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04-20-2014, 04:30 PM   #1
keuka17
 
Join Date: Apr 2014
Location: Troy, New York

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Newbie

Hi. Although I have been diagnosed with Crohn's for over a decade, I'm just jumping into a support group. I am going through a flare up right now that has left me miserable. This time not only am I having gut issues but my biliary system is involved. I have had tons of pain. I have been out of work since the beginning of March. I have never had to take extended time off of work before. I'm also a wife and mom. My daughter is almost 12 and has been a wonderful helper. My husband is trying really hard to be supportive. Right now I'm on prednisone, lialda, and remicade plus pain and nausea meds as needed. Waiting on the results of my recent colonoscopy and have a capsule endoscopy scheduled for Tuesday. I'm very happy to have found this forum!
04-20-2014, 04:36 PM   #2
theOcean
Moderator
 
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Join Date: Jan 2014
Location: Toronto, ON, Canada

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Welcome to the forum! I hope you find the support you need here. I'm glad to hear that your family has been such a good support for you, and hope that you get some helpful results from the colonoscopy and endoscopy.
__________________
Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
04-21-2014, 07:43 PM   #3
littlefreebird
Senior Member
 
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Join Date: Jun 2011
Location: belfast, United Kingdom

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welcome to the forum! how long ago did you start the remicade? its a great drug that does wonders for many people, if you are new to the drug hopefully it starts to give you some relief soon! I was on it myself for 6 years. the main thing you need to do right now is just to use this time off work to get rest and focus on yourself. I spent all my flares worrying about work and partner/ family and everything else but me. all the best on your test results.. please keep us posted!
Hannah x
__________________
"We're all in the gutter, but some of us are looking at the stars."

Crohn's since 2000 (aged 10)--> full colon & rectum removal 2011.
04-21-2014, 08:33 PM   #4
Ali29
Senior Member
 
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Join Date: Mar 2014
Location: Texas

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Welcome, the Capsule Endoscopy what was the final test that determined where the Crohn's had really damaged. Good luck!!

This forum has been a mental life saver for me. I have learned so much and have received so much support. I'm on here several times a day learning/offering support for everything everyone is going through - all cases are so different - so much to learn!
__________________
Diagnosises - Mast Cell Activation Disorder, IBD Small Intestine-duodenum-villi blunted, Bile Acid/Fat Malabsorption, Chronic nausea-vomiting/pain, esophageal dismotility, mucosal edema, acid hypersecretion, Lymphocytic Colitis, Ocular Migraines, gallbladder removed

Current Meds: H1 H2 Anti Histamines, PPI, Enteragam, Lomotil, Phenergan, Percoset

Meds that did not work: Pentasa, Lialda, Zenpep, Entocort EC, Carafate, Elavil, Lotronex, Desipramine, Questran/Welchol severe bloating/pain.
04-22-2014, 05:05 AM   #5
Lisa
Adminstrator
 
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Join Date: Apr 2010
Location: New York

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Welcome to the forum! Sorry to hear you haven't been doing well, how things get sorted out for you. I'm not that far from you, do you go to Albany med or somewhere else? My gi is at amc, was just there yesterday for my remicade!
__________________

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
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