Share Facebook
Crohn's Disease Forum » Support Forum » Healthcare Workers with Crohn's/IBD Support Group


 
07-29-2014, 09:44 PM   #31
Trysha
Senior Member
 
Trysha's Avatar
 
Join Date: Aug 2009

My Support Groups:
Hello Jr Psychologist
Welcome to the forum.
It is quite natural to feel overwhelmed by the diagnosis of Crohn's as many of us have been.
The service in which you work should provide help and compassion.
It is a decision that only you can make but where there are likely to be episodes and many appointments associated with crohn's it may be a good move to talk to human resources
This could relieve some of the pressure on you.
You may well respond to treatment and hopefully a remission of some or all of your symptoms.
Have you been offered biologicals such as Remicade or Humira?
Try to continue working and this will help you to know if you have chosen the right field in which to work.The experience may prove valuable to you.
The diagnosis is overwhelming at first but you will learn to cope as time goes by and you have the benefit of modern medicine.
Feel better soon
Hugs and best wishes
Trysha
08-03-2014, 04:22 PM   #32
skylardaisy
 
skylardaisy's Avatar
 
Join Date: Feb 2012
Location: Winnipeg, Manitoba

My Support Groups:
I'm feeling so guilty right now. Had no choice but to call in sick for my evening shift due to huge amount diarrhea. But it's a long weekend and I am violating the unwritten rule that you are never supposed to call in sick on a long weekend because it's hard to find a replacement. Hope nobody had to work overtime because of me.
Does anyone else feel guilty when you have to call in sick even though it's beyond your control ?
08-05-2014, 04:40 PM   #33
Trysha
Senior Member
 
Trysha's Avatar
 
Join Date: Aug 2009

My Support Groups:
sorry you are so unwell and hope you soon feel better
working with patients is an onerous responsibility whichever way you see it and we have a duty to them not to further hazard their health with a possible cross infection.
you have done the right thing in calling in sick, these things happen and I am sure the powers that be and the infection control team would rather you stayed at home till you are better
Feel better soon
Hugs and best wishes
Trysha
08-27-2014, 03:29 PM   #34
Madmouse
Forum Monitor
 
Join Date: Mar 2014
Location: UK

My Support Groups:
Hi guys,

I have just found this forum, and am really pleased I have as it is great to be able to speak to people in a similar situation!

I am a paramedic in the UK, and am currently having a huge battle with work - my management team dont seem to understand the impact of IBD and the time it takes to try and get a balance of medication and some sort of remission. I am struggling with fatigue currently (my GI symptoms and joint problems are not perfect but manageable most of the time) and am facing the real possibility of loosing my job as I cant do the shifts they require at the moment. It is so frustrating!
I completely understand your frustrations about 'letting colleagues down' and putting on a brave face (my fav phrase is 'man up, take a pill and get on with it') is something we have all done, and continue to do. But, we are no use to our patients if we are acutely unwell and can't care for them safely. Its such a delicate balance isnt it? Hopefully one of us will come up with a magic solution soon! :-)
08-29-2014, 07:44 AM   #35
littlekit2013
 
Join Date: Aug 2014
Location: Bristol, United Kingdom

My Support Groups:
Hi everyone. Such a relief to find this! My diagnosis is as yet unconfirmed but Gastro is positive its Crohns. I work in Neonatal ICU and I'm struggling. The pain can be quite distracting and obviously in my place of work that can be dangerous. I've been off for a week with severe pain and am only able to eat tiny amounts at a time. I'm going back tomorrow cos we are short staffed, I can't afford to be off sick, and my mum is very unsupportive despite my dad having UC!! She thinks I'm just being a wimp. Really not sure how I'm going to manage tomorrow to be perfectly honest! Thankfully its only 1 long day beforev2 weeks annual leave. I have a possible stricture which is making life somewhat difficult!
__________________
Awaiting confirmation of Crohns Disease
Also living with Hemiplegic Migraines and PCOS.
12-30-2014, 12:41 AM   #36
RNGirl
Senior Member
 
Join Date: Dec 2014

My Support Groups:
Hello everyone!
I am newly diagnosed (within the last year) and glad to have the opportunity to discuss with other health care professionals. I have been an RN for 28 years, currently in a very stressful job in a large medical center. I have felt the need to keep my diagnosis somewhat private because I don't want my co-workers to look at me and think "crohns". I too feel obligated to work when I'm not feeling well and since I am an "exempt" employee and salaried, I work tons of extra hours. Of course doesn't help my crohns either. I am very invested in my patients and families and don't want to let my physicians, nurses and therapists down either. I am trying to work on self care, but as most others on this forum hard for everyone else too. Thank you for listening😊
12-30-2014, 02:19 PM   #37
lilac
 
lilac's Avatar
 
Join Date: Sep 2014

My Support Groups:
I've been having an "active resistant" flare for the past 14 months and been through 6MP, Humira (weekly), methotrexate and mesalazine with 10 hospital admissions because of severe perianal pain. I'm a mental health nurse, 2 years qualified now and it's been really difficult juggling meds, appointments and dealing with the day-to-day symptoms.

I think if I didn't have my job I would probably end up feeling suicidal as it's the only thing I have just now. Lost friends, relationship, potential relationships and constantly digging into savings because of absences from work. I'm trying to save for a mortgage and living with my parents which makes me feel like a failure in some respects, but has to be done just now and I'm so thankful to have a supportive family.

Most days I have a "sod it" attitude and just get on with my job as the distraction is a relief to be honest.I personally think we should all be proud of ourselves. Without disrepecting anyone, i don't think a lot of people would be able to do the stressful jobs we in healthcare do with the symptoms we experience. I don't think of myself as "chronically ill", "sick" or "a patient". I just think of myself as having symptoms from time to time.
12-31-2014, 10:27 PM   #38
RNGirl
Senior Member
 
Join Date: Dec 2014

My Support Groups:
Lilac,
So sorry you are going through all of lifes struggles right now. Hard enough to have Crohns then add job, money issues etc. Being a nurse is extremely stressful regardless of what specialty you are in. Try to be good to yourself and walk away from your job each day and TRY to leave it behind. Wish I could have figured how to do this many years ago, maybe my gut we be better for it.

Take care!
01-02-2015, 09:48 AM   #39
CrohnsNewbie2
 
CrohnsNewbie2's Avatar
 
Join Date: Apr 2014
Location: MA

My Support Groups:
I work for a service desk that supports several different hospitals. Although I'm not on the patient floor the Crohn's does affect my work. I find that bring my heating pad with me to work helps a lot. I also bring my medicine and vitamins everyday. I also have water, peppermint tea, and Imodium (just in case). For emergencies I have a change of clothes. I'm learning day by day of things I can do.
01-02-2015, 10:13 AM   #40
baistuff
Senior Member
 
Join Date: Sep 2014

My Support Groups:
Hello everyone!
I am newly diagnosed (within the last year) and glad to have the opportunity to discuss with other health care professionals. I have been an RN for 28 years, currently in a very stressful job in a large medical center. I have felt the need to keep my diagnosis somewhat private because I don't want my co-workers to look at me and think "crohns". I too feel obligated to work when I'm not feeling well and since I am an "exempt" employee and salaried, I work tons of extra hours. Of course doesn't help my crohns either. I am very invested in my patients and families and don't want to let my physicians, nurses and therapists down either. I am trying to work on self care, but as most others on this forum hard for everyone else too. Thank you for listening��


I don't think other medical professionals will look at you and think that. Many of my MD colleauges know about me, and if anything, they kind of look at me as a GI expert, even though I'm just a general internist. I've never had one negative look, comment, and everyone I work with was fascinated when I went through the FMT. Many of the nurses I know in my hospital have chronic medical issues and those of us who know don't treat them any differently than anyone else.

It's not my place, and I'm certainly not telling you to share your diagnosis. You have every right to every little bit of privacy you want. As a fellow medical professional, my only thought would be to let YOUR feelings be the driver of that decision and not fear about what others might think.

Nurses have the hardest job in all of medicine. We docs would be nothing without you. Thank you for your service to patients and families and also for keeping us from screwing up. It's a very tough profession even when perfectly healthy. Best of luck to you!

(can you accept this post as a verbal order? )
01-02-2015, 12:23 PM   #41
lilac
 
lilac's Avatar
 
Join Date: Sep 2014

My Support Groups:
I work for a service desk that supports several different hospitals. Although I'm not on the patient floor the Crohn's does affect my work. I find that bring my heating pad with me to work helps a lot. I also bring my medicine and vitamins everyday. I also have water, peppermint tea, and Imodium (just in case). For emergencies I have a change of clothes. I'm learning day by day of things I can do.
Hi, Peppermint tea can be a godsend sometimes. Good idea about the heatpad - never thought of that one. I'm a community nurse so I get a day here and there in the office so I think that would come in handy
01-03-2015, 12:50 AM   #42
RNGirl
Senior Member
 
Join Date: Dec 2014

My Support Groups:
Hi Baistuff,

Thank you for your kind words. I am very blessed to work closely with a wonderful group of peds hospitalists and specialists at our children's hospital. I have shared with a couple of my doctor friends. We are a really tight knit team all working together for our kids and families. That's what drives me to work each day. I also coordinate all of the family/team care conferences and am in awe when I look at all of the brilliant doctors around the table supporting our families. And for that, I thank you for all your years of medical school and residency. Thank you for the insight, yes I will take your advice as verbal/written order to share. Guess I just needed permission---thank you, hope 2015 is a healthy year for you 😊
01-03-2015, 07:10 AM   #43
Mysty84
 
Mysty84's Avatar
 
Join Date: Jan 2015

My Support Groups:
So far, I have found that working takes my mind off of some of the frequent bathroom urges. Not all the time though. And the pain usually doesn't go away (if I have any). My coworkers know that I have Crohn's and usually they try to help me feel better (not that they can do a whole lot for me, but it's the thought that counts). I work in the lab and we have private bathrooms around us (thankfully). It is tough to help others when you don't feel 100% yourself and even more difficult that usually others don't care that you don't feel well.
01-19-2015, 11:46 PM   #44
Jennifer625
 
Jennifer625's Avatar
 
Join Date: Jan 2015

My Support Groups:
Hey everyone!!
I work as a hospital operator in a large city (San Antonio, Texas) for a large network of hospitals. My coworkers are EXTREMELY helpful and understanding. I sit in a cubicle directly by a bathroom so that helps (lol). My coworkers definitely go above and beyond making sure I have time off for doctors appointments and when I was in the hospital having my gallbladder removed. I really lucked out with this job . The only problem happens when we have a high call volume (sometimes we have up to 100 callers waiting to have their calls answered) but they made it very clear if I need to use the bathroom it's not a big deal.
__________________
Diagnosed:
GERD: 9/15/14
Indeterminate Colitis: 9/15/14
Internal Hemorrhoids: 9/15/14

Current Medications:
Bentyl - 80 mg
Entocort - 9mg
Protonix - 80mg
03-10-2015, 10:48 PM   #45
RNGirl
Senior Member
 
Join Date: Dec 2014

My Support Groups:
Just curious if anyone else is having trouble getting and keeping Family Medical Leave Act (FMLA) coverage? My very large healthcare employer (5,000) my medical center and tens of thousands in the whole system is self insured. I took one 2 week stretch and a couple of one day leaves last year. They are really giving me a hard time while trying to renew this year. Almost to the point of harassment. I work more than full time and drag myself to work even when I feel like garbage. Really chaps my hide and ready to get a lawyer. Sorry, just had to vent. Have given over 28 years of dedicated service to the medical center. I've never called in unless I've been on my death bed. Ok, feel better now😊. Thanks for listening!
03-10-2015, 11:09 PM   #46
2much
 
2much's Avatar
 
Join Date: Dec 2011
Location: Caribou, Maine

My Support Groups:
FMLA renews every year.....it is unacceptable and illegal to harass you when the benefit is available to you. Sometimes, I feel the healthcare community are the biggest offenders of harassment of staff who are chronically ill. Minimal support and compassion. It all comes back to money. My supervisor was awful.....he complained if I was 5 minutes late, usually due to having to stop and find a bathroom......his complaint was that if I am not on time it throws off the whole clinic which is not true.
I am sorry you are going through this but it is unlawful. Do you have a union rep that can help support you
__________________
Undiagnosed for 20 years; diagnosed with IBS
Crohn's Disease diagnosed in 2007
Ileocecal resection surgery 2008.
Currently in remission
Recently diagnosed with moderate to severe cognitive
Impairment and atrophy in Hippocampus and both Parietal lobes in brain

Current Meds include:

Cymbalta
Provigil prn
Protonix
Clonazepam for insomnia
OxyContin
Vicodin prn
Medical marijuana



Have taken:
6 MP
Pentesa
Remicade
Humira
Entocort
Flagyl
Cipro
03-12-2015, 10:27 PM   #47
RNGirl
Senior Member
 
Join Date: Dec 2014

My Support Groups:
2Much,

Thank you for your support. My doctor asked to allow me to be off for 5 days in a row if needed for my flares. The stupid self insured company for the hospital rejected his recommendation and is making me re-submit again to my doctor. Anything over 3 days in a row is considered a continuous leave versus intermittent. Really hard with Crohn's to say I wont be off over 3 days. When I'm sick, I'm down for the count till I can get my strength back and make it to work. I am in an exempt position, so no Union unfortunately. I did talk to a nice lady at the self insured and she told me off the record that it is up to the person who manages your case to use their discretion when denying or approving your case. My person sounds like a teenage boy, who obviously has no experience with people who have chronic disease. Obviously, not a health care professional either. Still fighting the battle and waiting for the revised paperwork from my doctor. Hate this stuff 😞
03-12-2015, 11:31 PM   #48
woops!
Senior Member
 
Join Date: Apr 2010
Location: Virginia
I work 12's in a busy ER. I do like it, but sometimes the stress is just not good. The good thing is I don't have to give any explanations about crohns. The bad thing is, I always need to go to the bathroom at the worst times..... Thinking about changing, and have been looking at case management..
Anyone got any feed back for me in this area would be great?
Woops!
__________________
Wherever you be.... let the wind blow free!
03-12-2015, 11:46 PM   #49
2much
 
2much's Avatar
 
Join Date: Dec 2011
Location: Caribou, Maine

My Support Groups:
RN Girl....the 5 days in a row is very reasonable and while there is someone that approves or denies requests... I still can't help but think that you have a doctor's order In hand and that there shouldn't be any discussion on how you use the 12 weeks .....that is our lawful right.
This is the exact reason why we have this law......to give us the opportunity to take care of ourselves without having the fear of losing our job and to certainly not be harassed.
I am very a sorry this is happening....would it would worth it to meet with an attorney to learn more regarding your rights and how you can navigate this without the double burden of harassment and need to fight for what I thought was your legal right to use in any way you and your doctor discuss and agree upon.
Please keep us posted and I wish you success on getting what you need and deserve.
03-13-2015, 08:35 PM   #50
RNGirl
Senior Member
 
Join Date: Dec 2014

My Support Groups:
Hi 2much,

My next step is a lawyer. I'm already suffering from adrenal fatigue and this is not helpful. I will probably file a complaint by going to administration at our medical center. Our mission statement at the medical center is: "Know me, Care for me, Ease my way". The company that manages the FMLA is brutal. I'm going to make an appointment with the head Nun administrator, she will be shocked. Been therer 28 years so know the right channels. I don't neccessarily like the fact that the decision can be so subjective on the part of your personal reviewer either. I usually tackle these problems and don't give up until I get to the bottom of it.

Funny you should inquire about RN Case Management---that's my job😊. I do complex discharge planning and Utilization review. Very interesting and rewarding. I really do love it, but not stress free of course. No nursing job is and I know you know this. Very complex now with Obama care and all of the particulars in each state. Very rewarding when you put all of the pieces together for the patient and family to make their lives easier during the worst times in their lives. I work in a children's hospital.

Thanks for all of your kind words and support! Good luck with your nursing career decisions😃. Feel free to ask more about case management.
03-13-2015, 08:40 PM   #51
RNGirl
Senior Member
 
Join Date: Dec 2014

My Support Groups:
Sorry 2much, my last reply should have been to reply to "woops". Just tired out this Friday night. Been a tough week😛
03-13-2015, 08:42 PM   #52
RNGirl
Senior Member
 
Join Date: Dec 2014

My Support Groups:
I meant in regard to case management. Appreciate your kind words 2much☺️
03-22-2015, 10:29 PM   #53
magy35
 
magy35's Avatar
Great idea. I am new to this forum. I am a psychiatric nurse practitioner. While I find myself greatful for my career, I can definitely say my health impacts my ability to muster empathy at times. I don't share my personal struggles with my patients but I know the struggles I have to just be present at work are sometimes harder in comparison to some of their issues. Again, pain is subjective and I do not want to say I do not care. I care a ton. It is just difficult when I struggle to arrive to work only to be yelled at for not prescribing an addict xanax or other such issues. Anyways, I digress. Thanks for this forum.
Maggie
06-19-2015, 06:22 PM   #54
Caitlin84
Senior Member
 
Caitlin84's Avatar
 
Join Date: Jun 2015
Location: Milwaukie, Oregon

My Support Groups:
Magy35,
I am a psychiatric RN, so I totally understand the stress you face. Sometimes I think my struggles give me more compassion for patients, esp pain patients, and other times it just makes it harder. Hang in there.
06-20-2015, 03:53 AM   #55
Diver jude
 
Diver jude's Avatar
I too was only diagnosed with crohns back in dec , but I worked in a private hospital ( mainly surgical )who gave me little or no support , was hospitalised for 6 weeks when no one contacted me , but since then I am constantly badgered because of my attendance record , have even been threatened with a written warning, despite having gp sick notes and consultants in put . I have decided the stress is only making things worse , so have given notice , but feel angry and sad that fellow healthcare workers could or would not understand .
06-20-2015, 10:45 AM   #56
RNGirl
Senior Member
 
Join Date: Dec 2014

My Support Groups:
I understand the stress factor and wanting to quit. If you are in the U.S. You qualify for Family Medical Leave Act. It is your right. I was given hell by our self insured company managing my place of employment as well. I was ready to get a lawyer. Harassment is a better way of putting it. If you have the energy to pursue, talk to your doctor and fill out the FMLA paperwork. You need to work at least 1250 hrs a year I think. You can take about 12 weeks off per year. This just protects your job for you. I'm ticked off at my employer too for allowing this harassment as well. Good luck with this, I don't wish this stress on anyone. Take care☺️
06-20-2015, 11:23 AM   #57
Diver jude
 
Diver jude's Avatar
Thanks RN , I'm in uk,so doesn't apply but glad to hear it's not just me xxx
06-22-2015, 03:17 AM   #58
Toni68
 
Join Date: May 2015

My Support Groups:
Hi I'm a homecare worker with the elderly. I'm currently out sick since last October with all the various crohns related symptoms . The big D is my problem. I just don't know when I'll need to go and that's just impossible to work with when I've to change and shower elderly people.how can I leave someone maybe half dressed or showered because I need the loo and then TMI the smell so so embarrassing. Once I was with a patien and just had to go the next day the ladies daughter told me she arrived an hour after I left and asked did I get a smell from the drains said she was getting someone to check the sewer jeez this is after I scrubbed and bleached the toilet and sprayed everywhere... I could have literally died I was so embarrassed
09-18-2015, 01:31 AM   #59
erinjayee
 
erinjayee's Avatar
 
Join Date: Sep 2015
Location: Victoria, Australia

My Support Groups:
what a wonderful group!!
I am a Acute Medical nurse. I have had crohn's disease since during my training. The bathroom visits, exhaustion, days off, pain that you all talk about definitely impacts on my working life also.
I am however, very lucky to work with an amazing group of people. They are all aware of my condition and being a medical unit are all quite aware of how severe Crohns disease can be. I am often excusing myself from Handover or meetings and everyone just accepts that.
I used to try and force myself back to work after a bout of illness but I have recently learnt that this is an injustice to myself and to my patients. I now happily take the sick leave I need. Or otherwise I just bounce back worse and I am not the good nurse I want to be for my patients.
My current issue at the moment is money! I have run out of sick leave and now have to use my holiday pay. Not the end of the world and we have savings. But it sucks all the same! Not to mention the costs of my healthcare. Specialist appointments, copious amounts of drugs, MRI ($500 ouch).
09-18-2015, 02:35 AM   #60
Toni68
 
Join Date: May 2015

My Support Groups:
Hi erinjee you're lucky you have sick leave as a carer in the community in Ireland such things don't exist so every day you have to take off be it through sickness r any of the numerous hospital visits ,comes out of your holidays first.We r thank god trying to change this.Also there's huge benefits working as teams as in you can call on someone to cover we mostly work on a one to one basis with each client with usually a max time to shower r bed wash and dress and continence care and breakfast of 3 quarters of an hour try fitting a toilet break into that haha
Reply

Crohn's Disease Forum » Support Forum » Healthcare Workers with Crohn's/IBD Support Group
Thread Tools


All times are GMT -5. The time now is 12:25 PM.
Copyright 2006-2017 Crohnsforum.com