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New here: Needing some fistula support. Just had my 5th fistula repair and 2nd fistula plug placement.

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amaiello

I've been looking for an LGBT Crohns forum FOREVER. Finally somewhere I can talk to other gays about issues…yesss. So a little background about myself. I was diagnosed with UC in 2004/rediagnosed with Crohns last summer. I had my colon removed in 2005 and eventually Jpouch surgery and after that multiple surgeries for recurrent fistulas (flap repair, graciloplasty, plugs, setons, etc) Anyway…I have been on Humira for a little over a year which closed the fistula I've had for about 3 years considerably but I decided to do something less "invasive" and wanted to get it closed up for good with another plug. I feel like my progress from the medicine has been completely erased as I am having more drainage (Which I'm told is normal for right now) than I can handle. I won't know if the plug is still in until my follow up with my surgeon tuesday but I haven't seen anything come out. Anyone have experience with the plug working/not working?
 
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lgpcarter

Location
Canada
Sorry to hear about your fistula troubles. I have them too and they are miserable. Soaking in a sitz bath right now, actually!

Just wanted to say that I know there aren't many people in the forums who have had experience with the plugs, so you might get more responses if you also post in the fistula sub forum.
 
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steph0823

I had plug placement 2 weeks ago today. I'm having more drainage then before too and my dr said its normal. I was worried about the plug coming out too and was told that I would feel it if it came out.
 
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