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06-05-2014, 05:37 PM   #301
theOcean
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I am, yes! Have been since last October and hope to stay there as long as possible.
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Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
06-06-2014, 10:11 PM   #302
LCATC945
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I'm back to my old weight. Finally. Start humira wed. Have it in my fridge. Im in medicinal remission. Which is good.


07-07-2014, 09:20 PM   #303
Cosmojo
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Hey young adults, I've been around the forum for awhile, bummed I didn't see this earlier! I love knowing other young people with IBD, makes me feel like I belong. I'm a graduate student so I'm living the life I want, but socially IBD makes it hard, always being tired, I really don't drink and most 20-somethings don't understand the concept of not feeling well all the time.

Anyways this forum has helped me quite a bit- thanks
07-07-2014, 09:27 PM   #304
Orchid
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Location: Springfield, Oregon

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Most people are still riding that "I'M INVINCIBLE" high of youth. It's pretty annoying and I'm so glad I have friends and a fiancee who know what it's like to have a chronic illness.
07-08-2014, 02:21 AM   #305
Magnolia24
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Welcome Cosmojo. It always makes me feel good to hear from grad students making it work. I'm starting an MFA program this Fall... I'm nervous, but at the same time having to fight a little harder made my goals and priorities that much clearer through the application process, so I also feel good about the path my life is taking.
07-08-2014, 02:33 AM   #306
Orchid
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What's the program and where?
07-08-2014, 09:29 AM   #307
JenLyn
 
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Taking it out of the fridge about 20 minutes before helps with the injection pain. Good luck I'm glad to hear you are in remission. That's great!
07-08-2014, 09:33 AM   #308
JenLyn
 
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I'm back to my old weight. Finally. Start humira wed. Have it in my fridge. Im in medicinal remission. Which is good.
Taking it out of the fridge about 20 minutes before helps with the injection pain. Good luck I'm glad to hear you are in remission. That's great!
I just replied twice. Oh well
07-08-2014, 09:34 AM   #309
JenLyn
 
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Hey young adults, I've been around the forum for awhile, bummed I didn't see this earlier! I love knowing other young people with IBD, makes me feel like I belong. I'm a graduate student so I'm living the life I want, but socially IBD makes it hard, always being tired, I really don't drink and most 20-somethings don't understand the concept of not feeling well all the time.

Anyways this forum has helped me quite a bit- thanks
I'm in grad school too! Stress is awful but we can make it
08-12-2014, 07:19 PM   #310
Allegra
 
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I'm 18, and I've just been diagnosed a couple of weeks ago, and I'm due to start University in two weeks! So unbelievably frightened because I'm going through such a bad flare up at the moment, don't know how I'm going to be able to be so sociable!
09-01-2014, 03:44 PM   #311
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Hi, I'm 17 and got diagnosed last year with crohns. Although my condition isn't severe, it has affected my life in a huge way, so hoping this forum can help
09-02-2014, 08:36 PM   #312
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24. diagnosed with Crohns Nov 2013. still awaiting some relief. The hardest part of this whole thing has been image overall. of course my body image has gone down. I've gained over 20lbs from prednisone but also my self image has been affected a lot. I always prided myself in being the "person you could always count on" I was always reliable at work and worked hard. I was still working VERY hard while i was undiagnosed but just kept pushing. Now i have a hard time letting me down when I'm sick. luckily now, i am a nanny and my job is a little more lenient now, but i still feel guilty and horrible when i have to take time off for my health. My boss literally yelled at me for coming back to work too soon after my last hospital stay, but i just can't handle the fact that people rely on me and my illness prevents me from being dependable. Not just in the work environment either. I feel like i constantly let down my fiancé. He'll want to do things together or stay up and watch a movie and i just end up not feeling well and falling asleep on him. :/ It definitely affects my social life, and being only 24 i feel like an 80 yr old woman
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--littlefaeriefae--

Staying Strong
diagnosed Nov 2013. Humira.
09-02-2014, 09:23 PM   #313
LCATC945
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It gets better if the right medication can be found and it can be put into remission.


09-04-2014, 01:51 AM   #314
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Hi, I was diagnosed with crohn's about 3.5 months ago and I'm 21 years old. I just FINALLY got the green light to stop the prednisone but am still on Entocort for a little while longer. How long did it take you for the symptoms to go away? I absolutely hate the moon face. As much as I try and tell myself it's temporary and to not think about it, it's hard as a young woman in college to stay positive. Any advice? I've been feeling really down for a while and am ready to feel like myself again.

Also any advice for taking humira? I'm about to start the injections sometime next week and am a bit nervous.
09-05-2014, 09:39 AM   #315
littlefaeriefae
 
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^ I just started Humira a week ago. The injections weren't all that terrible, like you I just came off prednisone. I put on close to 20 lbs from it but the extra weight and tummy I got from it made the Humira injections go a lot smoother than my normal body weight. I was terrified because everyone said that the pen injections hurts more than the syringe but they actually weren't bad at all and they were super easy. Next week is my second injection and I'm really excited for it to kick in and start working if you have tattoos or piercings the injections will be a breeze. As for the moon face I promise you it does go away good luck!
10-11-2014, 12:49 AM   #316
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I gained almost 40 pounds on prednisone! Now some of it was needed, but a lot wasn't.

The best thing for Humira injections is to take them out of the fridge a while before injecting! That helped me a lot.
10-11-2014, 05:09 AM   #317
sleepallday
 
Join Date: Sep 2014
Location: Hawaii

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It's so great to have found this thread. While I wish that none of you had IBD, it's really nice to know that I'm not alone in all of this.

I got diagnosed at age 20 and I am just about to have my 21st birthday in about 2 weeks! I am meant to be having surgery but my specialist (the absolute legend!) allowed me to hold out until after my trip to the USA.

Work is hard (I work in a very physically and mentally draining field) and the majority of days I'll come home and go straight to sleep.
When I was first diagnosed, my supervisor actually stopped giving me work for a couple of months because I had to turn down two shifts for medical appointments and she saw it as me not being thankful for having the job I have.. (It's also a very competitive field).

As for my family and partner, I am so blessed in every way to have them.

I really just want my energy back so I'm not a grandma, plus so that I don't feel annoying complaining about pain all the time!

Did you all feel that surgery was worth it?

Also sorry for the personal question but for a 20 year old, I'm not feeling very uhmm.. How do you put it nicely.. In the mood? Does anyone else feel the same? I feel so bad for my poor bf! Haha!
10-12-2014, 07:47 PM   #318
fissure2
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im 24 i was diagnosed in june, i live alone, no family nearby. its been incredibly tough. i lost 50 lbs from the initial flare and it is still lingering. ive only gained 10 back from the prednisone and my doc has me weaning off it starting this week. i want to go back on the entocort, it healed my fissure the first time. i am also very anemic, been hospitalized twice because of it. and i decided to take this semester off of school - my third break...
I still get very bloated and have trouble eating enough to gain wait. I am waiting to get the food sensitivity blood test i hope it helps.
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currently on:
prednisone
balsalizide
Humira
venofer
Vitamin D3
Fish Oil
Turmeric
Boswelia
10-15-2014, 01:17 AM   #319
emilyk
 
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Location: Seattle, Washington

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I'm a creative one, 24 years old living in the north west.
I'm trying to be on the forum on a regular basis because I'm alone and in my head alot. At the moment, I'm scheduled to start the humira treatment this week but I'm not one to dwell on my nervous shots stuff, I'm looking to make friends who just understand that life's different than your 20-something year old friends.

I'm into classic/art house/pop culture films.
I'm getting into yoga and meditation.
I'm teaching myself sewing and working on lounge/lingerie and workout clothes.
I read comics, sci-fi and how-to non-fiction.
Message me a quick hello : ]
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10-16-2014, 05:21 AM   #320
jessica22
 
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Location: memphis, Tennessee

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Hi everyone I'm 23 and I'm glad that you made this post 😄.I was diagnosed with colitis at age 6 but after a few years my doctor confirmed that it was crohns.I live a pretty normal life I'm in college taking up nursing, go out with friends but I do have my bad days as well.It's interesting to find people who you can relate because when I was a child it seemed as if I was the only person with this disease but now that I'm older I have came across others my age with crohns as well.We have even become friends so it might seem like there's no one that understands but there is.I look forward to talking with you all
10-16-2014, 05:33 AM   #321
jessica22
 
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It's so great to have found this thread. While I wish that none of you had IBD, it's really nice to know that I'm not alone in all of this.

I got diagnosed at age 20 and I am just about to have my 21st birthday in about 2 weeks! I am meant to be having surgery but my specialist (the absolute legend!) allowed me to hold out until after my trip to the USA.

Work is hard (I work in a very physically and mentally draining field) and the majority of days I'll come home and go straight to sleep.
When I was first diagnosed, my supervisor actually stopped giving me work for a couple of months because I had to turn down two shifts for medical appointments and she saw it as me not being thankful for having the job I have.. (It's also a very competitive field).

As for my family and partner, I am so blessed in every way to have them.

I really just want my energy back so I'm not a grandma, plus so that I don't feel annoying complaining about pain all the time!

Did you all feel that surgery was worth it?

Also sorry for the personal question but for a 20 year old, I'm not feeling very uhmm.. How do you put it nicely.. In the mood? Does anyone else feel the same? I feel so bad for my poor bf! Haha!
I had my surgery at the age of 11 and before that I was home-schooled and always sick and in the hospital but after surgery I started feeling so much better.I was able to graduate with my class and now I'm 23 and in college taking up nursing and I'm healthy enough to have a job so in my opinion it's definitely worth it
11-02-2014, 11:56 PM   #322
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im 23, been living with crohns for 9 years. 4 flare ups and my last one this summer was pretty bad. Im on remicade now and it's amazing. After 1 infusion I felt drastically better.

Its cool to see people my age with this illness. (well not cool, Im not happy about people being sick, but I'm sure you know what I mean..) Whenever I go see my doc I'm surrounded by old people lol.
11-03-2014, 03:05 AM   #323
jessica22
 
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@djious lol I know exactly what you mean.When I was going to my pediatric gastrointerologist I was always the oldest there but now I'm 23 and I'm always the youngest at the doctor so yes it's cool to see that there are others like you and can relate to you more
11-04-2014, 09:31 AM   #324
dgiouz
 
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Im sure everyone feels the same but I just want to point out that we have our whole lives ahead of us and shouldn't let this control our lives or influence our decisions in life.

I never stopped playing sports nor stopped travelling, including cuba, I did get sick cause the food is just horrible quality, but not that bad.. was able to recover with antibiotics..
11-09-2014, 11:00 PM   #325
Moriati
 
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I was diagnosed this year in April, when I was 17 - I'm 18 now, and still have no idea what the future holds with this disease, because they caught it very quickly, and it's a very recent development for me.

- Has IBD affected your educational opportunities and choices?
Luckily, no! The degree I'm doing at the moment is very chill, lots of down time and not much stress at all, a steady workflow throughout the year as opposed to lots of exams at the end of it - this should help with stress levels, certainly. I've had one (and a half) flare ups so far though and it's only the first year of my degree. Who knows what else could happen....

- Has IBD affected your independence from your family?
No. I've still been able to move out of home and to another city successfully, and live a normal life. If I need it, my aunts and my grandmother are always there if things go too wrong away from my mum and dad.

- Has IBD affected your social relationships, dating, or your body image?
Not really for social things and dating, or not YET anyway. I feel like maybe it's a matter of time though, the disease has only been active since this year.
Body image has taken a hit, that's for sure. I don't trust my body anymore, and everytime I have to go to the gastro because my Crohn's symptoms are worsening, I end up having an emotional breakdown afterward because I find it hard sometimes to deal with the fact that my body is broken, and that it's like another step on the road to more pills, injections, surgery, another step away from a normal life.

- Do you feel as if IBD has matured you beyond your age or for kept you from maturing in any way?
It's made me uniquely aware of my own mortality and the fragility of life, that's for sure. I'm acutely aware that I may not always be able to do the things I want to, now.

- How do you think dealing with IBD as a young adult is different from dealing with it as a child or an adult?

If you're a child, I suppose it's like a way of life, like it's always been there for you, so you're more well adjusted. For me it was like BAM completely out of nowhere, and I'm trying to adjust to the fact that this is now going to be a big part of me forever.
11-10-2014, 09:04 AM   #326
Sea_Star
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This has been a very inspiring thread!

I'm currently 25 years old, never had a bf, never been on a date lol (I've always thought life is like teh movies...guy comes to girl Never cared about appearances,etc.) I was diagnosed 4 years ago, and even though I've been pretty benign with my illness, and felt great for 2 years off meds...NOW that I want to go out there and date and LIVE...things are somewhat feeling not right at the moment. I've seen so many GI's, and I'm sticking with one (Mayo Clinic) about 4 hours away..and I wonder, what would a guy think if he knew my doctor is that far away?! lol. Or that I would have to restart taking an immunosuppressant?!
And the kicker is...I felt fantastic before, and I have this thought that I need to feel that way again before I can accept to date. I don't have bathroom probs, just abdominal pains that this time around have sprung up in new places (2nd time in 4 years I've had symptoms...) I feel like I'm waiting to feel 100% before I can LIVE...but reading this, it's humbling to know that hey, life is not perfect like a movie lol....
11-10-2014, 03:00 PM   #327
Sea_Star
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How many of you are over 21 and have yet to go on a date or be in a relationship?

11-13-2014, 02:38 PM   #328
rsilverlining
 
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Hi! I'm 20 years old, living on my own since a little before my diagnosis out in California. I work two jobs, waitressing and editing, and I go to university full-time. I am dating and all of that as well. Weight yo-yos like crazy; 140 lbs naturally, 122 at my lowest low of a flare and 165 after prednisone (that awful nightmare drug, ugh). High, high pain rates for flares, plus nausea and loss of appetite. Using Remicade every six weeks, Norco for bad pain days, CBD/THC tentatively to try and find a healthy dosage.

I am so happy that you're all here, though of course not sick. I go to such ridiculous lengths IRL to hide being sick that I really needed people who were not doctors who knew andcould be talked to. I am exhausted.
12-11-2014, 04:41 PM   #329
Oroms
 
Join Date: Dec 2014
Location: London/Toronto, Ontario

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It's so great to have found this thread. While I wish that none of you had IBD, it's really nice to know that I'm not alone in all of this.

I got diagnosed at age 20 and I am just about to have my 21st birthday in about 2 weeks! I am meant to be having surgery but my specialist (the absolute legend!) allowed me to hold out until after my trip to the USA.

Work is hard (I work in a very physically and mentally draining field) and the majority of days I'll come home and go straight to sleep.
When I was first diagnosed, my supervisor actually stopped giving me work for a couple of months because I had to turn down two shifts for medical appointments and she saw it as me not being thankful for having the job I have.. (It's also a very competitive field).

As for my family and partner, I am so blessed in every way to have them.

I really just want my energy back so I'm not a grandma, plus so that I don't feel annoying complaining about pain all the time!

Did you all feel that surgery was worth it?

Also sorry for the personal question but for a 20 year old, I'm not feeling very uhmm.. How do you put it nicely.. In the mood? Does anyone else feel the same? I feel so bad for my poor bf! Haha!

Hey Lara! I understand your frustration with the fatigue! Not so nice... just make sure your iron levels are good! As for surgery I cannot even tell you how much of a difference it has made in my life. Obviously if the specialist is recommending it then it is probably necessary and I would be excited more than nervous. I attended my first week of university a week after surgery so it doesn't slow you down TOO much but be prepared for a few months of recovery.

As for being in the mood as you put it lol just make sure your boyfriend knows why! Remind him that it's not his fault and you will feel a lot better and more like yourself after the surgery

Hope your trip is/was awesome
12-11-2014, 08:20 PM   #330
FrozenGirl
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Sea_Star , I'm not over 21 but I have never dated anyone or been in a relationship ( other than with my bed

And honestly I'm scared of how and when to disclose this. I mean only my family knows at the moment. Not even close friends know. A lot of lying is involved in keeping it a secret.
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Dx: Ulcerative Colitis, Nov 2013
Currently on:
Mezavant 4.8g
Vitamin D 1000iu
Calcium
Tecta 40mg
Remicade: 600mg, every 4 weeks
Methotrexate: 15 mg (injection)
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