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Crohn's Disease Forum » Support Forum » Having a bad time!


12-02-2013, 02:48 PM   #1
Astra
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Having a bad time!

Hiya everyone
I've not been on for ages, I've been so ill!
Summary
I was told to come off Humira, it wasn't working, and I've been referred for surgery, waiting for an appt and an MRI
I was told I've got high blood pressure, it was alternating between 175/122 and 168/110, so the GP said it could be a side effect of the Humira and we'll review it this Friday, been off Humira one month by then.
Last Monday I had the most horrendous migraine for 3 days and got sent home from work, went to a different GP, he prescribed Ramipril for the high blood pressure.
Two doses and 2 days later I had an allergic reaction to Ramipril, everything swelled up, tongue, lips but most of all my joints, fingers, toes, everything!
It kicked off the Crohns, big style!
I can't even wipe my bum!
I can't hold a knife and fork!
Been back to the GP and he called it Angioedema and it will settle down in a few weeks! Can't have steroids cos surgery is on the cards.
He's signed me off work for a week, never ever felt pain like this before, feel like an old woman, can't walk properly.
Thanks for the moan, wish me luck, gotta go and rest, again!
__________________


Joan

Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




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12-02-2013, 03:06 PM   #2
YJ120
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Hey Astra,

You've helped me before, so my chance to return the favour! Really hope you're ok, sounds like you're having a tough time, I really hope it gets better for you soon.

Sorry I can't help with much else, but send my support I hope you get your MRI soon and then your surgery.

Praying that you're ok for Christmas.

Yvette xx
__________________
Hospitalised & Diagnosed Nov 10 - Crohns Disease.
Started on Predisone after discharge from hospital for a few months.
Been on Mesalazine 4g a day since. Tried Azathioprine & 6MP, didn't work. Been on Budesonide in between due to flares.

MRI showed stricture on 24/09/13. TI resection done on 11/12/13
More tests colonoscopy on 28/3/14
12-02-2013, 03:10 PM   #3
Astra
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Aw cheers Yvette, I'll be ok, gotta be careful what I eat tho, I'm not on any meds, don't need a stay in hospital over the festivities!
Hope you're doing ok? xxx
12-02-2013, 03:16 PM   #4
Jennifer
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I'm sorry you still aren't doing well Astra. Also sorry to hear about the high blood pressure and reaction to the medication. You deserve a break already. Let us know when you're getting your MRI and surgery. I hope it will put you into remission.
__________________
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
12-02-2013, 03:18 PM   #5
Astra
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Thanks Jennifer, I will xxx
12-02-2013, 03:44 PM   #6
YJ120
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Gosh no you don't want to be in hospital over Christmas! Good idea to be careful with foods!

I'm ok thanks for asking. An MRI recently found a stricture and I'm 'pencilled in' for surgery on 11th Dec, hoping I've recovered to enjoy Xmas a little bit!
12-02-2013, 04:32 PM   #7
Cat-a-Tonic
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Aww Joan, that's awful! Poor thing, hopefully this reaction goes away quickly. Sending you a big hug and hoping that things get much better really soon!
12-04-2013, 03:47 PM   #8
carrollco
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I am so sorry you are going through this so I am sending healing thoughts your way.

Louann Carroll
www.louanncarroll.com
Crohn's survivor and advocate
Trying the natural method that's not working so well right now. I DO NOT recommend this to anyone.
__________________
Louann
First diagnosed 12/4/10
Humira 4/7/11 and lovin' it


Previous Meds:

Methotrexate--had kidney/liver damage
Lialda--allergic to aspirin--but didn't know until my Crohn's got much worse.
Prednisone--only when I have to!
12-07-2013, 12:52 PM   #9
CeeCeeGo
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Hi Joan
Haven't been on for a while. Sorry to hear that you have been so poorly.
I hope you manage to have some time off and try to relax during the festive period.
Take care and lots of hugs
Carol
xx
__________________
Carol

DX - June 2012 with mild/moderate Crohns. In July 2012 bowel perforated unexpectedly and needed emergency surgery.
Current meds/supplements - Budesonide (reducing dose over 3 months), B12 injections (every 10 wks), Vit D tabs 800iu x daily, Ferrous Sulphate 200mg every day, Folic Acid once a week
Previous meds - Allergic to Azathioprine, 6MP, Pentasa & Asacol, Methotrexate injections (didn't work). Stopped Humira after 2 years due to ineffectiveness.
12-08-2013, 02:15 PM   #10
Grumbletum
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Really sorry to hear this, Joan. Things sound bad enough without a med reaction to add to the mix :-( Hang in there and hope you can get a trouble free Christmas xxx
__________________
Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
Helen x
12-08-2013, 05:19 PM   #11
Cross-stitch gal
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Just wanted to let ya know I'm here for ya.
__________________
Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday, Canasa Suppositories (when needed) 1000mg 1xday

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


UP Support Group http://www.crohnsforum.com/showthread.php?t=68350
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