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04-19-2014, 12:57 PM   #1
farfalle5
 
Join Date: Oct 2012
Location: ft.lauderdale, Florida
Humira update

Hello to all and hope all is well,
My daughter started the Humira two months ago and is doing fantastic!
For those of you who are afraid to try it I just thought I would let you know.
No other med was helping my daughter and we tried everything except the Remicade. It is very painful but I keep telling my daughter it is working and now she is off the prednisone maybe she will grow(she is very tiny).
Hope this helps!!!
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Julia mother of Maddie

Daughter (8 years old)
Dx- Crohn's January 2012
04-19-2014, 02:22 PM   #2
theOcean
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Location: Toronto, ON, Canada

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Glad to hear that Humira is helping your daughter! I know that it's done wonders for me, too.

Have you tried any methods to help numb the injection site beforehand? I know I've seen people on this forum give recommendations for it before, for people who are afraid of the pain.
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Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
04-19-2014, 05:32 PM   #3
DustyKat
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Location: New South Wales, Australia
Thanks for the fab update Julia!

I am so happy for you and your lass that all is going well, YAY!



Dusty. xxx
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Mum of 2 kids with Crohn's.
04-19-2014, 06:31 PM   #4
Maya142
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So glad it's working!
In terms of making the shot less painful, we iced both before and after the shot.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
04-19-2014, 07:49 PM   #5
my little penguin
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on the drug working.

WE add lidocaine to umbra to lessen the pain of the shot- big difference.
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DS - -Crohn's -Stelara
04-19-2014, 08:37 PM   #6
farfalle5
 
Join Date: Oct 2012
Location: ft.lauderdale, Florida
WE add lidocaine to umbra
how do I get the lidocaine and what is umbra?
Thanks in advance
04-19-2014, 08:43 PM   #7
Clash
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I think MLP meant that they are prescribed lidocaine to add to the humira to lessen the pain of the shot, right my little penguin.
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Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
04-19-2014, 11:03 PM   #8
my little penguin
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Sorry autocorrect on my phone.
DS's Rheumo prescribed lidocaine to be added to the humira syringe for DS to reduce the pain.
It doesn't take it away but it does make it bare able per DS.
It is common practice for jra kids to use humira that has lidocaine in it.
I draw up lidocaine in one syringe then add it to the humira syringe then inject per the docs instructions.
04-19-2014, 11:04 PM   #9
my little penguin
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https://acr.confex.com/acr/2008/webp...Paper3820.html

Discussed above
04-22-2014, 11:38 AM   #10
polly13
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So glad it's working
04-22-2014, 04:45 PM   #11
Jenn
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Join Date: Jul 2011
Location: San Diego, California
Humira is still working for my son, 2 years 2 months now.
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Jennifer ~ son dx at age 8, Sep 2010
currently on Humira, Feb 2012+, MTX (15mg) Aug 2017+, folic acid
past use: 6mp for Sep 2010-Apr 2011 (not effective enough), then Remicade April 2011-Dec 2011 (built antibodies); additional 6MP Aug 2012-Sep 2013; Periactin for appetite Sep 2010-Sep 2013
other: Centrum chewable multi; calcium-vitD;
Derma-Smoothe for psoriasis rashes; Alrex, Zaditor eye drops for vernal conjunctivitis; history of asthma, ear infections
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