- Location
- UK, West Midlands
About me,
I started getting symptoms 2 years ago when I was 15. Constant never ending trips to the bathroom, the pains you get all through your stomach that can't be controlled no matter what pain killers you take, bleeding, sickness ect ect... I have been through multiple tests, so far to no avail. Colonoscopy's, endoscopy's, CT scans, MRI scans, blood tests... I feel like I am going out of my mind. I don't get a day off from my symptoms, I just want to feel like normal for one day! Except I guess this is normal now for me.
I have a Video Capsule Endoscopy booked for the 25th of this month and I feel like it couldn't come sooner! I had one booked for last week but after spending all night throwing up the laxative they gave me to take, I couldn't manage an hour and a half car ride in pain with extreme symptoms so have had to reschedule. I hope this comes back with a result as I am being left in the dark with nothing to halt or steady the symptoms.
I have had such a tough time since the symptoms began, lost all my friends, my family sit round moaning that I'm only "feeling sorry for myself" and the boyfriend had to be talked round after constant arguments because I couldn't leave my house, being told I was "just lazy" everyday killed me inside!
In the last 3 weeks I have massively deteriorated, I have gotten to the point where I am passing out at least twice a day, throwing up daily and not being able to leave my bathroom for fear of the worst. The doctors have done nothing but a blood test after going to the surgery 9 times in 2 weeks. I have massive anxiety after the last 2 years of being forced to go to school and spend the day in their toilets with other girls taking the mick out of me because I had to do more than a wee at school! I have only just in the 2 days been prescribed anti anxiety tablets, which haven't had much affect yet, but I'm hoping will soon.
I'm missing a lot of time at work, I'm scared of losing my job now... but I can't physically get the bus there, I wouldn't make it without a toilet! Not only that but when I'm there I can't spend all day in the loo! It's getting to the point where I can't live my life at the moment, and that's horrible after 2 years. I can't move from the pain most of the time. I'm constantly drained and shattered, I have no energy left and I'm struggling to hold any food down now. I'm living off bread sticks right now and even those are hard to keep down.
Living with a constant condition like this is so hard, and reading your forums I'm so glad I have found this site because many of you have had similar things to me. The advice I have been reading on here is amazing and I will try anything if it gives me a chance of a better, more functional life!
Best wishes to you all with everything each individual is going through.
Thanks, Rose
I started getting symptoms 2 years ago when I was 15. Constant never ending trips to the bathroom, the pains you get all through your stomach that can't be controlled no matter what pain killers you take, bleeding, sickness ect ect... I have been through multiple tests, so far to no avail. Colonoscopy's, endoscopy's, CT scans, MRI scans, blood tests... I feel like I am going out of my mind. I don't get a day off from my symptoms, I just want to feel like normal for one day! Except I guess this is normal now for me.
I have a Video Capsule Endoscopy booked for the 25th of this month and I feel like it couldn't come sooner! I had one booked for last week but after spending all night throwing up the laxative they gave me to take, I couldn't manage an hour and a half car ride in pain with extreme symptoms so have had to reschedule. I hope this comes back with a result as I am being left in the dark with nothing to halt or steady the symptoms.
I have had such a tough time since the symptoms began, lost all my friends, my family sit round moaning that I'm only "feeling sorry for myself" and the boyfriend had to be talked round after constant arguments because I couldn't leave my house, being told I was "just lazy" everyday killed me inside!
In the last 3 weeks I have massively deteriorated, I have gotten to the point where I am passing out at least twice a day, throwing up daily and not being able to leave my bathroom for fear of the worst. The doctors have done nothing but a blood test after going to the surgery 9 times in 2 weeks. I have massive anxiety after the last 2 years of being forced to go to school and spend the day in their toilets with other girls taking the mick out of me because I had to do more than a wee at school! I have only just in the 2 days been prescribed anti anxiety tablets, which haven't had much affect yet, but I'm hoping will soon.
I'm missing a lot of time at work, I'm scared of losing my job now... but I can't physically get the bus there, I wouldn't make it without a toilet! Not only that but when I'm there I can't spend all day in the loo! It's getting to the point where I can't live my life at the moment, and that's horrible after 2 years. I can't move from the pain most of the time. I'm constantly drained and shattered, I have no energy left and I'm struggling to hold any food down now. I'm living off bread sticks right now and even those are hard to keep down.
Living with a constant condition like this is so hard, and reading your forums I'm so glad I have found this site because many of you have had similar things to me. The advice I have been reading on here is amazing and I will try anything if it gives me a chance of a better, more functional life!
Best wishes to you all with everything each individual is going through.
Thanks, Rose
