiff and the ache was almost unbearable, to the point where getting out of bed was a ridiculous struggle. Being only 20 at the time I felt as though my body had aged 70 years in one month!

Having said that, your own experience might be entirely positive! Best of luck to you mate
01-08-2014, 09:34 AM   #10
dani4leeds
 
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I've been on it since 2010 and have had no side effects apart from a weaker immune system. I take 100 mg twice a day. I noticed improvement after a couple of months of being on the drug.
01-08-2014, 11:52 AM   #11
Amanda89
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It seems that Azathioprine is a drug to which people react to very differently. My own experience was terrible, after only a month of treatment all of my joints were so stiff and the ache was almost unbearable, to the point where getting out of bed was a ridiculous struggle. Being only 20 at the time I felt as though my body had aged 70 years in one month!

Having said that, your own experience might be entirely positive! Best of luck to you mate
Interesting you've said that, my joints have been really sore past week or so and I've been on it for a month, but I actually assumed it was a coincedence and my Psoriatic Arthritis was flaring.
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Medication
Pentasa 400mg
Azathioprine 125mg
Cyclosporine

Past Medications
Prednisolone, Methotrexate oral & injections, Budesonide, Omeprazole, Asacol, Infliximabl
01-11-2014, 06:30 PM   #12
EmilyElizabeth
 
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Did you start it lsgs, and how are you making out? I've been on it for about a year and a half now. No noticeable side effects, and I'm pretty sure it's working at least some.. I'm actually really surprised to be honest, I expect the worst and kept waiting for some nasty side effects to pop up but I've pretty much given up on that (thankfully)!
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EmilyElizabeth
Dx Crohn's 2012 (terminal ileum, colitis, perianal). Age 26
Meds: Imuran 100mg, vit D, B, C, iron
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