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Crohn's Disease Forum » Support Forum » Having a bad time!

12-02-2013, 02:48 PM   #1
Astra's Avatar
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

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Having a bad time!

Hiya everyone
I've not been on for ages, I've been so ill!
I was told to come off Humira, it wasn't working, and I've been referred for surgery, waiting for an appt and an MRI
I was told I've got high blood pressure, it was alternating between 175/122 and 168/110, so the GP said it could be a side effect of the Humira and we'll review it this Friday, been off Humira one month by then.
Last Monday I had the most horrendous migraine for 3 days and got sent home from work, went to a different GP, he prescribed Ramipril for the high blood pressure.
Two doses and 2 days later I had an allergic reaction to Ramipril, everything swelled up, tongue, lips but most of all my joints, fingers, toes, everything!
It kicked off the Crohns, big style!
I can't even wipe my bum!
I can't hold a knife and fork!
Been back to the GP and he called it Angioedema and it will settle down in a few weeks! Can't have steroids cos surgery is on the cards.
He's signed me off work for a week, never ever felt pain like this before, feel like an old woman, can't walk properly.
Thanks for the moan, wish me luck, gotta go and rest, again!


Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery!/profile.p...4208290&ref=ts

No-one should make you feel inferior without your consent!

12-02-2013, 03:06 PM   #2
Senior Member
YJ120's Avatar
Join Date: Apr 2011
Location: Burnley, United Kingdom
Hey Astra,

You've helped me before, so my chance to return the favour! Really hope you're ok, sounds like you're having a tough time, I really hope it gets better for you soon.

Sorry I can't help with much else, but send my support I hope you get your MRI soon and then your surgery.

Praying that you're ok for Christmas.

Yvette xx
Hospitalised & Diagnosed Nov 10 - Crohns Disease.
Started on Predisone after discharge from hospital for a few months.
Been on Mesalazine 4g a day since. Tried Azathioprine & 6MP, didn't work. Been on Budesonide in between due to flares.

MRI showed stricture on 24/09/13. TI resection done on 11/12/13
More tests colonoscopy on 28/3/14
12-02-2013, 03:10 PM   #3
Astra's Avatar
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

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Aw cheers Yvette, I'll be ok, gotta be careful what I eat tho, I'm not on any meds, don't need a stay in hospital over the festivities!
Hope you're doing ok? xxx
12-02-2013, 03:16 PM   #4
Jennifer's Avatar
I'm sorry you still aren't doing well Astra. Also sorry to hear about the high blood pressure and reaction to the medication. You deserve a break already. Let us know when you're getting your MRI and surgery. I hope it will put you into remission.
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
12-02-2013, 03:18 PM   #5
Astra's Avatar
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

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Thanks Jennifer, I will xxx
12-02-2013, 03:44 PM   #6
Senior Member
YJ120's Avatar
Join Date: Apr 2011
Location: Burnley, United Kingdom
Gosh no you don't want to be in hospital over Christmas! Good idea to be careful with foods!

I'm ok thanks for asking. An MRI recently found a stricture and I'm 'pencilled in' for surgery on 11th Dec, hoping I've recovered to enjoy Xmas a little bit!
12-02-2013, 04:32 PM   #7
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Cat-a-Tonic's Avatar
Join Date: May 2010
Location: Madison, Wisconsin

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Aww Joan, that's awful! Poor thing, hopefully this reaction goes away quickly. Sending you a big hug and hoping that things get much better really soon!
12-04-2013, 03:47 PM   #8
Senior Member
carrollco's Avatar
Join Date: Dec 2010
Location: Grass Valley, California

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I am so sorry you are going through this so I am sending healing thoughts your way.

Louann Carroll
Crohn's survivor and advocate
Trying the natural method that's not working so well right now. I DO NOT recommend this to anyone.
First diagnosed 12/4/10
Humira 4/7/11 and lovin' it

Previous Meds:

Methotrexate--had kidney/liver damage
Lialda--allergic to aspirin--but didn't know until my Crohn's got much worse.
Prednisone--only when I have to!
12-07-2013, 12:52 PM   #9
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CeeCeeGo's Avatar
Join Date: Oct 2012
Location: Wirral, UK

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Hi Joan
Haven't been on for a while. Sorry to hear that you have been so poorly.
I hope you manage to have some time off and try to relax during the festive period.
Take care and lots of hugs

DX - June 2012 with mild/moderate Crohns. In July 2012 bowel perforated unexpectedly and needed emergency surgery.
Current meds/supplements - Budesonide (reducing dose over 3 months), B12 injections (every 10 wks), Vit D tabs 800iu x daily, Ferrous Sulphate 200mg every day, Folic Acid once a week
Previous meds - Allergic to Azathioprine, 6MP, Pentasa & Asacol, Methotrexate injections (didn't work). Stopped Humira after 2 years due to ineffectiveness.
12-08-2013, 02:15 PM   #10
Senior Member
Grumbletum's Avatar
Join Date: Dec 2010
Location: Western Isles, United Kingdom

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Really sorry to hear this, Joan. Things sound bad enough without a med reaction to add to the mix :-( Hang in there and hope you can get a trouble free Christmas xxx
Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
Helen x
12-08-2013, 05:19 PM   #11
Cross-stitch gal
Cross-stitch gal's Avatar
Join Date: Dec 2011
Location: Vancouver, Washington

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Just wanted to let ya know I'm here for ya.
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday

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