- Location
- Lehigh Valley
Hello, my name is Tommy Pi, for short, and I've lived with my wife for over 2 1/2 years, who suffers painfully from Crohn's, Endometriosis, and IBS; the triple threat, as I call it. She's going on 43 next month, and has been first diagnosed at 27, I believe; so that's just about 16 years living with these "incurable" diseases, but I am a Christian who believes in supernatural healing, I believe someday she will be healed.
Angela has gone through everything though, I'm younger than her so I am more energetic and motivated about getting her help and all, but she has been over this again and again; Johns Hopkins, New York City, Arizona, etc. Holistic care, Natural and Homeopathic care, regular medical care; has never taken Humira for reasons unknown; just doesn't believe in it. I personally have never lived with someone who suffers this way, it's hard at times, social life and dates out on the town. I am learning about Crohn's as much as possible, I've signed up for so many at-home mailers that these places must think it's ME who has it! I've learned about polyps, and fissures, and all of that stuff; flare ups, etc.
It's so hard. I signed on to this forum because we both have been 'over sick' since Christmas; literally a day over two weeks already. Angela feels like she has gotten worse and is getting something again, starting up - such as fever and more. So I'll be finding a medical question / Colds, Flues, Sick forums on here to post a question, maybe someone else has an answer. I fear, and so does she, that she is hurting internally - that this extension of the cold/flu or whatever it is, may be getting worse because of her twisted immune system.
She has had Colonoscopy Surgery years back, not sure exactly when, years after she was first diagnosed in 1998. So therefore, I'm not sure what's all going on really, inside her. It sucks, it really does. I love her with all of my heart and she said, "I feel like I'm dying" just before; I've learned that there comes pessimism and negative future outlooks with this disease that haven't been easy to overcome, I try and be positive and optimistic but it's hard.
Empathy is a great temporal cure I've realized, even in a simple relationship, it's good to be able to know and understand what your spouse is feeling and going through as if you are yourself, but this is so difficult. I just want her to be happy. Thanks for this forum, I hope I find some answers. God Bless!
Angela has gone through everything though, I'm younger than her so I am more energetic and motivated about getting her help and all, but she has been over this again and again; Johns Hopkins, New York City, Arizona, etc. Holistic care, Natural and Homeopathic care, regular medical care; has never taken Humira for reasons unknown; just doesn't believe in it. I personally have never lived with someone who suffers this way, it's hard at times, social life and dates out on the town. I am learning about Crohn's as much as possible, I've signed up for so many at-home mailers that these places must think it's ME who has it! I've learned about polyps, and fissures, and all of that stuff; flare ups, etc.
It's so hard. I signed on to this forum because we both have been 'over sick' since Christmas; literally a day over two weeks already. Angela feels like she has gotten worse and is getting something again, starting up - such as fever and more. So I'll be finding a medical question / Colds, Flues, Sick forums on here to post a question, maybe someone else has an answer. I fear, and so does she, that she is hurting internally - that this extension of the cold/flu or whatever it is, may be getting worse because of her twisted immune system.
She has had Colonoscopy Surgery years back, not sure exactly when, years after she was first diagnosed in 1998. So therefore, I'm not sure what's all going on really, inside her. It sucks, it really does. I love her with all of my heart and she said, "I feel like I'm dying" just before; I've learned that there comes pessimism and negative future outlooks with this disease that haven't been easy to overcome, I try and be positive and optimistic but it's hard.
Empathy is a great temporal cure I've realized, even in a simple relationship, it's good to be able to know and understand what your spouse is feeling and going through as if you are yourself, but this is so difficult. I just want her to be happy. Thanks for this forum, I hope I find some answers. God Bless!
) Best wishes to your wife!