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Crohn's Disease Forum » Treatment » Humira/Adalimumab » Muscle Weakness With Humira?


02-06-2014, 10:56 AM   #1
Crohnie1992
 
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Muscle Weakness With Humira?

So I've been having really bad muscle weakness, pain, and twinges while taking Humira. Which is obviously a huge pain because when it happens I can barely move. Anyone else have this problem?
06-09-2014, 09:54 PM   #2
Nancye50
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I think I'm starting to have the same. I don't know if it's Humira or Crohn's !
06-11-2014, 09:57 PM   #3
theOcean
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Oh dear, I'm sorry to hear you're experiencing those symptoms! Where are you getting pain? Is it joint pain, or nerve pain?
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Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
07-29-2014, 01:18 PM   #4
Crohnie1992
 
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Oh dear, I'm sorry to hear you're experiencing those symptoms! Where are you getting pain? Is it joint pain, or nerve pain?
I'm getting joint pain, muscle weakness and pain, and then sharp pain in my ribs. I didn't have this problem before starting Humira (I've been on Humira for probably more than a year now). I mean, the Humira put my Crohn's into remission apparently, but... it's causing a bunch of other problems now.
08-05-2014, 06:46 AM   #5
Scaryman
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If you started Humira within the first 3-4 months this is some what normal. Although uncomfortable if you can tolerate it, its worth putting up with it. Unless you have serious reactions stick with it. I personally went through so many issues with Humira at first.
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Diagnosed 2003
5-ASA- failed
Imuran-failed with a strange reaction-paralysis
Remicade- failed with infusion reaction.
Mesalamine-another failure
Entecourt - fail- no help.
currently on Methotrexate 25mg and Humira combo.
Folic Acid Supplement
Hyclosomine,Ultram,vicoden for pain as needed
Extended right Hemocolectomy 5/24/13 Univ.Of Chicago
11/7/13- small crohns ulcer at surgical site (active).
08-05-2014, 09:35 PM   #6
theOcean
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I would definitely let your GI know so they can assess if it's from your Humira or not... if so they may choose to switch you to something else.
08-22-2014, 11:54 AM   #7
Crohnie1992
 
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I would definitely let your GI know so they can assess if it's from your Humira or not... if so they may choose to switch you to something else.
I've told him multiple times and he just goes on and on that he's not going to take me off of the humira and that I need to just suck it up and that if I went off of the humira I would flare up (cause I was one of the most severe cases he's ever seen apparently)

I swear, I almost punched him in the face.

I'm trying to get a referral to a rheumatologist cause I cannot deal with my GI.
08-22-2014, 11:56 AM   #8
Crohnie1992
 
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If you started Humira within the first 3-4 months this is some what normal. Although uncomfortable if you can tolerate it, its worth putting up with it. Unless you have serious reactions stick with it. I personally went through so many issues with Humira at first.
Yeah, the problem is, I've been on it for more than 2 years now. The problems just keep getting worse.
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