Share Facebook


10-11-2013, 02:00 PM   #1
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
Sore throat

My daughters had a sore throat for a few days, l thought she might be coming down with the flu but last night she said her throat felt tight when she breathed in. Now l'm thinking its acid.

As its Saturday here l can't talk to the nurse till Monday. I have Nexium at home so l'm thinking of starting her on it today. She was going to start it a couple of months ago when she was getting pain after eating, but the pain went away on its own.

I don't know what to do.
__________________
Daughter dx CD March2012...
(aged 14)

Currently on:
40mg Humira
125mg Imuran




Dx Premature Ovarian Failure 2014



10-11-2013, 03:47 PM   #2
pops14
 
Join Date: Aug 2013
Location: Sussex, United Kingdom
does she have an temperature could just be virus /toncilitusbut one of my sons first symptoms was ulcers in his throat have a look with a torch his looked like white plaques and very sore, plenty of fluids and pain relief.
10-11-2013, 04:17 PM   #3
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
No temperature. Throat looks normal. I'll see how she feels when she wakes up, l might take her to the DR.
10-11-2013, 05:58 PM   #4
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
I don't know what is happening in Sydney but up here at the moment we have a really nasty virus doing the rounds. Throat looks normal (hence the virus) but very, very sore...hurts to swallow, tightness...lasts anywhere up to 2 weeks and for some longer.

Please let us know how you get on.

Dusty. xxx
__________________
Mum of 2 kids with Crohn's.
10-12-2013, 03:39 AM   #5
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
Dusty l haven't heard of anything going around.

I started her on the Nexium. I also sent the nurse an email so hopefully she'll get back to me on Monday.
10-12-2013, 03:54 AM   #6
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
I hope things soon settle whatever the cause upsetmom.

Good luck for Monday!

Dusty. xxx
10-13-2013, 03:31 PM   #7
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Hope you get answers today mum. Good luck!

Dusty. xxx
10-13-2013, 10:08 PM   #8
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
She still has a sore throat. I just spoke to the nurse and she said its hard to tell if its caused from a virus or acid. But she said to continue with the Nexium.
10-19-2013, 07:44 PM   #9
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
My daughters still got a sore throat. It has started to look a bit red so l took her to see the GP. GP said to gargle with warm salt water and to use throat spray.


Aussie posted this in another thread so l'll be contacting the nurse tomorrow.
I would suggest you get a blood test ASAP, a sore throat is one of the more common signs of a significant bone marrow suppression.
10-19-2013, 11:15 PM   #10
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
I hope she's beginning to feel better! And hope you heard back from the nurse!!
__________________
Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
10-21-2013, 02:26 PM   #11
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
Looking back at my diary...crohn's forum. she's been getting a sore throat on and off since starting the Pentasa

l've emailed the nurse asking if this could be caused by her medication and can she just stop the Nexium as its not helping at all. She still hasn't got back to me.
10-21-2013, 04:58 PM   #12
Catherine
Moderator
 
Catherine's Avatar
 
Join Date: Jan 2012
Location: Melbourne, Victoria, Australia

My Support Groups:
Wondering whether her sore throat could being made worse by smoke in the air.
__________________
Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
10-21-2013, 08:35 PM   #13
brucep10
 
brucep10's Avatar
 
Join Date: Oct 2013
Location: Bloomington, Minnesota

My Support Groups:
One thing I have found to work is what is called "oil pulling"..Oil pulling or oil swishing is a traditional Indian folk remedy that involves swishing oil in the mouth. It is mentioned in the Ayurvedic text Charaka Samhita, where it is called Kavala Gandoosha or Kavala Graha. I've started this and any sign of sore throat dissipated.
10-21-2013, 09:19 PM   #14
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
It looks like shes coming down with the flu/virus??. She woke up today sore all over but she still went to school. Then an hour later l got a call to pick her up as she was getting stabbing pains in her head. Shes been getting this stabbing for a few weeks now, GP called them icepick headaches.

Catherine l was thinking the same thing. All this smoke were're getting from the bushfires wouldn't be helping at all. Its so bad here in the mornings.

brucep10 thanks for the info that's handy to know. I don't know if she'll try that though.

The nurse doesn't think this is related to any of her medication and she said to stop the Nexium.
10-22-2013, 06:39 AM   #15
Johnnysmom
Forum Monitor
 
Johnnysmom's Avatar
 
Join Date: Oct 2011
Location: Cincinnati, Ohio

My Support Groups:
I know Johnny had a persistent sore throat when his white blood cell count got really low. We would have him gargle with mouth wash or salt water, something to help kill the germs. He usually had a few white specks. This was when we were going through med changes and once his WBC went back up it went away.
__________________
Mom of Johnny
Dx Oct 11 2011 Crohns disease
Prednisone done 12/30/11
6mp 50mg every day
Allopurinol 50mg -discontinued per new G.I. on 11/01/12
Multi Vitamin
Vitamin D3 1000mg
Prayer
10-26-2013, 05:25 PM   #16
positivemum
Senior Member
 
Join Date: Mar 2013

My Support Groups:
I know Johnny had a persistent sore throat when his white blood cell count got really low. We would have him gargle with mouth wash or salt water, something to help kill the germs. He usually had a few white specks. This was when we were going through med changes and once his WBC went back up it went away.

Hi How long did it take for his WBC to go up? we are struggling with that at the moment
10-26-2013, 07:49 PM   #17
Johnnysmom
Forum Monitor
 
Johnnysmom's Avatar
 
Join Date: Oct 2011
Location: Cincinnati, Ohio

My Support Groups:
They adjusted his meds and his WBC actually kept going down for a few months after that. The GI said that was completely normal. It took about 3 months to return to normal. The sore throats would occasionally pop up but if he gargled with mouth wash or salt water that seemed to take care of it.

Hope things get better for you soon. ((((Hugs))))
11-02-2013, 05:06 PM   #18
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
How is your lass doing upsetmom?

Have bloods been done?

Dusty. xxx
11-02-2013, 10:18 PM   #19
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
Her sore throat went away for awhile and then it come back and now its gone again.

No bloods have been done as the nurse doesn't believe its caused by any of her medication.

We have an appointment at the IBD clinic next month so l'll talk to the DR about it. Something is definitely causing this sore throat.
11-02-2013, 10:24 PM   #20
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia


Ugh! How can anyone say with certainty that the Pentasa is not the cause?...

Less serious side effects may include:

mild nausea, vomiting, stomach cramps, diarrhea, gas;

fever, sore throat, or other flu symptoms;

constipation;

headache or dizziness;

tired feeling; or

skin rash.

http://www.rxlist.com/pentasa-side-e...rug-center.htm
I hope you get answers when you speak with the doctor mum.

Dusty. xxx
11-02-2013, 10:33 PM   #21
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:


Ugh! How can anyone say with certainty that the Pentasa is not the cause?...
Dusty. xxx
I know!
She told me none of the other kids taking Pentasa have had a sore throat.

I don't know why she compares one kid to another.
11-02-2013, 11:27 PM   #22
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Why indeed! Grrrrrr.

Dusty.
11-03-2013, 07:59 AM   #23
Mehita
Forum Monitor
 
Mehita's Avatar
 
Join Date: Nov 2011
Location: Minnesota

My Support Groups:
Well, none of the other kids have HER body!
__________________
Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
11-03-2013, 08:32 AM   #24
ellie
Senior Member
 
Join Date: Apr 2010
Location: Sydney Australia

My Support Groups:
Just wondering if she's had a throat swab taken?
Pentasa could be responsible for the sore throat - though my impression has been it's less likely to cause immune suppression than some of the of meds used for Crohn's...
Another thought - is it worth checking to exclude a fungal cause? (In the same vein as babies getting oral thrush/candida - very common infective agent!)
Hope you get some answers soon..


HD
11-03-2013, 05:19 PM   #25
upsetmom
Senior Member
 
upsetmom's Avatar
 
Join Date: May 2012
Location: New South Wales, Australia

My Support Groups:
Ellie shes never had a throat swab, no DR has suggested it.

I still think it might be the Pentasa.
Reply

Thread Tools


All times are GMT -5. The time now is 04:29 PM.
Copyright 2006-2017 Crohnsforum.com