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Crohn's Disease Forum » Surgery » Is this as good as it gets?? 6 monts post op Ileocecectomy


12-09-2013, 11:28 AM   #1
dmingia
 
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Join Date: Jun 2013
Location: Greensboro, North Carolina
Is this as good as it gets?? 6 monts post op Ileocecectomy

Two months after surgery I was re-admitted with a 102 temp and white count of 20. They put me on IV food and pumped me full of antibiotics for two weeks until the WBC reached 11 and then discharged me. Never got a really good answer as to why the infection occurred but my life has been miserable ever since. Mainly left side obstructions and cramping at this point it does not seem to matter what I eat but to get rid of the obstructions, when they come up, is liquid diet and Miralax until I poop real good. I have lost about 25 lb and my strength and stamina is very poor. I have weird "gurgling" sounds coming from my abdominal area and all kinds of cramps. My GI guy has put me on Humara and just gives me codeine for pain and I am working with a couple of anti-cramping drugs to see what works. I also am distended and can feel my intestines move... which is really weird (and painful) since prior to all this my gut has always been an after thought and only after way too may hot wings!!
Any input from folks who have had it rough after the Ileocecectomy would be appreciated. I can not believe this is as good as it gets and I really wonder if it is actually the crohn's or is the the surgery gone bad. GI guy I think is tired of me; at his wits end; is covering for the surgeon or maybe something else. I am trying to find a top notch DR in NC to give me a second opinion. I would also love to hear from folks here as well
12-10-2013, 12:47 AM   #2
BowelMeOver
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I'm sorry to hear that you've been feeling poorly of late, and I hope things get better for you real soon.

Many people who have had recent surgery are prone to believe
that any sickness shortly thereafter must be somehow
related to the surgery, but this is not always the case. You are
still going to be susceptible to all the other lovely illnesses out there,
like the cold or flu, or those pesky stomach viruses that come around
every year or so. There have in fact been a few friends and family
members that had a stomach bug for a good week.

It's quite possible that this was the cause of your fever and high wbc
to begin with, and the 14 days of antibiotics has messed with the good
bacteria in your gut, leaving you with your current side effects.

How were things for you since surgery prior to this set back?
__________________
Husband diagnosed with Pancolitis 3/2013
Medicines used in the battle: Asacol Prednisone Imuran Humira
Proctocolectomy/Ileal Pouch-Anal Anastomosis 9-6-2013
Contrast enema + flex scope 11-18-2013 = approved for reversal!
Reversal scheduled for December 19th. Egads!

Sometimes hope is the best medicine. Don't give up!
12-19-2013, 10:23 AM   #3
dmingia
 
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Join Date: Jun 2013
Location: Greensboro, North Carolina
Yea. My GP suggested probiotics and lactade to rule out something simple but the obstructions or should I say partial obstructions keep coming on with the cramps/pain and all. Working hard on watching what i eat but remembering i have lost 30 lb and getting some of that back is critical as well. I so miss my core strength around my gut where they cut.
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Crohn's Disease Forum » Surgery » Is this as good as it gets?? 6 monts post op Ileocecectomy
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