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Crohn's Disease Forum » Surgery » Stoma Subforum » Trying to heal raw skin


11-21-2013, 03:20 PM   #1
nogutsnoglory
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Trying to heal raw skin

I have tried everything to get my raw burning skin in shape. I put zinc oxide diaper rash cream under my Eakin ring. I know the wafer doesn't adhere well with creams but I'm hoping the Eakin ring adheres to it and the rest shouldn't interfere with the seal since I put it just around the stoma and wiped excess off.

Any tips? I tried duo derm, barrier & stoma powder. Maybe next time I'll just use stoma paste around the entire stoma.
11-21-2013, 03:39 PM   #2
PsychoJane
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When I have irritation around my stoma, this is when I get the paste out as otherwise I don't use it. I apply it right on my flange then it fits to my stoma and hug pretty well, then I change my flange after 3-4 days till it gets better.

Have you tried doing the layer trick? Put some karaya powder, spray some skin prep, then another layer of karaya powder then another shot of spray then the flange? It does the trick for me usually.
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11-21-2013, 04:18 PM   #3
nogutsnoglory
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I have done the layering with stoma powder but not karaya specifically.

Can I just put the stoma paste around the stoma, squeeze an eakin ring over and then place the flange?

I have an oval stoma so it gets complicated with the flange and the Eakin seal becomes necessary but can't be shaped till its on me.
11-21-2013, 04:37 PM   #4
PsychoJane
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I guess you could try using both. I don't know if it will end up loosening though.
11-21-2013, 08:20 PM   #5
ce1210
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try hemp oil?
11-22-2013, 01:59 AM   #6
nogutsnoglory
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Wouldn't that make wafer adherence a big issue?
11-22-2013, 12:14 PM   #7
Crohn'sFor Life
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When you take off your pouch, clean everything with a non-moisturizing soap and water. Dry well. Then apply your wafer, pouch, etc as normal.

The key is to stop whatever is causing the problem...most likely a leak...waste on your skin. As long as you can protect your skin from whatever was causing the irritation, your skin should heal by itself in 2-3 days.
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11-22-2013, 12:32 PM   #8
nogutsnoglory
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It's been like 2 weeks of really raw skin. I think a bit gets under the seal and I guess even though it's like a teaspoon worth of stool it manages to really do damage to the skin.
11-22-2013, 11:59 PM   #9
Jeff D.
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Right now I have really raw skin but it's not really near the stoma as rather under the tape. The best thing that helps me is to let it air dry as much as possible before putting more tape over it. The skin dries out a bit and everything heals rather quickly. Good luck
11-23-2013, 12:18 AM   #10
nogutsnoglory
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Thanks I try to give the area a nice bath and air out as much as possible before putting anything over.

This probably sounds nuts but I think outside of the box. I even thought to leave it off for a few hours and just put a chair in my bathtub so that any excrement would just go in the tub while I'm on the phone or reading something. Sorry if it sounds really gross but I figured it would give it lots of breathing time but implementing seems difficult.
11-23-2013, 01:22 AM   #11
Nyx
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Thanks I try to give the area a nice bath and air out as much as possible before putting anything over.

This probably sounds nuts but I think outside of the box. I even thought to leave it off for a few hours and just put a chair in my bathtub so that any excrement would just go in the tub while I'm on the phone or reading something. Sorry if it sounds really gross but I figured it would give it lots of breathing time but implementing seems difficult.
That's actually not as gross as you'd think. I remember a post on here (I can't remember who posted it for the life of me now though), where the person just sat in a warm tub with a plastic disposable cup to catch all the poop, and left her stoma in the warm water to heal the skin for a few hours. If I remember correctly, it worked wonders for her skin.
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11-23-2013, 04:13 AM   #12
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I actually change my pouch while sitting on a plastic stool in my tub. My hand held shower hose makes clean-up real easy.
11-23-2013, 08:04 PM   #13
annawato
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Mercurachrome is great for weepy skin. Really dries it out. Just use sparingly.
the bathtub idea sounds like its worth trying - not a silly idea at all.
Paste directly on the sore area really stings but only for a couple of minutes - the paste is meant to help healing as well as acting as a barrier.
Mind you I am full of ideas about what to do and I still have raw areas around my stoma. Changing everyday is the only thing that really helps me, but I get slack and leave it for two days most times so the skin doesn't heal. I think my stoma is like toothy's, really wet so that it eats away at the paste really quickly.
A nice warm (pooey??) bath is a great idea and then let the air get to it for a while. Just make sure any output isn't running on to that sore area.
Good luck. Keep me posted with any other great ideas.
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11-23-2013, 09:42 PM   #14
nogutsnoglory
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Anna, while it's annoying to have to change the barrier daily, it's good to know that can really help expedite healing. I may need to go that route.

I am thinking of trying the tub idea but my stoma tends to dribble and I don't want to be wiping it off my thigh and genitals or turning the handheld on every 2 min. Maybe I can somehow angle myself so it hits the floor. I guess I can try it before my next shower without the pouch on. I am assuming being out in the air too long isn't going to hurt it right? Wouldn't the intestine be used to a warm moist environment?
11-24-2013, 03:33 AM   #15
annawato
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The intestine is used to a warm moist environment but the surrounding skin isn't. the stoma won't be hurt by being in the air for awhile and it may help your skin.
Try putting a bunch of toilet paper under your stoma to catch any dribbles. Keep some torn off pieces about 12 squares long next to you and somewhere to dump the dirty ones. This is what I do everytime I change. I spend more time catching the dribbles, squirts, spurts, explosions than I do everything else! But I've got a lot better at doing it now.
Have fun and think of the good its doing your stoma. Just make sure you're comfy and have a good book to entertain yourself with something other than what is coming out of your self.
11-24-2013, 04:48 PM   #16
nogutsnoglory
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I am currently allowing my stoma to breathe and let the skin dry up a bit.

1. I placed a step stool in my tub.

2. I put an absorbable crib pad on the stool.

3. Removed the pouch and cleaned the skin.

4. Have plenty of wet wipes next to me.

5. Sit back and wonder why the hell we have to do such nutty things.

My stoma was being very uncooperative at first. I didn't eat for hours and it was fine but the minute i let him out he decided to make his presence known. Now he is sitting here quietly which is why I can type. This is pretty nasty but hope it helps my skin.
11-24-2013, 11:03 PM   #17
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I always have problems with skin irritations. What brand appliance are you using? I have sensitive skin and do well with cymed appliances. When I do get an irritation the patch can be cut around the bad skin. I then apply calmoseptine to the rash. It helps alot. Good Luck to you!
11-25-2013, 12:04 AM   #18
nogutsnoglory
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I am still waffling between samples but like coloplast the most. I would try the cymed but I like the 2 piece ones that click and not the sticky ones you can't easily move.
11-25-2013, 01:30 AM   #19
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Actually I too have been having a problem with raw skin around my stoma. The problem comes and goes. I think we all have to deal with leaks every now and then.

I use Cymed one piece pouches and am very happy with them.
11-25-2013, 09:41 AM   #20
BowelMeOver
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I know the frustration and sense of urgency you feel in trying to heal the raw skin, and hope the steps you've tried so far have alleviated some of the pain. I also hope you can combat the reasons for those leaks you are having, and I'd like to offer some ideas that may help, if you haven't already tried them.

Does Coloplast offer oval shaped flanges? I know when we had the stoma bridge, it made our stoma appear oval shaped as well, and gosh what a pain that was to cut the wafer to fit. We never got so far as ordering different flanges though, as Coloplast advised that once the bridge was out, the stoma will most likely revert to a more rounded shape. Perhaps they can send you samples to try?

On using the Eakin seal, instead of trying to mold it around the stoma directly on the skin, try pressing it on to the back end of the flange you are going to use, and use the paper that it came wrapped in to flatten it out/shape it, so your fingers don't get all sticky. Leave enough of the ring overlapping the hole in the flange, and roll it up and over so some of the ring is also on the front of the flange. This will give your stoma an extra secure seal which will help prevent output from sneaking under.

One thing we forgot to do the first few weeks was to make sure the adhesive backing on the area directly around the stoma opening was applied firmly to the skin. For some reason, we thought the only adhesive that mattered was the outer ring area. Duh! One trick we learned here was to get an empty toilet paper roll, stuff a wad of toilet paper into it, and once you apply the flange, place that toilet paper roll directly around the stoma and press in for a bit. It is the perfect size to apply pressure to the adhesive part without hurting your stoma, and the tissue inside will catch any activity.

I'm not sure how long you go between changes, but what is the condition of your flange on change day? Are you noticing any areas that are breaking down? Some people have high output, or output that tends to break down the barrier after a few days. Are you using the extended wear barriers from Coloplast? They are made for just such issues. Also, you know that little trick we have in taking the bag off on day 2, and applying a ring directly around the stoma on the front facing part of the stoma? It is working so well for us that we are now doing it on day 3, and doing a complete change on day 6. We tend to think of it as preventative maintenance, and hopefully it can work for you as well.

I wish you much success in getting this under control!
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11-27-2013, 11:37 PM   #21
BowelMeOver
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Just checking in on you, nogutsnoglory. How's the skin been lately?
11-28-2013, 09:49 PM   #22
nogutsnoglory
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Great tips bowelmeover, thank you! I'm sorry that I didn't respond sooner but been having a bad couple of days. They aren't so much skin related but a host of other issues related to my Crohn's.

I really like your idea of putting the ring under the barrier. I think that will really help me to prevent leakage. Are you putting paste on day two or three? I am afraid to put paste too close to the stoma just in case it would block the hole.

The toilet paper roll is a good idea I was considering purchasing stomaplex it's basically the same concept but firm and bendable.

My skin is getting a little better day by day and hopefully I will get this under control shortly.
11-29-2013, 10:46 PM   #23
BowelMeOver
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I'm sorry to hear you are having other issues. Blah!
Hopefully the skin will heal soon and you'll have one less thing to worry over!

I think I may have jinxed my husband by posting in another thread that we haven't really had many issues at all.
He went almost 2 and a half months without a single gas pain. Yet, last week he did that contrast enema thingy
and he has been suffering with some incredible gas pains.

I'm off to search for helpful hints to find some relief for him.
I hope you find relief soon as well!
12-09-2013, 06:39 AM   #24
annawato
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Just a thought for when you want to air your stoma - you could tape a plastic bag beneath and put an old towel under that to catch anything that doesn't go in the bag....????
12-09-2013, 08:19 AM   #25
nogutsnoglory
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I saw a video of a girl who did something similar except she tucked the bag and towel in her jeans. Problem is mine dribbles a lot and a towel right below won't give the skin air.
12-10-2013, 04:25 PM   #26
grt73
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Just been reading about your issues with burning skin, I seem to find it goes in phases. Dam stoma seems to have a mind of its own and goes thru periods of misbehaving. I have found convatech orahesive powder calms the skin down pretty quickly. Using that and a barrier wipe before applying paste all round the stoma has worked a treat for me in the last few weeks. It really stops any leaks having contact with your skin. How often do you change as well? Good luck
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