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Have crohns disease and about to start humira hellppp!

H

honeybee

Right i have crohns disease about 11 years ive had a right side resection 2 years ago had two previous perianal abscesses and in the last 3 weeks i got another perianal abscess which had to be drained and now my crohns is gone mad again :confused2: im currently on pentasa,imuran 50 mg folic acid .now my specialist has advised to start humira with my imuran ive had all my blood work done and just waiting to get my mri and chest xray and after Xmas i will start humira ive googled the side effects which i shouldn't have and now im scared out of mind :eek: can anyone give me any insight to what's ahead and what should i expect with it thanks guys :)
 
Essieluv

Essieluv

The best advice I can give you is to not worry about the side effects. I know it is hard, but they are extremely rare. And right now, your doctor has decided that the risk of the side effects is much less than the damage Crohn's is doing to your body. Hang in there!
 
QueenFox

QueenFox

Welcome Honeybee,

I have been on Humira for 3 months and on 100mg of Imuran to help manage 3 fistulas. My experience with Humira while it hasn't been a fantastic remission/healing story I have been able to cope and manage it pretty well. The major side effects you are probably reading about are extremely rare and all those crazy warnings the pharmaceutical companies are required by law to issue them to the public and ensure the patient understands the risks even if there is a 0.00000000001% chance of anything happening. My only main advice for issues like TB is make sure you are up to date on your vaccinations before starting.

If you notice anything strange just always talk to your doctor or head to the hospital - I have once and it turned out to be viral gastroenteritis and managed to recover in the same time period as a 'normal' person regardless of being on Humira and Imuran.

The more minor side effects can be annoying sometimes I found that after the few initial injections I was absolutely exhausted and having horrible diarrhea a few days post injection. These things have eased off over time and I hope they get better until I switch to remicade in February.

For the injection itself I started with the pens and about to switch to the syringe. Why? because the pens can sting like nothing you would believe for those 10 seconds and I had a habit of misfiring the pen - I always flinched and pulled the pen away so never got the full dose (luckily I was able to replace the pen!). My brother (also has crohns) now does it for me. I close my eyes, and have a jellybean to bite down on and chew during those 10 very long seconds.

If Humira works for you it will be wonderful and the small bumps will make it all worth while. There is a great support network out there for those of us on Humira so please don't worry to much - keep up your normal daily routine and keep in contact with your doctors. I hope that the Humira will be the right treatment for you!
 
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