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Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » Please help, found a small hole near my rectum, what is it?



 
01-18-2014, 03:44 AM   #1
Amaze
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Please help, found a small hole near my rectum, what is it?

I found a small hole near my anus. Is it a fissure, fistula, or an abscess? I cant tell the difference and which one do I have?

Why do I have this and how do I make it go away? i noticed it thursday and today I have a burning sensation down there. I spoke to my GI and he said surgery is going to fix that up but I have to wait till monday to schedule an appointment for tuesday with a rectal surgeon. My GI said surgery is the way to go but the surgeon will ultimately decide.

Im not afraid of surgery but Im SUPER AFRAID of these setons I been hearing about. I do not want a bag attached to me where I have to remove and see my insides. Sorry if im insensitive about it but the thought of it makes me want to pass out. Im having a panic attack from this. My college semester starts in less than 2 weeks now it looks like my college days are numbered.

are there any alternatives to surgery?

also, if surgery is my only solution does it have to be seton?

sorry for all the questions im just having like an anxiety attack.
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01-18-2014, 06:18 PM   #2
Sailorluna
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Amaze,
Hi there. I am sorry that you are stressed out. First off a seton is NOT a bag. You are thinking of an ostomy - there are many people with these issues that do not have an ostomy. A seton is a drain basically like a thread that is run through a fistula to stop it from closing and causing an abscess.

You have a hole. Ok, is anything coming out of it? If so, what is coming out. Puss? Blood? Fecal matter? Are you passing gas through it? You really need to have it looked at before you know for sure what it is.

Do you have Crohn's?

Unless he has looked at it I think it is very premature for the GI to say that you need surgery... I mean really??? You can not diagnose that over the phone.

I would keep it clean - nice hot baths maybe with epsom salts in there.
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Resection and diagnosis June 2010
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currently 2 seton in place 1 since 9/11 the other 4/14
1 strange small air pocket with an 8 cm sinus track leading into the great unknown
methotrexate weekly
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01-18-2014, 06:32 PM   #3
durwardian
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Hello, good you had it looked at. It sounds like a fistula tract without seeing it. It is going to burn, and drain fluids. Somewhere up above that something wanted out of your body, whether an abscess or cyst. Your body creates these to get rid of the problem, and they have many ways to deal with them. The doc probably means that they want to help it drain, which is a doctor visit, you go home right after. If you have a larger infection going on, then the surgery is to remove that so you can heal. A seton holds it open so it can drain, if not it would heal up and seal the poisons in, making you very sick. A seton is basically a little strap that looks like a piercing. You don't have to have Crohn's or any other disease. Most of the time the anal glands are just plugged up and then they back up and get infected, this is then opened up and drained. It is mentioned in ancient Egypt, so this has been an issue since the beginning of time.
A healthy diet can help, but some people seem to get them, some don't. Put a little hot water in the tub and sit in it for about 10 minutes, multiple times a day. The heat and moisture will open up those glands and let them drain properly.
Follow the doctor's instructions and get checked for other issues pronto.
If it itches or burns, the hot bath will help. The doctor can give you suppositories to fix that problem also. Good luck.
01-18-2014, 10:56 PM   #4
Amaze
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Hi there. I am sorry that you are stressed out. First off a seton is NOT a bag. You are thinking of an ostomy - there are many people with these issues that do not have an ostomy. A seton is a drain basically like a thread that is run through a fistula to stop it from closing and causing an abscess.

You have a hole. Ok, is anything coming out of it? If so, what is coming out. Puss? Blood? Fecal matter? Are you passing gas through it? You really need to have it looked at before you know for sure what it is.

Do you have Crohn's?

Unless he has looked at it I think it is very premature for the GI to say that you need surgery... I mean really??? You can not diagnose that over the phone.

I would keep it clean - nice hot baths maybe with epsom salts in there.
Thank you for correcting me, that part is a HUGE relief. So this is a thread thats put into my body so it can stop an abscess. How long till the threads are removed?

I dont think anything is coming out of it but I dont know. But recently I been noticing a discharge substance in my boxers and when I wipe my bottom its like mucus. I also notice that my boxers smell foul from this

Yes, I do have Crohns.

I completely agree, my GI is a money hungry jackass. He has a huge attitude and I really hate visiting him because of this. I have gone to MULTIPLE other Gi professionals about my issues and none were ever helpful, if you can believe they all recommended me back to him! unbelievable.

I took a shower today and it burnt like hell. Do I really need to do this?
01-18-2014, 11:10 PM   #5
Amaze
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and can someone clarify what this hole is? I wanna know the name of it so I can do further research
01-18-2014, 11:13 PM   #6
Amaze
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Hello, good you had it looked at. It sounds like a fistula tract without seeing it. It is going to burn, and drain fluids. Somewhere up above that something wanted out of your body, whether an abscess or cyst. Your body creates these to get rid of the problem, and they have many ways to deal with them. The doc probably means that they want to help it drain, which is a doctor visit, you go home right after. If you have a larger infection going on, then the surgery is to remove that so you can heal. A seton holds it open so it can drain, if not it would heal up and seal the poisons in, making you very sick. A seton is basically a little strap that looks like a piercing. You don't have to have Crohn's or any other disease. Most of the time the anal glands are just plugged up and then they back up and get infected, this is then opened up and drained. It is mentioned in ancient Egypt, so this has been an issue since the beginning of time.
A healthy diet can help, but some people seem to get them, some don't. Put a little hot water in the tub and sit in it for about 10 minutes, multiple times a day. The heat and moisture will open up those glands and let them drain properly.
Follow the doctor's instructions and get checked for other issues pronto.
If it itches or burns, the hot bath will help. The doctor can give you suppositories to fix that problem also. Good luck.

when you say a healthy diet can help... do you have a diet plan to recommend?

Funny thing, when I eat healthy and organic I get very sick with multiple bathroom trips. But when I eat unhealthy such as Burger King, KFC and Pizza I feel fine.
01-18-2014, 11:28 PM   #7
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You may want to fold up some toilet paper and put it between your buttcheeks for a while (maybe while you sleep) and see what if anything is coming out.

It sounds like a fistula (does not mean it is) but a hole near your rectum that leaks is pretty standard fistula. I am on my phone or I would send you some links. The forum has a wiki though you could look at that or google it, there is a lot of info on the web.

Calmoseptine cream (I get it at Walgreens but the keep it behind the pharmacy counter) helps me with the skin issues from my fistula.
01-19-2014, 01:30 AM   #8
Amaze
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my butt has been so moist every couple of hours I have to go to the bathroom to wipe and its full of possible mucus mixed with brown water like substance.

if I were going to put the toilet paper it most likely will become soaked , but if I did put the toilet paper what would I be looking for?

for the past couple of days I been taking Amoxicillin 500mg that was prescribed to me 2 months ago for a flu I caught. Is it stupid that im taking this without a doctors permission for my current situation?


Thanks, even though it doesnt mean its a fistula at least now I can research one topic with out jumping. Im going to order the cream online if its possible.
01-19-2014, 02:50 AM   #9
durwardian
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Hey, me again. To the diet. Everyone is different. Some are better with high fiber, but that makes me worse. A nutritionist, or an allergy doc, or livestrong.com advice. Just listen to your body and realize yesterdays food is todays intestines.
Don't take antibiotics without the doc's orders, and when you do, try to replace the good bacteria. Yogurts are so-so, probiotics are best.
What you want is as much drainage as possible, color and consistency are then reported to your doc. It is not unusual to get mucous, blood, tissue, puss or stool coming out of a tract.

01-19-2014, 02:52 AM   #10
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The tissue can prevent an embarassing mess, you never can tell when these things just unload in your pants.

01-19-2014, 02:53 AM   #11
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I have even used depends when i had three going on at the same time.

01-19-2014, 02:57 AM   #12
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My diet during these is fasting, plenty of water, and a can or two of Ensure every day. Most of my problems are food sensitivity related, and it gives it a break down below. Also helps to keep it clean, at times I use triple antibiotic cream to cut the sting

01-19-2014, 02:59 AM   #13
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I discovered I can't have sweeteners or sodium benzoate preservatives, process of slow elimination

01-19-2014, 03:01 AM   #14
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Crohn's can be stress triggered. So one day you can eat what you want, the next it may kick you hard

01-19-2014, 06:20 AM   #15
Amaze
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The tissue can prevent an embarassing mess, you never can tell when these things just unload in your pants.
out of context, this sounds funny

thanks for the laugh

seriously, thanks for the advice
01-19-2014, 06:21 AM   #16
Amaze
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I have even used depends when i had three going on at the same time.
what are depends?
01-19-2014, 06:22 AM   #17
Amaze
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I took a pic of my behind today. I cant see in it because I didnt get a good enough pic but its a red circle with purple around it.

Not sure if its worth mentioning but the hole is below my anus.

Last edited by Amaze; 01-19-2014 at 07:03 AM.
01-19-2014, 12:29 PM   #18
Sailorluna
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when do you see the doc?

I use a pantyliner all the time and a folded makeup pad between my cheeks to absorb the drainage. I am a woman so it is easy for me but there are guys on here who talk about using them in their boxers.

If there is lots coming out you can use a foam wound covering or gauze to help absorb it. The drainage is tough on your skin and can cause a lot of discomfort.

Its not a great idea to self prescribe meds. Plus I dont think that targets the right area. Generally they will give you Cipro and Flagyl as antibiotics for fistula.
01-19-2014, 12:49 PM   #19
durwardian
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Depends is an adult diaper brand

01-19-2014, 12:49 PM   #20
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Liners can work

01-19-2014, 03:13 PM   #21
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thank you guys for your responses, I feel more at ease than before.

It seems like a millions years till monday so I can call the surgeon and make that appointment for tuesday
01-20-2014, 03:40 AM   #22
Amaze
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I wanted to ask you guys since I probably wont see a surgeon till tuesday... since the hole is purple around it and has nothing coming out does that mean its infected and the infection is going to create a new hole which it can drain from?
01-20-2014, 03:51 AM   #23
durwardian
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It doesn't have to find a new tract. It could just be done and trying to heal. Red to purple is the usual color. If it stays painful and does not drain, it will need to be opened up for drainage. This is an outpatient visit to the surgeon's office, and usually quick. Leaving it untreated is not a good idea. Most colorectal surgeon's have an emergency or urgent care service to for those of us that need a quick drain. However, if you keep sitting in a few inches of hot water in the tub, multiple times a day, you may be able to get it to drain and open up without the surgeon. Just be persistent and keep it clean.
01-20-2014, 03:31 PM   #24
Sailorluna
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For me the biggest sign of infection is a fever. I have never been able to see mine so I am not sure about color.
01-20-2014, 03:36 PM   #25
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I don't get fevers much any longer, almost like that shut down with my immune system

01-21-2014, 02:22 PM   #26
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I just came back from the surgeon and he said I have ulcers and 2 fistulas, he noted I probably have more fistulas. He said he doesn't want to do surgery since I have crohns and it will just come back. He said he will talk to my GI and I have to see my GI this thursday. He also mentioned putting in setons but he didn't elaborate
01-21-2014, 02:51 PM   #27
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are there any questions or suggestions I should ask/tell my GI this thursday?
01-21-2014, 03:04 PM   #28
Amaze
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Hey, me again. To the diet. Everyone is different. Some are better with high fiber, but that makes me worse. A nutritionist, or an allergy doc, or livestrong.com advice. Just listen to your body and realize yesterdays food is todays intestines.
Don't take antibiotics without the doc's orders, and when you do, try to replace the good bacteria. Yogurts are so-so, probiotics are best.
What you want is as much drainage as possible, color and consistency are then reported to your doc. It is not unusual to get mucous, blood, tissue, puss or stool coming out of a tract.
when you say probiotics are best, what do you mean by this?

Im really concerned that maybe my 2 fistulas (or possibly more) are due to my poor diet. I spoke to two nutritionist and they both told me eat what ever doesn't bother which isn't much help. I know Im asking to much but do you have a list of good foods I can eat to maybe get these fistulas to disappear. My college semester starts in 7 days and im not psychically or mentally ready to go. This will be the 3rd semester I mis due to crohns related crap.
01-21-2014, 05:07 PM   #29
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im so depressed.
01-21-2014, 05:40 PM   #30
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Hang in there. Look at livestrong.com for all the possible diets, and the forum here has a great list.

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Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » Please help, found a small hole near my rectum, what is it?
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