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12-14-2013, 11:52 PM   #31
nogutsnoglory
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Yeah it sounded to good to be true. I use Ile-sorb by Cymed right now but was considering the Diamonds over the gas reduction claim. I tried the Nu-hope gel one which was really good at gelling so I may buy that one next time.
12-14-2013, 11:57 PM   #32
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Yeah it sounded to good to be true. I use Ile-sorb by Cymed right now but was considering the Diamonds over the gas reduction claim. I tried the Nu-hope gel one which was really good at gelling so I may buy that one next time.
Almost all other gelling products are cheaper than the Diamonds (<- the price matches the name! ), but with the Diamonds, I find the output has to be really liquid in order to dissolve the sachet properly or else it stays clumped up in a single spot.

You should be able to get samples. I think I got about 4 saches through this website: http://www.convatecdiamonds.com/ I see now that it links to Ostomy Secrets, so perhaps you need to go through them.
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12-15-2013, 08:17 PM   #33
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VO, I'm looking forward to your vent review. How do they work and do they work?
UnXmas, you are right to be careful about what you eat in the beginning but you should find as time goes on that you can eat more and more variety. Even though the hole in the stoma looks small it does enlarge when bigger bits go thru. Well it does for me anyway.
I find i can eat anything now, just being careful about quantity. Introduce new foods slowly and in small quantities and increase as you find you can tolerate them. so enjoy that xmas dinner, or unxmas dinner.
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12-21-2013, 09:25 AM   #34
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I've been cutting down on fibre-containing foods as I was getting stomach aches. It felt sore whenever something came out of my stoma, which is how it felt before it was healed. As I've said, my stoma seems to be active only for a couple of hours in the evening. Recently, before it became active, my stomach would feel full and bloated and painful, like everything was stuck. Then this discomfort would be relieved once the bag had filled up a bit. This was how it was just after the surgery, and, interestingly, also how my digestive system often was prior to the ileostomy. My bowel movements would be less predictable as to when I needed to go, but often my stomach would get fuller and fuller until finally I was able to go.

I'm not completely certain it was the new foods that have been causing the pain to return, but it seems quite likely. Would it be possible that these foods were just making it harder for things to move through the stoma, even though it didn't go so far as to cause an actual blockage?

Anyway, my new food today has been a handful of grapes. New food, but small quantity, and I'll make sure I don't have too many other fruits or vegies today. (Fruits and veg are the only potential-blockage foods I'm trying, because I crave them. I don't miss wholegrain cereals, I'm happy with the refined, white versions, and nuts and seeds are no big loss. But I'm a little sad I won't get any mince pies or Christmas pudding because of all the dried fruit. )
12-25-2013, 09:20 AM   #35
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I had a really bad day with my stoma. I finished eating - it was safe foods and a very small portion, but the act of eating triggered stomach cramps. Then I started feeling sick too, which I rarely feel. After a few hours the pain was getting unbearable and then suddenly my stoma produce a massive amount of water-consistency liquid. Usually it's porridge consistency and in small amounts. This completely filled the bag and then I just stood over the toilet and what seemed like litres and litres poured out. But once this was over, the pain was relieved instantly.

I've felt fine since then, but this has knocked my confidence a bit. Would these possibly have been symptoms of a blockage? The meal that triggered the pain contained no unsafe foods, but I had been eating some over recent days. Not much, but a couple of small portions of fruit/veg a day, and I'd had a soup that had sweet corn in the day before. I know sweet corn can be a bad food, but it was in a tinned soup so I thought it would be soft. I didn't see any sweet corn in what came out of the stoma.

I think I'm going to go back to square one and stick with just safe foods for a while.

I didn't let a bit of pain interfere with my Christmas Eve though. I found I can be in pain and play games and watch festive tv at the same time. Didn't dare attempt any more eating, but have eaten today and so far, so good.
12-27-2013, 08:17 AM   #36
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Hope you're feeling better now.ive been trying to stick to safe foods as I'm only 6 weeks post op.my husband cooked Xmas dinner and I thought I would try some well cooked carrots,but unfortunately he couldn't be bothered to peel the carrots before he cooked them so I spent Boxing Day morning pulling strings of carrot skin out of my poor mr blob (as my kids call him!) thank god it didn't cause a blockage!
12-27-2013, 02:24 PM   #37
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Thanks. I also had well-cooked carrots (without skin luckily!). I've been getting awful stomach cramps every time I eat, and very watery stoma output - much more than usual - today and yesterday, so even though I'm sticking to safe foods just in case, I think this might not be a stoma issue so much as a my-digestive-system-doesn't-function-well issue.
12-27-2013, 03:01 PM   #38
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How are you guys on hummus? I love that stuff but always had pain before my ostomy from it but today I caved and tried it. I hope I'm not setting myself up for any weekend problems.
12-27-2013, 03:04 PM   #39
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I haven't had houmous since my ileostomy, but would have thought it would be ok. It's usually smooth isn't it? Though you can get some weird flavours. Plain houmous I was always fine with before my ostomy though.
12-27-2013, 03:09 PM   #40
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Yes I always opt for smooth and plain but even so chickpea has fiber and somehow it always hurts me.
12-27-2013, 03:27 PM   #41
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How are you guys on hummus? I love that stuff but always had pain before my ostomy from it but today I caved and tried it. I hope I'm not setting myself up for any weekend problems.
We make our own hummus and love it. No problems at all with hummus (or beans/legumes) in general since my ileostomy.

12-27-2013, 03:48 PM   #42
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Hummus sits well with me.
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12-27-2013, 04:47 PM   #43
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Are you guys straining it or just avoiding the chickpea peel?
12-27-2013, 04:49 PM   #44
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Are you guys straining it or just avoiding the chickpea peel?
We have a blendtec blender, so peels aren't an issue. But having said that, I eat whole chickpeas and don't avoid the peels as they've never been problematic. If skins are a problem, a good blender will help.
12-28-2013, 06:18 AM   #45
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So it turns out I did have a partial blockage. The out-of-hours doctor (so not a specialist) reckoned so anyway. Apparently my symptoms were absolutely typical - including the sudden gushing watery diarrhoea. Who would have thought that a blockage can actually result in more coming out? I guess it's like "impaction and overflow" diarrhoea, which I used to get pre-stoma. The doctor was basing his diagnosis on my account of my symptoms, so he wasn't 100% certain, but he reckons the first day the blockage eventually cleared on it's own, and he said that often you feel very sore or sick and get pain for several days afterwards, hence why I've still been hurting.

He also told me some ways to help clear a blockage on your own, and I've looked online and found a few other techniques too: massaging around the stoma; placing your little finger inside the stoma (carefully! and cut your nail off first!); drink a hot drink (which stimulates the intestine to move and push things out); change your body position and draw you knees up to your chest; take a hot bath or place a hot water bottle on your stomach (heat relaxes the abdominal muscles); take the bag off as the stoma swells a lot when pushing a blockage out.

Of course it's better not to get a blockage in the first place. So no more fibre for me! My fruit intake will consist solely of mushed banana from now on.
12-28-2013, 09:46 AM   #46
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Glad it resolved. Im doing a lot of juices to get my fruit and veg in and trying safer options like apple sauce, bananas and pumpkin or sweet potato. These are all mainly soluble fiber and should be safe.
12-28-2013, 01:57 PM   #47
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Glad it resolved. Im doing a lot of juices to get my fruit and veg in and trying safer options like apple sauce, bananas and pumpkin or sweet potato. These are all mainly soluble fiber and should be safe.
Thanks. I think juices will be the way for me to go too. I hadn't thought of pumpkin - something else for me to try.

I do feel pretty stupid now for how proud I was that I was eating veg with no problems lol. I eat such small portions and small mouthfuls too. I can't imagine the damage I could have done if I had a big appetite or took mouthfuls the size most people do! But I had bad cramps after lunch today. The doctor seemed pretty sure the pains are just the leftover effect of a resolved blockage but it's been four days now. If they don't stop soon I'm going to start wondering if it's something else, something on-going.
12-28-2013, 02:11 PM   #48
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I'm glad you've gotten over it. I'm sure it's frustrating to go through that, but perhaps with some experimentation, you'll find a happy middle-ground.
12-29-2013, 09:04 AM   #49
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I've been looking online at the tinned pasta in tomato sauces you can get - spaghetti hoops, spaghetti with sausages, etc. Apparently they count as one of your "five-a-day" fruit and veg portions. They are so soft, I think they'll be a good substitute for vegetables.
01-01-2014, 10:39 AM   #50
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Well, the episodes of cramping after eating/when the stoma was active got less painful and occurred less often over the past several days. No pain at all for a couple of days now. So I guess it was a blockage. Now I'm not eating any of the risky foods and my output is super-smooth and very thick.

But I guess that means the end for this thread as it's the end of my experimenting. But if anyone has any more good ideas for fruit and veg that can't cause blockages - or any alternatives to whole-grains, nuts, seeds, etc. - I'd be interested in hearing them.

One of the foods I've been warned to never attempt is coconut. But I've heard you can get coconut milk, would that cause a similar problem? I get confused sometimes about how much difference the form a food comes in makes. I'll miss Bounty bars.

Another great food I've found (a warning for any anti-junk food healthy eaters: you won't want to hear about it! ) is marshmallow spread. Jars of spreadable marshmallow that you can put in sandwiches and on toast. I haven't eaten marshmallows for so long I wasn't even sure that I liked them, I remembered the texture as being too much like polystyrene. But this spread is more like glue - which to be honest is a little off-putting, since it's white and actually really does look like glue. But it tastes nice, kind of like vanilla ice cream. Very sweet. If what I've read in the food guides for people with ileostomies is true, I'm guessing this marshmallow spread may be one reason that my output is so thick now.
01-01-2014, 10:47 AM   #51
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But if anyone has any more good ideas for fruit and veg that can't cause blockages - or any alternatives to whole-grains, nuts, seeds, etc. - I'd be interested in hearing them.

One of the foods I've been warned to never attempt is coconut. But I've heard you can get coconut milk, would that cause a similar problem? I get confused sometimes about how much difference the form a food comes in makes. I'll miss Bounty bars.
Are you able to speak with a dietitian? They'llv likely be able to offer lots of substitutions.

In general, the more processed the food, the easier to pass through. So cooked or juice veggies, nut/seed butters, white rice instead of Brown, "smooth" bread vs. the type where you see the actual grains in it (which simply don't digest). If you don't mind v8 vegetable juice, it's a great way to get nutrition if you can't eat more veg. Canned fruit works too and is quite soft, same with applesauce.

I've only been warned against whole coconut (like the shreds), not coconut milk, water, oil. I've had macaroons and didn't notice any bits when emptying my pouch, but if you are prone to blockages, you might want to avoid the shredded type.


01-01-2014, 03:42 PM   #52
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Thanks for the suggestions. I've already switched to white bread rather than wholegrain. I've been wondering if avocados are as safe as I thought they were they've not given me any problems, but I've noticed they sometimes contain stringy bits that pass through the ileostomy undigested.

I did see a dietician when I was in hospital, but only to talk to me about the TPN I was getting at the time. My stoma nurse gave me some very general advice about foods which cause blockages, but she didn't seem particularly concerned about it and the impression I got from her was that most people manage to eat pretty much what they like (maybe she just doesn't want to put people off eating fruit and veg?!).
01-01-2014, 06:11 PM   #53
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Thanks for the suggestions. I've already switched to white bread rather than wholegrain. I've been wondering if avocados are as safe as I thought they were they've not given me any problems, but I've noticed they sometimes contain stringy bits that pass through the ileostomy undigested.

I did see a dietician when I was in hospital, but only to talk to me about the TPN I was getting at the time. My stoma nurse gave me some very general advice about foods which cause blockages, but she didn't seem particularly concerned about it and the impression I got from her was that most people manage to eat pretty much what they like (maybe she just doesn't want to put people off eating fruit and veg?!).
If you can find guacamole pre-made on containers, you won't find those strings in it. Or else, just cut up your avocado shop you can remove problem pieces.

Yeah, the hospital advice is mostly for immediately after surgery, but if you can find a dietitian now, they could likely help. See if any offer a free first time consultation and decide if it's worth continuing.



01-02-2014, 12:04 AM   #54
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Avocado is mainly soluble fiber which is the safer less scrapy kind but I like VO's idea of prepared or of course cut or strain your own. I think within moderation it should be ok but don't go eating 20 containers of guac.
01-02-2014, 09:02 AM   #55
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If you can find guacamole pre-made on containers, you won't find those strings in it. Or else, just cut up your avocado shop you can remove problem pieces.

Yeah, the hospital advice is mostly for immediately after surgery, but if you can find a dietitian now, they could likely help. See if any offer a free first time consultation and decide if it's worth continuing.
I can see a dietician on the NHS, so no free consultations needed. My GP is always trying to refer me, but I'd seen a few in the past - not about the ileostomy, obviously, but about what I should be eating to gain weight and manage my various digestive symptoms - and they weren't helpful, so I'm not sure it will be worth seeing another one. When they were trying to help when I was getting diarrhoea and feeling too full, their advice basically involved trial and error - e.g. try eating more fibre. That didn't work. Try eating less fibre! - and I can err perfectly well on my own.

I figured seeing a dietician about eating with the ileostomy will most likely involve them saying - try this food. It causes pain. Try not eating that food.
01-02-2014, 09:16 AM   #56
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I can see a dietician on the NHS, so no free consultations needed. My GP is always trying to refer me, but I'd seen a few in the past - not about the ileostomy, obviously, but about what I should be eating to gain weight and manage my various digestive symptoms - and they weren't helpful, so I'm not sure it will be worth seeing another one. When they were trying to help when I was getting diarrhoea and feeling too full, their advice basically involved trial and error - e.g. try eating more fibre. That didn't work. Try eating less fibre! - and I can err perfectly well on my own.

I figured seeing a dietician about eating with the ileostomy will most likely involve them saying - try this food. It causes pain. Try not eating that food.
I can totally relate. I don't think they'll be super-helpful with ostomy-specific issues, but they may be able to give substitutions for foods that you know don't affect you negatively (i.e. low fiber). It's up to you or you can just use the experience of other ostomates and do your own trial and error
01-02-2014, 05:17 PM   #57
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Honestly I didn't find most nutritionists helpful for general crohn's issues so I'd be really skeptical of them knowing much about Ostomies.

I think your own plus others experiences are the way to go.
01-02-2014, 06:20 PM   #58
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There are some good nutritionists in hospitals that are helpful with ostomy issues. Well, at least there are some in my area.
01-19-2014, 07:23 PM   #59
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Well, I've joked about it long enough, but today I really did accidentally swallow a piece of gum. In a few hours I should be able to tell you if it comes out in one piece or becomes a reenactment of what happens when a cat swallows string.

Or maybe Bob will start blowing bubbles. Hahaha!
01-19-2014, 09:43 PM   #60
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He looks like he is trying to blow bubbles. Little sucker keeps puckering up.
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