Hello again,
Just need to vent away. Was diagnosed with crohns 8 weeks ago. Did a round of pred and found the side effects extremely difficult. Coming off the pred was also difficult, I had what seemed to be a minor flare in the first week off. A follow up calprotectin test a couple of weeks later showed no inflammation which i was relieved to hear.
Dr is keeping me on pentasa for now as it appears to be working. I have read everywhere that it isn't effective but I am happy to stay on it until it proves to me it doesn't work, as I am scared of the immunomodulators. I am still having joint pain but is thankfully calming down now, however my eyes are giving me trouble so I need to see an eye dr this week to make sure everything is ok.
In between all of this, I have been trying to do a phd. I am way behind, and my supervisors are pushing for me to get on top of it again. I just feel like I can't do it anymore. I want christmas holidays as I was meant to have them, however they are now saying i need to work over them. I don't think I can do it anymore, my supervisors are difficult, I want to have a baby while I am well and in remission and I have finally been given the go ahead (I have been ill for a very long time, so I have kept putting it off). I don't know what to do, and I feel like I should be able to do everything (manage crohns, have a baby, do a phd) I just don't think I can, and I don't think I want to, but I am finding it difficult to make the decision to stop my phd.
How to people manage crohns with work or study? I don't know how to manage this disease, let alone everything else in my life. I have been seeing a counsellor, but maybe I need to see someone who specialises in chronic illness
Feeling overwhelmed
Just need to vent away. Was diagnosed with crohns 8 weeks ago. Did a round of pred and found the side effects extremely difficult. Coming off the pred was also difficult, I had what seemed to be a minor flare in the first week off. A follow up calprotectin test a couple of weeks later showed no inflammation which i was relieved to hear.
Dr is keeping me on pentasa for now as it appears to be working. I have read everywhere that it isn't effective but I am happy to stay on it until it proves to me it doesn't work, as I am scared of the immunomodulators. I am still having joint pain but is thankfully calming down now, however my eyes are giving me trouble so I need to see an eye dr this week to make sure everything is ok.
In between all of this, I have been trying to do a phd. I am way behind, and my supervisors are pushing for me to get on top of it again. I just feel like I can't do it anymore. I want christmas holidays as I was meant to have them, however they are now saying i need to work over them. I don't think I can do it anymore, my supervisors are difficult, I want to have a baby while I am well and in remission and I have finally been given the go ahead (I have been ill for a very long time, so I have kept putting it off). I don't know what to do, and I feel like I should be able to do everything (manage crohns, have a baby, do a phd) I just don't think I can, and I don't think I want to, but I am finding it difficult to make the decision to stop my phd.
How to people manage crohns with work or study? I don't know how to manage this disease, let alone everything else in my life. I have been seeing a counsellor, but maybe I need to see someone who specialises in chronic illness
Feeling overwhelmed