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Crohn's Disease Forum » Your Story » An alternative approach/My story


02-22-2014, 01:40 PM   #1
SAHM
 
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An alternative approach/My story

Here is my story:
I am 46. Married. I gave birth to 3 boys. By age 41, I was bleeding and I thought I had hemorrhoids. So I had a colonoscopy. I do have hemorrhoids. I also had some type of IBD. The surgeon said it was most likely Crohn's. I had read about the blood type diet, and dabbled in it before, but when the going got tough. I went back to it and got serious.

My oldest son had a rash that no doctor's could figure out. He got it when he was 1 and a half. It was awful. Bubbles. Itchy and everywhere except in his diaper. I took him to Johns Hopkins and many other doctors, allergist, dermatologists. No help. Took him off dairy. Nope, didn't work. When he was 8, I met someone who had Celiac, and I decided to try taking him off gluten. (one of my clues was that when he played with Play-doh he got the rash (main ingredient in Play doh? wheat.) Bye-bye rash. He also still gets it, but not as badly, when he eats dairy. He's 16, so, sometimes he eats dairy and deals with the rash.

Now my youngest son has Crohn's disease. The doctor has him on prednisone, and now wants him on Imuran. I just made him an appt with the BTD naturopaths in Bridgeport, CT.

His story? He was an irritable, willful, (but happy and active) child growing up, but I thought it was just bc he was the baby of the family. In second grade, he started having discipline problems in school. Since I had gone off of gluten to be in alliance with my older son, and found that I didn't feel this inner irritability anymore that I had always had, and bc his brother improved emotionally (less weepy) as well as in terms of his rash, I took this one off of gluten. Voila! No more outbursts or temper tantrums. And he could tell the difference in how he felt. But now, at 12, I was looking back at a kid who had missed more school for belly aches than seemed normal, so the next time he wanted to stay home, I went to the doc to check it out. Doc ordered an xray, blood tests, and said to feed him gluten for 3 weeks so he could do a celiac test. I said, "bad idea," but did it anyway on urging from Doc, husband, and kid who really wanted real mac n cheese, pizza, and donuts. Within a few days, this happy go lucky, active kid was not feeling well. Within a week, he was curled up on the couch in pain. I stopped feeding him gluten. Doc put him on Cipro and Flagel. One week later, endoscopy and colonoscopy and biopsies indicated Crohn's Disease. Genetic test cam back negative for Celiac. So, I started feeding him wheat...Ha! As if!!!!!

So, I will let you all know how the appt with the BTD people goes. I am hopeful. They have a more intricate testing procedure now that goes beyond just blood typing to find out how an individual can eat for their own personal health. Maybe a bunch of hooey? Maybe, but so far, so good.


yes, The Blood Type Diet is tough diet to be on (boy do I miss my mochas and a good dark beer (UBU - yum!!!), but I figure, losing my colon is a lot tougher. I have cut out coffee, gluten, corn, white potatoes, strawberries, legumes, and dairy (among other things if you want to get into details, get the book). I do have chocolate (I switched from milk to dark), butter, and I make my own chocolate chip cookies. I do use the gluten free flour that contains tapioca and potato starch, but I add almond or walnut flour to it, so I don't have too much of it. Green leafy vegetables, beef, fish, almonds and walnuts, avocado, blueberries and bananas....and let me say that you have to pay attention to how things effect you.

The book "Live Right for your Blood Type" says I should have green tea, but I find that any caffeine (beyond what I get in chocolate, bc I refuse to give it up) causes constipation discomfort for me. The book is merely a very helpful guideline. We are all different. It just gives you a jumps start. Do you need the supplements? I didn't buy them until recently, so no. My GI doc recommended vit D, iron, and calcium, plus ground flax seed. So I have taken those. But the biggest reason why I support this diet is because of this: I was bleeding from my rectum. I went to a doc for a colonoscopy thinking I just had hemrrhoids. He told me that he was pretty sure I had Crohn's. The next day, I went strict on the BTD, and the bleeding was gone within a week. Any time I go off the diet, I get bleeding. Since then, I have been diagnosed with Ulcerative Colitis, and my last colonoscopy was clean.
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02-22-2014, 04:29 PM   #2
Nancye50
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Wow, I'm new to all of this and learning about all the different diets. Congrats on finding one that's been so successful for you!


02-23-2014, 01:54 AM   #3
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Thank you...I am trying to find some other people who have at least tried to go gluten free for their Crohn's Disease. I am trying to help my son, who was just diagnosed. The biggest thing that upsets me is that he wasn't that sick when I took him to the doctor. Then they told me he had to eat gluten. He got sicker. Then they put him on two heavy antibiotics, he got even sicker...then they put him on prednisone, and I see him only progressing slightly, yet having side effects to his demeanor at the very least. I feel helpless and stupid. If I had just not listened to the doctors, he might be fine right now.
02-23-2014, 01:55 AM   #4
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btw, my own GI doctor supports the GF diet, and has gotten many of his patients off of their meds with a gluten free diet. He is a rare find it seems! I might have to go to him next week and beg him to take my 12 yr old. He is not a pediatric GI...
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