Hello! I've been poking around the forums since I started the diagnosis process two years ago, and thanks to my recent rough patch I finally decided to join. I'm a senior in high school, and I'm more than frustrated with this disease right now.
For as long as I can remember, I've always been that kid with the super-sensitive stomach. We just always assumed that's all it was, until I hit my first really bad Crohn's flare. Living on the toilet, bleeding, weight loss (I think my weight went from 80-something to 60-something pounds), the whole nine yards. Saw a GI, went through uber-fun tests, and got diagnosed with Crohn's. That was two years ago, and thankfully things improved after that. I've been on Remicade since diagnosis, and I've gone through bouts of Asacol and Prednisone during flares. Aside from a few bumps, things weren't too bad.
And then a month or so ago the bleeding came back with a vengeance, accompanied by random and horrible abdominal and pelvic pains. Thought it was a UTI, nope. Nephrologist thought it was crystals in my urine, nope. I just had an MRI done last week, and my GI thinks the inflammation in my colon got bad again. I had my Remicade levels checked and everything there was fine, but now he wants to possibly change around medications, because Remicade might have run its course. Sooo... two years later and I'm practically back to square one. I'm frustrated and tired, and I really just want one good, solid, definite answer to everything. But doesn't everyone?
I came here because I've read so many threads and seen so much support already, and I could definitely use some of that right now. It's hard for me to really talk to people about this, because I hate giving other people more to worry about. I'm hoping that everything settles down soon, and that I maybe find some answers here. Thank you for reading!
For as long as I can remember, I've always been that kid with the super-sensitive stomach. We just always assumed that's all it was, until I hit my first really bad Crohn's flare. Living on the toilet, bleeding, weight loss (I think my weight went from 80-something to 60-something pounds), the whole nine yards. Saw a GI, went through uber-fun tests, and got diagnosed with Crohn's. That was two years ago, and thankfully things improved after that. I've been on Remicade since diagnosis, and I've gone through bouts of Asacol and Prednisone during flares. Aside from a few bumps, things weren't too bad.
And then a month or so ago the bleeding came back with a vengeance, accompanied by random and horrible abdominal and pelvic pains. Thought it was a UTI, nope. Nephrologist thought it was crystals in my urine, nope. I just had an MRI done last week, and my GI thinks the inflammation in my colon got bad again. I had my Remicade levels checked and everything there was fine, but now he wants to possibly change around medications, because Remicade might have run its course. Sooo... two years later and I'm practically back to square one. I'm frustrated and tired, and I really just want one good, solid, definite answer to everything. But doesn't everyone?
I came here because I've read so many threads and seen so much support already, and I could definitely use some of that right now. It's hard for me to really talk to people about this, because I hate giving other people more to worry about. I'm hoping that everything settles down soon, and that I maybe find some answers here. Thank you for reading!
