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Crohn's Disease Forum » Treatment » Remicade/Infliximab » Where/when do you get your Remicade?


03-21-2014, 12:34 PM   #1
copeland
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Join Date: Sep 2009
Location: Asheville, North Carolina

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Where/when do you get your Remicade?

I've gotten my infusions in several places over the last 10 years. My first were in an infusion center attached to a doctor's office. Most since then have been outpatient hospital sorts of things.

I will probably go back on Remicade soon, and I'm looking for a place to do it in my new(ish) home of Asheville, NC. I prefer not to talk about Crohn's at work if at all possible, partly just because I don't share that with everyone and partly because of a lot of the horror stories I've read here about how some employers act (I wouldn't expect mine to be very bad, but still). So... I'm looking for a way to do my infusions on nights/weekends.

None of the hospitals here in town has an infusion center that's open on weekends, but I do know of one that does them in Greenville, SC (about an hour long drive). Since it's only every 8 weeks, I think I could do that trip 6 times a year.

A friend who has another condition for which she gets very frequent infusions (several a week) said she works with a service that has a nurse come to her house and give her infusions. Has anyone done that? I think it might be a little weird doing it at home, and I actually kind of enjoy having some company as I get infusions like you get in an infusion center (or at least people to watch).

Also, Greenville is pretty cool, so maybe I'll just decide that making a little excursion every 8 weeks isn't so bad.
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27 years old, Crohn's since I was 16 or 17.
03-21-2014, 02:19 PM   #2
rrhood1
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Join Date: Oct 2013
Location: Didsbury, Alberta

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In Canada we can get our infusions either at the hospital or a private infusion clinic. I love the clinic I go to - large lazyboy chairs, TV, movies, snacks. I spend 3 hours just relaxing, sleeping with no phones, no worries. I hope you can find something like that - maybe the Remicade site has some information on infusion clinics in your area. Take care!
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Alison

Dx: Crohns - 2010
Dx: Severe cervical spondylosis/foraminal stenosis, ruptured discs
Dx: Severe lumbar ruptured discs
Dx: thyroid cancer - 2 surgeries - done with
Rx: Remicade, Methotrexate, Sulfasalazine, Lyrica
Vitamin D, C, B, calcium
03-21-2014, 02:21 PM   #3
rrhood1
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Join Date: Oct 2013
Location: Didsbury, Alberta

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I just checked the site and they have a support group that you can contact about locations for infusion. Remicade.com. Hope this helps.
03-21-2014, 02:32 PM   #4
araceli
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Join Date: Nov 2012
Location: El paso, Texas

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You can get your infusion at the oncology center, I will not be comfortable doing it at home, in case of an allergic reaction.
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Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
Supplements
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
03-21-2014, 10:32 PM   #5
ThanksP
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Join Date: Mar 2010
Location: Costa Rica
When I lived in the US, I went to a clinic and sat with three other patients in a small room with no tv, no internet, and no blankets.

Now that I live in Costa Rica, I receive my infusion as an inpatient at a hospital. I have my own room, get two meals of my choice, and have wifi and cable tv. I enjoy getting my infusion…it's like a mini vacation.
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