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01-28-2014, 12:03 PM   #1
ronroush7
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Cost of Stelara

For those of you who use Stelara, is it very expensive?
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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
01-28-2014, 11:20 PM   #2
Essieluv
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I am not using Stelara. However, I did a quick search for patient assistance programs, and it appears that the company offers a few. Info is on the Stelara website.

Are you currently on Stelara, or are you going to be starting it soon? I'm actually really interested in it's use for IBD. I'm wondering about possibly mentioning it to my GI as a treatment option for myself.
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01-28-2014, 11:40 PM   #3
ronroush7
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I have an appointment with my GI on the 13th of February to talk over the results from my visit with a specialist. One of the recommendations was for me to switch from Remicade to Stelara."

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01-28-2014, 11:42 PM   #4
Essieluv
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Ah, ok. If it's not too much to ask, would you mind keeping me updated on what happens?
01-29-2014, 12:27 AM   #5
ronroush7
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No problem. It is a rare side effect but the Remicade was giving me inflammation of the hair follicles.

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05-30-2015, 11:03 PM   #6
Crohn2357
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For those of you who use Stelara, is it very expensive?
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I wonder about that too.
05-31-2015, 10:30 AM   #7
FrozenGirl
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In Alberta it is 4465.58 per dose. (Not including any pharmacy mark up) So pretty expensive. I did some research when considering this drug (currently I'm trying Remicade and methotrexate) and it is made by the same company as Remicade and they have an assistance program (Bioadvance in Canada) that I'm assuming is very similar to the one for Remicade.
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05-31-2015, 11:38 AM   #8
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Also, it depends of the dose. I have 90 mg, and I think it's that for most of the people with Crohn, but just be careful, because someone who uses Stelera for psoriasis might tell you a smaller cost, because often their dose is 45 mg.

But as it's been said, in Québec, and Canada I suppose, BioAdvance offers a very good assistance program. For the fees but also for the patient. They do a great job.

Do you plan to start Stelara soon or Remicade seems to work so far?
05-31-2015, 11:58 AM   #9
Crohn2357
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I may start stelara. I'm wondering the cost without any insurance. The raw cost of one injection.
06-02-2015, 06:42 AM   #10
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My GI told me it's about 8,000$ (canadian). It's crazy
06-02-2015, 06:54 PM   #11
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I would also check with your insurance. I know that my insurance does not cover Stelara for Crohn's as it is "not approved for the treatment of Crohn's". According to my insurance Stelara is only approved for the treatment of Psoriasis. There is a chance that without fighting with them, they will not approve it for you..
02-16-2017, 05:01 PM   #12
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I may start stelara. I'm wondering the cost without any insurance. The raw cost of one injection.


I was told today one injection was $10,000. by my Dr's nurse. There's no way I can afford that. Loading does after insurance $1400.
02-17-2017, 10:13 AM   #13
my little penguin
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Call the drug company most have copay assistance cards that cover all if not most of the copay
And bring it down to 5-25 dollars

http://www.janssenprescriptionassist...st-assistance#
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02-17-2017, 11:58 AM   #14
ronroush7
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I am on Humira now.
03-02-2017, 07:20 PM   #15
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My doctor wants to start me on Stelara; this is my first biologic. I've been taking Entocort for a while.

I'm on SS disability & have Medicare A, B D.

I just talked to the nurse at the infusion center & she said my co- pay for Stelara is $3,300.00 but that there was an assistance program that would reduce my co- pay to $5- $15 if I qualify.

I just went to the Stelara website & it says patients with Medicare are not eligible for the co- pay savings card.

So what am I supposed to do? Of course I can't pay $3,300 per dose - - who could?

I had gotten my hopes up that I was finally going to get treatment that will make me feel better, & this information just crushes my hopes...

I'm 55 years old & my goal is/was to get the Crohn's under control and get to a point that I felt better & good enough to go back to work, at least part time, hopefully full time!

I know I can't be the only one with Medicare who needs biologic medication. What did you do about the cost & not qualifying for the co- pay assistance because you have Medicare drug coverage?

I would appreciate any experiences &/or advice or suggestions...I feel completely hopeless now of ever getting better.

Thank you,

Dana B
Lufkin, TX
03-02-2017, 07:32 PM   #16
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I'm on Medicare and have united healthcare advantage. I was told it would cost me $1400. for loading infusion and injections cost &10,000. I can't afford that either. I was very disappointed. I have taken three biologic and I'm not on any meds for Crohns at this time. I'm doing ok but I do have active Crohns. Dr is trying to get me approved now for Entyvo.
03-02-2017, 07:35 PM   #17
ronroush7
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I hope your doctor gets you approved

03-02-2017, 07:38 PM   #18
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Thank you and best wishes for you!
03-02-2017, 07:48 PM   #19
ronroush7
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Thanks

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