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View Poll Results: How many Crohn's related surgeries have you had?
1-2 68 39.77%
3-4 23 13.45%
5-10 22 12.87%
11+ 6 3.51%
Zero 52 30.41%
Voters: 171. You may not vote on this poll

 
10-09-2013, 08:19 PM   #1
afidz
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Join Date: Jun 2012
Location: Mckinney, Texas

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How many Crohn's related surgeries have you had?

This is just out of curiosity, just wondering how many surgeries every has had. I have had 14 Crohn's related, and my appendix out, which turned out to be Crohn's related and about to go into #16.
__________________
Crohn's since 2007
15 Abdominal Surgeries since 2008
Severe Non-repairable abdominal hernia
Ankilosing Spondylitis
Inflammatory Arthritis

Failed meds:
Humira
Remicade
Asacol HD
Cimzia
Methotrexate
10-09-2013, 10:11 PM   #2
hbrekkaas
 
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Join Date: Mar 2013
Location: Fort St. John, British Columbia

My Support Groups:
1. Diagnosed in April this year, had a resection less then 2 months later.
10-09-2013, 10:36 PM   #3
Jennifer
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4

Central IV when I was 9. Resection at 17. Fixed infection after resection. Tonsils removed because Humira made them go crazy.
__________________
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
10-11-2013, 10:35 AM   #4
jecoll
 
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Join Date: May 2009
Location: Massachusetts
One planned, laparoscopic surgery in 2009 to remove about 10 inches of scarred tissue in the ileum. And then an unplanned emergency surgery a year later due to a colonoscopy mishap, which removed the cecum (the first part of the large bowel).
__________________
Dx'd in 2000/Crohn's
Meds: Methotrexate
Supps: Folic Acid, L-Glutamine, D3, B12, Iron, Veggie Juicing
10-11-2013, 11:08 AM   #5
Lisa
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Join Date: Apr 2010
Location: New York

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How about an option for 0?
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30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
10-11-2013, 11:23 AM   #6
mish2575
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Join Date: May 2013

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You forgot an option for 0.

I've been very lucky so far. I have an appt on Tuesday to discuss the complex fistulae found in my MRI so I'm not so sure how long I'll be able to say 0.
10-11-2013, 11:26 AM   #7
nogutsnoglory
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Join Date: Sep 2009
Location: New York

My Support Groups:
7 crohn's ops. I hope one more for a reversal and that's it!
10-11-2013, 11:29 AM   #8
xX_LittleMissValentine_Xx
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Join Date: May 2009
Location: Reading, United Kingdom

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I've had two, one for an abscess, second for a fistula, probably both related!
__________________
~Holly~
Diagnosed with CD March 08 at 17
Currently on:
Infliximab

Past:
Pentasa
Prednisolone
Azathioprine

My blog: http://hollysbloggyness.blogspot.com/
10-11-2013, 12:17 PM   #9
Cat-a-Tonic
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Join Date: May 2010
Location: Madison, Wisconsin

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I'm also a zero. I added "zero" to the poll options, so us zeroes can vote now.
10-11-2013, 12:20 PM   #10
Jison0612
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Join Date: Aug 2013
Location: Georgetown, Kentucky

My Support Groups:
1 fistula repair in 13yrs and hoping no more!!!
10-11-2013, 03:28 PM   #11
DustyKat
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Join Date: May 2010
Location: New South Wales, Australia
Edited poll to show 1 each for my kids.

I do think Matt's inguinal hernia reared its ugly head because of his abdo surgery. However it is a long bow to draw to blame it on Crohn's as he had a predisposition to it.

Dusty.
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Mum of 2 kids with Crohn's.
10-11-2013, 03:33 PM   #12
emmaaaargh
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Join Date: Apr 2012
Location: Brighton, United Kingdom

My Support Groups:
One. Lost about a foot of my small bowel in a resection in 2009.
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Hi, I'm Emma!
19 years old.
Diagnosed: Crohn's disease, August 2007
Currently on: Humira 40mg fortnightly
10-11-2013, 04:36 PM   #13
SarahD
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Join Date: Feb 2012
Location: Cambridge, United Kingdom
No surgery, and I've had Crohn's for 13 years.
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Symptoms from the age of 12. Mis-diagnosed with UC at the age of 13, and later diagnosed with Crohn's in January 2012 at 24 years old. Disease mainly in terminal ileum.


Current meds:
Azathioprine, Allopurinol, Calcichew D3-Forte, Fortijuice, Alendronic acid, Ranitidine

Previous meds:
Augmentin, Doxycycline, Lansoprazole, Asacol, Pentasa, Prednisolone, Entocort, Cipro, Flagyl, Elemental Extra 028
10-11-2013, 07:09 PM   #14
DougUte
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Join Date: Jul 2010
Location: Kaysville, Utah

My Support Groups:
One resection and fistula repair at the same time, three years ago tomorrow.
__________________
Surgery Oct 12, 2010

Crohns Medicines:
Started Humira June 22nd, 2011
Increased to weekly injections on November 1st, 2016
Due to the insurance company, Humira ended on January 31, 2017.
Started Entyvio February 9th, 2017
Loperamide 3 capsules twice a day
Vitamin B6, B12, Folic Acid
Vitamin D3 10000 I.U.
Nature Made Multivitamin
10-11-2013, 08:31 PM   #15
hawkeye
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Join Date: Mar 2011
Location: New Brunswick

My Support Groups:
Zero.....got a surgical consult in the works though
__________________

Diagnosed since 1990
Current Medications: None currently. Was on Imuran (150mg/day) and 5-ASA (3000 mg/day) as maintenance meds prior to surgery
Surgeries: Left hemicolectomy 2014.
10-11-2013, 11:05 PM   #16
afidz
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Join Date: Jun 2012
Location: Mckinney, Texas

My Support Groups:
Dusty I consider all of the surgeries Crohn's
related Even though only 2 of them actually invoked my intestines. It all started because of my colon and I can't heal properly because I have Crohn's
10-12-2013, 04:17 AM   #17
DustyKat
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Join Date: May 2010
Location: New South Wales, Australia
*Hugs* to you afidz.

Dusty. xxx
10-12-2013, 12:37 PM   #18
LylahJean
 
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Join Date: Apr 2013
Location: Stayton, Oregon

My Support Groups:
I've had Crohn's for 20 years with no surgery. I have an appointment on Monday at OHSU in Portland Oregon to get a second opinion regarding the necessity of an operation though. I'm scared. I don't want to have a stoma for the rest of my life..
10-12-2013, 01:18 PM   #19
Amy2
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Join Date: Mar 2013
Location: Lafayette, Colorado

My Support Groups:
So far, zero for both kids.

*knock wood*
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Three passions, simple but overwhelmingly strong, have governed my life: the longing for love, the search for knowledge, and unbearable pity for the suffering of mankind. Bertrand Russell
10-14-2013, 02:43 PM   #20
Riverchick
 
Join Date: Aug 2013
Location: Potsdam, New York

My Support Groups:
I had 12 inches of small bowel (terminal ileum) removed in 2008 and gallbladder removed due to crohns in 2009. Failed with Remicade, just started Humira 2 weeks ago.
__________________
Karen
Diagnosed Crohn's 2008 after 20+yrs symptoms
Bowel resection (terminal ileum - transverse colon)2008
Cholecystectomy 2011
Failed treatment: Remicade, Humira, 6mp
Medications: B-12 injections, Entyvio,Methotrexate, Tramadol rosette1:
10-14-2013, 05:30 PM   #21
Feather
 
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Join Date: Sep 2011
Location: Pittsburgh, Pennsylvania
One surgery in 2011 to remove scar tissue in ileum.
__________________
Diagnosed Crohn's in 2003 (age 11)
Surgery in 2011 (age 19), laparoscopic ileocecal resection

Current treatment: Pentasa - 3000mg
Supplements: Iron, Vitamin D 4000iu
10-15-2013, 06:19 PM   #22
shamrock15
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Join Date: Apr 2011
Location: ottawa, Ontario

My Support Groups:
I am at 6 so far - two were to install and remove a temporary ileostomy. If dilatations are included, that would add another 4 to the total. Three of these came with 6 months of getting married!
10-16-2013, 08:45 AM   #23
alisonwilkinson
 
Join Date: Oct 2012
Location: Nottingham, United Kingdom

My Support Groups:
No surgeries i was diagnosed 1999. I have been extremely lucky.
10-17-2013, 08:52 AM   #24
Nyx
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Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
Just one...to get my stoma
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

03-31-2014, 10:59 PM   #25
yosemitegirl
 
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Join Date: Mar 2014
Location: Cameron Park, California

My Support Groups:
10 surgeries in 45 years (1st one in '77, last in '08)... started in small bowel @ ileocecal valve. Subsequent scarred over obstructions @ the anastomosis. Eventually involved colon so at each surgey more small and large bowel are removed.

Sepsis X 2 and 2 paralytic ileus as near death complications.

Still standing... More or less.

Thanks to everyone for sharing.

Michele Lea
04-01-2014, 08:04 AM   #26
boyzmom33
 
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Join Date: Mar 2014
Location: Windsor, Ontario
I was misdiagnosed with UC in 1985, got my correct diagnosis of Crohn's in 1989 and have had 2 related surgeries, my gall bladder removed and my appendix removed. I think I've been fairly lucky so far
04-01-2014, 10:49 AM   #27
ronroush7
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Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Hemmrhoids and a fissure or fistula in 1989,twice for an abscess in 1992,a fistula in 1994 and a resection in 2010. Getting ready to have surgery for lesion in scalp caused by Remicade.
04-01-2014, 02:42 PM   #28
Essieluv
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I have had 6 surgeries so far, although I may have miscounted and actually had more....it gets confusing after a while keeping them all straight, lol.
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Meds that failed me: Remicade, Humira, Cimzia, Entocort.

Waiting for a cure!
04-01-2014, 03:54 PM   #29
D Bergy
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Join Date: Apr 2007
Two so far. First one no big deal. Second one fistulas, a big deal to me.

I think I figured out how to stay off of the table now. Time will tell.

Dan
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Nothing I post here is to be construed as medical advice. I am not a doctor or health professional.
They are simply my opinions.
04-01-2014, 08:12 PM   #30
pink&green
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Hubby has had 7 surgeries.
__________________
Hubby Diagnosed 12/15/90
1/3 colon removed
12 inches of small intestine removed
Appendix removed
2007 Hemorrhoids removed
2006 resection:
2005 first perianal fistula(removed 3x & lanced still keep coming back)
2014 partial nephrectomy (stage1)
Previously medications:Humira-anaphylaxis reaction, Remicade, Cimzia, Entyvio
Current medications:
B-12, 6mp, flagyl, prednisone,
Tramadol(fistula & joint pain)

LeeLee
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