- Location
- chapman, kansas
I'm scheduled march 5th to divert the lower 35 cm or so due to my bum/colon being stubborn and drug resistant. I have a peri rectal fistula also. The concept GI and surgeon said was to divert the fecal stream and let it heal then reverse the stoma. After my perianal disease is controlled they will do surgery to fix the fistula. I'm ready to get my life back somewhat. The surgeon said I would be able to run again after I heal. Something I've had to give up 2 years ago in attempt to give my colon a break.
I was told that this surgery has a chance of not working. They can't connect good to bad. Then the surgery to make the stoma permanent. I understand. I asked what success rate he has seen and he said about 80%. I haven't had much success with drugs. There are no other options and this surgery is a last resort. I was scheduled for j pouch at mayo clinic oct 2012 and the surgeon cancelled the day before the surgery and changed my diagnosis to crohns. I now feel he saved my life. Lots of anxiety to work through on that one!
I'm anxious about acceptance of others and the impact the stoma will have on my life. Why am I so vain if this is supposed to make me feel so better. Its been 2.5 years of no remission. Maybe to hear some success stories?
Jill
current meds cimzia, vit d, senna, mirilax
failed meds colazal, remicade, humira, methotrexate, was steroid dependant, numerous antibiotics,
I was told that this surgery has a chance of not working. They can't connect good to bad. Then the surgery to make the stoma permanent. I understand. I asked what success rate he has seen and he said about 80%. I haven't had much success with drugs. There are no other options and this surgery is a last resort. I was scheduled for j pouch at mayo clinic oct 2012 and the surgeon cancelled the day before the surgery and changed my diagnosis to crohns. I now feel he saved my life. Lots of anxiety to work through on that one!
I'm anxious about acceptance of others and the impact the stoma will have on my life. Why am I so vain if this is supposed to make me feel so better. Its been 2.5 years of no remission. Maybe to hear some success stories?
Jill
current meds cimzia, vit d, senna, mirilax
failed meds colazal, remicade, humira, methotrexate, was steroid dependant, numerous antibiotics,