- Location
- Lake Jackson, TX
Savannah was weaned off of Entocort a month or so ago. First couple of weeks were good and had no doubt it was the right thing to do after 2 years.. Maybe not!
She started having pretty regular episodes of pain and general not feeling well Nov 22 we seen her GI Nov 25. He ordered the typical labs and a Calprotectin(?).
Her hemocrit, hemoglobin,Mean Cell Hemoglobin, red blood cell, all came back low or just barely normal on the low range.
She finally got to hurting last night bad enough to comply with the stool sample she is 11 and is not the best patient. Her stool was not formed and was soft but bloody, fresh red blood. In the past all the blood was just microscopic.
Have a call into her doc and sent him an email.
Savannah's dad is completely freaked and wants to take off work an take her to the ER. I got Savannah up for school this morning and she didn't say a word about feeling bad or pain so she is at school. I told him I have taking the time to read an learn about this disease and people that have it sometimes bleed but they don't panic.
Oh and every couple of months her diagnoses changes right now we are at Crohns Colitis. I just told the doc I don't care what you call it just keep her healthy!
Right now she is only on Pentasa 1000mg in the am and the pm. Nexium and Amitrypitiline.
Thanks for letting me vent! Can't talk to anyone else about it.
She started having pretty regular episodes of pain and general not feeling well Nov 22 we seen her GI Nov 25. He ordered the typical labs and a Calprotectin(?).
Her hemocrit, hemoglobin,Mean Cell Hemoglobin, red blood cell, all came back low or just barely normal on the low range.
She finally got to hurting last night bad enough to comply with the stool sample she is 11 and is not the best patient. Her stool was not formed and was soft but bloody, fresh red blood. In the past all the blood was just microscopic.
Have a call into her doc and sent him an email.
Savannah's dad is completely freaked and wants to take off work an take her to the ER. I got Savannah up for school this morning and she didn't say a word about feeling bad or pain so she is at school. I told him I have taking the time to read an learn about this disease and people that have it sometimes bleed but they don't panic.
Oh and every couple of months her diagnoses changes right now we are at Crohns Colitis. I just told the doc I don't care what you call it just keep her healthy!
Right now she is only on Pentasa 1000mg in the am and the pm. Nexium and Amitrypitiline.
Thanks for letting me vent! Can't talk to anyone else about it.