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Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » New here: Needing some fistula support. Just had my 5th fistula repair and 2nd fistula plug placement.



11-22-2013, 06:37 PM   #1
amaiello
 
Join Date: Nov 2013
New here: Needing some fistula support. Just had my 5th fistula repair and 2nd fistula plug placement.

I've been looking for an LGBT Crohns forum FOREVER. Finally somewhere I can talk to other gays about issues…yesss. So a little background about myself. I was diagnosed with UC in 2004/rediagnosed with Crohns last summer. I had my colon removed in 2005 and eventually Jpouch surgery and after that multiple surgeries for recurrent fistulas (flap repair, graciloplasty, plugs, setons, etc) Anyway…I have been on Humira for a little over a year which closed the fistula I've had for about 3 years considerably but I decided to do something less "invasive" and wanted to get it closed up for good with another plug. I feel like my progress from the medicine has been completely erased as I am having more drainage (Which I'm told is normal for right now) than I can handle. I won't know if the plug is still in until my follow up with my surgeon tuesday but I haven't seen anything come out. Anyone have experience with the plug working/not working?
11-22-2013, 08:42 PM   #2
lgpcarter
Senior Member
 
Join Date: Jun 2013
Location: Canada

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Sorry to hear about your fistula troubles. I have them too and they are miserable. Soaking in a sitz bath right now, actually!

Just wanted to say that I know there aren't many people in the forums who have had experience with the plugs, so you might get more responses if you also post in the fistula sub forum.
__________________
Diagnosed in with Crohn's in large and small bowel in 2000.

Seton placement (2) and fistulotomy December 2013. Setons removed July 2014.

Laparoscopic Right Hemicolectomy July 2016, 25 cms removed

Current meds: Entyvio every 8 weeks, Imuran 50 mg, Flagyl and Cipro 500 mg twice a day
Previously: Remicade, Humira, Simponi, Pentasa, Sulphasalazine, Entocort, Stelara, Methotrexate, Prednisone
11-22-2013, 09:01 PM   #3
nogutsnoglory
Moderator
 
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Join Date: Sep 2009
Location: New York

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Cross copied from gay forum for anyone with info on fistula plugs for this new user.
11-22-2013, 10:22 PM   #4
steph0823
 
Join Date: Mar 2013
Location: cape coral, Florida
I had plug placement 2 weeks ago today. I'm having more drainage then before too and my dr said its normal. I was worried about the plug coming out too and was told that I would feel it if it came out.
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Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » New here: Needing some fistula support. Just had my 5th fistula repair and 2nd fistula plug placement.
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