First of all, I am NOT addict or a pill popper, (well, technically I am due to most of my meds are PILLS, so...). Anyways . I'm so used to internalizing most of my feelings, I'm not used to expressing myself verbally, typing-ly, whatever. I was
"diagnosed " with Crohn's in May of '05 & was basically experimented on surgically for THREE MONTHS (mother's day,my bday, Gma's bday, the rest of my ninth grade year, etc..). had appendix removed and my FIRST bowel resection and the docs & surgs came up with CD after going from IBS to UC. I'm not dissing Children's Hospital because it is the cat's MEOW, when you're still a child. Sadly, I'm over the age of 18, so I had my last Remicade infusion there in early '09. I'm on my FOURTH/FIFTH GI, who took me of off Remicade abruptly, started Cimzia in September, two injections and no change according to MRI, stopped Cimzia, started Tysabri around Sept/Oct., Crohn's still "active". I've had countless x rays, blood labs, EGDs, colonoscopies, ER visits, exploratory lap on Oct.23 and worked up the painkiller ladder to Morphine. And this has happened in the last 2 years. Now there is a possibility of fibromlyagia, according to my PCP. I'm in constant pain every day. Wake up in pain, go to bed eventually with pain. It has been so tiring. Abdominal, joints, muscoskeletal, and increasing mental anguish due to flashbacks of my "past life". I'm basically a hermit now. Maybe by choice. Held up in my room, reading a random book from the library or watching Cops Reloaded (a fav). I don't like seeing my family worry so much and always having a bagged pack for an out of the blue hospital admission. My family has been encouraging to get in touch with other people like me, but that's the thing, everyone's case is different. My oncologist/surgeon prescribed 40 pills of extended relief morphine sulfate on 11/9 and I'm dreading withdrawal. Any advice would be welcomed.
"diagnosed " with Crohn's in May of '05 & was basically experimented on surgically for THREE MONTHS (mother's day,my bday, Gma's bday, the rest of my ninth grade year, etc..). had appendix removed and my FIRST bowel resection and the docs & surgs came up with CD after going from IBS to UC. I'm not dissing Children's Hospital because it is the cat's MEOW, when you're still a child. Sadly, I'm over the age of 18, so I had my last Remicade infusion there in early '09. I'm on my FOURTH/FIFTH GI, who took me of off Remicade abruptly, started Cimzia in September, two injections and no change according to MRI, stopped Cimzia, started Tysabri around Sept/Oct., Crohn's still "active". I've had countless x rays, blood labs, EGDs, colonoscopies, ER visits, exploratory lap on Oct.23 and worked up the painkiller ladder to Morphine. And this has happened in the last 2 years. Now there is a possibility of fibromlyagia, according to my PCP. I'm in constant pain every day. Wake up in pain, go to bed eventually with pain. It has been so tiring. Abdominal, joints, muscoskeletal, and increasing mental anguish due to flashbacks of my "past life". I'm basically a hermit now. Maybe by choice. Held up in my room, reading a random book from the library or watching Cops Reloaded (a fav). I don't like seeing my family worry so much and always having a bagged pack for an out of the blue hospital admission. My family has been encouraging to get in touch with other people like me, but that's the thing, everyone's case is different. My oncologist/surgeon prescribed 40 pills of extended relief morphine sulfate on 11/9 and I'm dreading withdrawal. Any advice would be welcomed.