I'm so glad that I found this site! I finally feel like I've found someone else out there who might understand what I'm going through.
My story (so far...):
In the beginning of December 2013 I started having some bad nausea, light-headedness and a little bit of vomitting. I am a nurse at a multi-specialty doctor's clinic so I talked to my PCP and he decided to put me in the hospital as outpatient overnight to give me some fluids and see if there was something going on with me. The next day I felt somewhat better and was anxious to get out of the hospital so I asked him if I could go home since nothing was really found. He agreed, I went home, and that's when everything started...
About 3 hours after getting home I went to the bathroom and had some diarrhea. After the first episode I litterally sat on the pot for about 3 hours because I thought I was needing to go but couldn't. And then the horrible stomach pain hit me. I finally called my mom and had her take me back to the ER. After a CT scan of my abd. they said I had an ileus and possibly some type of colitis. They kept me in the hospital 8 days on IV fluids, IV antibiotics, oral antibiotics, pain meds, IV steriods and antiemetics. Every day I just sat there waiting for some kind of news, but nothing. Finally I asked my PCP again to let me out because I felt like I was just sitting there with no progression. He reluctantly agreed and set me up to see a GI specialist 2 days after my dismissal.
That night after getting out of the hospital I started a GI bleed. I decided not to go back to the ER because I didn't want to be "stuck" in my little rural hospital again for 8 days with no progression. Luckily I didn't lose too much blood and was able to see my GI the next day. He then ordered a colonoscopy which lead to my Crohn's diagnosis.
So far I've been on Asacol, which worked good but I couldn't afford. Then Lialda, which didn't work. Imuran, which we think I might have had some side effects to (nausea and vomitting). And now he's thinking about Cimzia or Remicade. I've been on Prednisone 40mg daily since leaving the hospital in December, and it's done aweful things (side effect wise) to me, but my GI won't take me off of it yet.
I've also been newly diagnosed with Diabetes Type 2. And I have suffered from Biopolar Disorder since I was young. (Both of these things making it even harder to deal with my Crohn's!)
I'm excited that I can come to a place now where people will understand me better. It's hard at home when my boyfriend and children don't understand what I'm going through. Even my boss (who is a nurse also) doesn't understand the pains and sickness I go through right now. It's very frustrating!
Jen
My story (so far...):
In the beginning of December 2013 I started having some bad nausea, light-headedness and a little bit of vomitting. I am a nurse at a multi-specialty doctor's clinic so I talked to my PCP and he decided to put me in the hospital as outpatient overnight to give me some fluids and see if there was something going on with me. The next day I felt somewhat better and was anxious to get out of the hospital so I asked him if I could go home since nothing was really found. He agreed, I went home, and that's when everything started...
About 3 hours after getting home I went to the bathroom and had some diarrhea. After the first episode I litterally sat on the pot for about 3 hours because I thought I was needing to go but couldn't. And then the horrible stomach pain hit me. I finally called my mom and had her take me back to the ER. After a CT scan of my abd. they said I had an ileus and possibly some type of colitis. They kept me in the hospital 8 days on IV fluids, IV antibiotics, oral antibiotics, pain meds, IV steriods and antiemetics. Every day I just sat there waiting for some kind of news, but nothing. Finally I asked my PCP again to let me out because I felt like I was just sitting there with no progression. He reluctantly agreed and set me up to see a GI specialist 2 days after my dismissal.
That night after getting out of the hospital I started a GI bleed. I decided not to go back to the ER because I didn't want to be "stuck" in my little rural hospital again for 8 days with no progression. Luckily I didn't lose too much blood and was able to see my GI the next day. He then ordered a colonoscopy which lead to my Crohn's diagnosis.
So far I've been on Asacol, which worked good but I couldn't afford. Then Lialda, which didn't work. Imuran, which we think I might have had some side effects to (nausea and vomitting). And now he's thinking about Cimzia or Remicade. I've been on Prednisone 40mg daily since leaving the hospital in December, and it's done aweful things (side effect wise) to me, but my GI won't take me off of it yet.
I've also been newly diagnosed with Diabetes Type 2. And I have suffered from Biopolar Disorder since I was young. (Both of these things making it even harder to deal with my Crohn's!)
I'm excited that I can come to a place now where people will understand me better. It's hard at home when my boyfriend and children don't understand what I'm going through. Even my boss (who is a nurse also) doesn't understand the pains and sickness I go through right now. It's very frustrating!
Jen
oo::welcome:Welcome to the forum Jen! We are happy to have you. Tons of info on here 