]Hello...I wanted to do a short intro to who I am and would love to be a vital part of helping each other
with Crohn's.
You will not see me capitalize crohns ever again for I give it no power...not even dignity in print. So there!
I was diagnosed at 17 after 1 solid year of misdiagnosis.
I would have died if not for my beloved uncle who drove me to Lenox Hill Hospital in NYC.
After getting my last rights..really...it was discovered I had crohns...illeitis... to be exact.
I was kept at said hospital for a total of 3 months and survived. It has been a daily battle with this war and no winners yet...but everyday I get through is a battle won and I know there's many more ahead.
I am allergic to sulphur...all derivitives. I have tried every drug..med...manufacturer...for 38 yrs. Remicade was my winner for 2 yrs. but sadly quit the fight. I am now on humira inj. every 10 days fr every 14. It has worked for 4yrs and my flare ups, exacerbations, have been workable. Three yrs since my last hospitalization and now here I sit in a new one with a severe obstruction that is as resilient and overpowering as my dear mom.
So I have much to talk about and as an old pro with crohns I can help give some thoughtful advice.
***I am also a nurse and counselor as well as a single parent..married / divorced 3x...(3 for 3) and happily single with 3 of my 5 kids still at home.
Just wanted to ad....this is not a disease for the fainthearted. We are all warriors in this war and each battle we conquer only strengthens us for the next. We need to spread the word about crohns and Make people get what we suffer through everyday holistically as this disease affects every part of us not just our bowels.
Be strong..be brave and do your homework. Its your disease so get your ammunition against it and knowledge is the most powerfully effective of all.
Look forward to talking with you all. Peace and keep up the good fight! We are victorious if only in mind!
.
with Crohn's.
You will not see me capitalize crohns ever again for I give it no power...not even dignity in print. So there!
I was diagnosed at 17 after 1 solid year of misdiagnosis.
I would have died if not for my beloved uncle who drove me to Lenox Hill Hospital in NYC.
After getting my last rights..really...it was discovered I had crohns...illeitis... to be exact.
I was kept at said hospital for a total of 3 months and survived. It has been a daily battle with this war and no winners yet...but everyday I get through is a battle won and I know there's many more ahead.
I am allergic to sulphur...all derivitives. I have tried every drug..med...manufacturer...for 38 yrs. Remicade was my winner for 2 yrs. but sadly quit the fight. I am now on humira inj. every 10 days fr every 14. It has worked for 4yrs and my flare ups, exacerbations, have been workable. Three yrs since my last hospitalization and now here I sit in a new one with a severe obstruction that is as resilient and overpowering as my dear mom.
So I have much to talk about and as an old pro with crohns I can help give some thoughtful advice.
***I am also a nurse and counselor as well as a single parent..married / divorced 3x...(3 for 3) and happily single with 3 of my 5 kids still at home.
Just wanted to ad....this is not a disease for the fainthearted. We are all warriors in this war and each battle we conquer only strengthens us for the next. We need to spread the word about crohns and Make people get what we suffer through everyday holistically as this disease affects every part of us not just our bowels.
Be strong..be brave and do your homework. Its your disease so get your ammunition against it and knowledge is the most powerfully effective of all.
Look forward to talking with you all. Peace and keep up the good fight! We are victorious if only in mind!
.
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