Share Facebook
Crohn's Disease Forum » Extra Intestinal Manifestations » Eyes » Eye Inflammation - Uevitis?


01-06-2014, 09:42 AM   #1
stumblez
 
stumblez's Avatar
 
Join Date: Jan 2014
Location: Florida
Eye Inflammation - Uevitis?

Anybody ever had eye inflammation of any kind while having a flare of IBD?

I have Uevitis, which is an inflammation of the iris. It is very painful, red, swollen, watery, blurred vision (REALLY bad vision) and sensative to light.

Fortunately I finally got on some steroid drops and that gets rid of the pain but it takes up to 6 weeks for it to go away. However, at the same time I am also having what I suspect is a flare (of Crohn's or Colitis I am not sure, I have actually never had a flare before). Diarrhea 3x a day, lots of urgency and discomfort.

I have only been tested once for IBD and it was with the Prometheus test which came positive for Crohn's. But the doctor said it could one day be Crohn's and another Colitis. I had a colonoscopy which had a little inflammation but hardly any...

So maybe I am experiencing my first flare up of whatever IBD I have? Who knows. Share your eye experiences!
01-07-2014, 05:53 PM   #2
afidz
Super Moderator
 
afidz's Avatar
 
Join Date: Jun 2012
Location: Mckinney, Texas

My Support Groups:
I had a never ending case of Uvetis last spring. It took a long time to clear up, and I suspect there is permanent damage to my eye because my vision is worse now. My doctor told me that I will probably always have problems with this, and when I start to notice it happening to go in right away so it can be treated.
__________________
Crohn's since 2007
15 Abdominal Surgeries since 2008
Severe Non-repairable abdominal hernia
Ankilosing Spondylitis
Inflammatory Arthritis

Failed meds:
Humira
Remicade
Asacol HD
Cimzia
Methotrexate
01-08-2014, 07:04 AM   #3
stumblez
 
stumblez's Avatar
 
Join Date: Jan 2014
Location: Florida
Oh wow... how bad is the vision in your eye? Did it improve at all?
01-08-2014, 11:53 AM   #4
afidz
Super Moderator
 
afidz's Avatar
 
Join Date: Jun 2012
Location: Mckinney, Texas

My Support Groups:
With the steroid drops, it can distort your vision, it did get better after I was off of the steroid drops for a while. My vision isn't horrible now, I had trouble seeing before I got uvetis, but I definitely notice it is harder to see than it was before.
01-09-2014, 06:01 AM   #5
stumblez
 
stumblez's Avatar
 
Join Date: Jan 2014
Location: Florida
Hmm, ok. My doctor said the same thing about the pupil dilating drops that I have to take to keep my pupil dilated. Time will tell I suppose!
01-09-2014, 09:53 PM   #6
afidz
Super Moderator
 
afidz's Avatar
 
Join Date: Jun 2012
Location: Mckinney, Texas

My Support Groups:
yea, the dialting drops distort your vision as well, but they are important to heal properly and avoid damage to the eye. It keeps your eye at a relaxed state and it can heal quicker. you are less likely to develop scar tissue with it. Scar tissue damage is irreversible
01-12-2014, 09:18 AM   #7
stumblez
 
stumblez's Avatar
 
Join Date: Jan 2014
Location: Florida
Yeah, thanks for your info! Hopefully this will clear up and my vision will be better after another month. I'm making sure to take all my drops. Sometimes I even notice a weird taste in my mouth after the eye drop (I think it's maybe some of it running through my sinus cavity as I tilt my head back).

I'm also experiencing what I think is my first flare (though it's minor compared to what I know people have), and it doesn't help the fact that I am currently overseas away from my American doctor... I've lost about 4 pounds over 2 weeks (I only weighed 110 to begin with). So I may be heading back home.

I also have joint paint, and lately some very bad neck pain and muscle pain. It's insane what other manifestations IBD seems to have!
01-12-2014, 02:18 PM   #8
ellie
Senior Member
 
Join Date: Apr 2010
Location: Sydney Australia

My Support Groups:
I've had Crohn's colitis related uveitis a few time - always initiated by a bowel flare! My advice is be obsessional about the pred forte drops, and a really slow taper.. Don't stop them too soon!


HD
03-19-2015, 10:50 AM   #9
The Mad Bagger
 
The Mad Bagger's Avatar
 
Join Date: Jun 2014
Location: Hebron, Indiana

My Support Groups:
I got uveitis for the 1st time last year & that should've been my 1st clue that a bad flare was coming. I had my 19th surgery at Mayo clinic & its been since August 2014 & now my eye is flaring up again. Stay in the dark all the time
Reply

Crohn's Disease Forum » Extra Intestinal Manifestations » Eyes » Eye Inflammation - Uevitis?
Thread Tools


All times are GMT -5. The time now is 10:48 AM.
Copyright 2006-2017 Crohnsforum.com