04-02-2014, 04:02 PM   #1
JodeZed
 
Join Date: Mar 2014

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New here

Well I'm new here... had crohns for 14 years.. been on steroids on numerous occasions, elemental diets, pentasa but azathioprine kept it calm for the longest before surgery.. which unfortunately only left me pain free for a year so I was back on azathioprine.. I have started humira and 4 months on I'm starting to feel better. I don't personally know anyone with crohns and its been a struggle over the years so that's why I'm here now.. would like to know about anyone on humira and there story too..
04-02-2014, 07:05 PM   #2
DJW
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Join Date: Jul 2013
Location: Ontario

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Hi and welcome.
__________________
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

Living in Ontario with no drug benefits?

Trillium Drug Program:
http://www.health.gov.on.ca/en/publi..._trillium.aspx

Dave
04-02-2014, 07:06 PM   #3
sickofcrohns
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Join Date: Aug 2012
Location: Toronto, Canada
Hi JodeZed,

Welcome to the forum. Where are you? There are people on here from all over the world.
04-03-2014, 12:35 PM   #4
Ali29
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Join Date: Mar 2014
Location: Texas

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Hi JodeZed,

There is a Humira Support Group on this Forum. You can find it under the Support Groups Tab. Hopefully that can give you some more information. I have joined several Support Groups and it has been very helpful.

Hope you feel better!
__________________
Diagnosises - Mast Cell Activation Disorder, IBD Small Intestine-duodenum-villi blunted, Bile Acid/Fat Malabsorption, Chronic nausea-vomiting/pain, esophageal dismotility, mucosal edema, acid hypersecretion, Lymphocytic Colitis, Ocular Migraines, gallbladder removed

Current Meds: H1 H2 Anti Histamines, PPI, Enteragam, Lomotil, Phenergan, Percoset

Meds that did not work: Pentasa, Lialda, Zenpep, Entocort EC, Carafate, Elavil, Lotronex, Desipramine, Questran/Welchol severe bloating/pain.
04-03-2014, 01:22 PM   #5
theOcean
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Join Date: Jan 2014
Location: Toronto, ON, Canada

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I've been on Humira since last November! It's really helped me, especially with my fistula. That was the main reason my GI wanted me on it. I inject once every week.

Welcome to the forum! I hope you can get the support you want from here.


__________________
Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
05-21-2014, 03:39 PM   #6
JodeZed
 
Join Date: Mar 2014

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Hi all. Still getting used to this! Thank you for your support! Starting to feel like Humor a is helping but had a stressful few weeks and I'm getting a bit of pain but that is the joy of crohns, stress is not good. X
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