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04-20-2014, 04:49 PM   #1
Okitsme
 
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Still lurking!

Hello all,

Been a while since I have been on here. Thought I would give an update though:

Well I stopped seeing my gi because I was starting get the idea he thought everything I was going through was in my head by giving me medication they give amputees to deal with phantom pain of the lost limb.

Silly I know but I just wanted to carry on with my life because there was obviously nothing he could do for me.

Still have the normal things I had before like abdominal pain (sometimes severe enough for me to go a&e). Painful wrists, so much I can't bend them. On and off D but only three times a day. My son was born in September last year and to date I have lost 22lbs, although I assume it's because of a new baby. I have started to get very lethargic, feeling weak and tired at times. This normally happens when I am walking around town and sometimes need to just come and sleep.

I know only a doctor can diagnose me so really don't expect anyone on here to do it lol . Just starting to feel down again because this is starting to suck again lol

Chat soon everyone.
04-20-2014, 04:51 PM   #2
theOcean
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What medication did he give you? Is it possible you can find another GI, who would hopefully treat you better?
__________________
Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
04-20-2014, 04:51 PM   #3
Okitsme
 
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Forgot to mention something else....

Even in winter lying with an open window above me I was still waking to a soaked bed. I seem to sweat for any reason at night.
04-20-2014, 04:59 PM   #4
Okitsme
 
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For the life of me I cannot remember the name. There were as the first made me into a zombie lol
04-20-2014, 05:00 PM   #5
nogutsnoglory
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I'm sorry to hear you have a dismissive doctor. What leads you to believe it's crohns? It certainly sounds like something is wrong but maybe a general doctor can help figure out which specialist to see.

04-20-2014, 05:00 PM   #6
theOcean
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Oh gosh, that sounds awful, then! I'm sorry you had to deal with that.

I've heard some people on the forum recommend a medication called Levsin, and when they use it they stop getting night sweats.
04-21-2014, 09:39 AM   #7
Okitsme
 
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I'm sorry to hear you have a dismissive doctor. What leads you to believe it's crohns? It certainly sounds like something is wrong but maybe a general doctor can help figure out which specialist to see.
The doctor originally thought I had as did a colonoscopy and I was ulcerated. The biopsie came back showing I had a parasite when has been dealt with but my symptoms still persist. Believe I do hope it isn't crohns but it's depressing when the doctor looks as confused as you are.
04-21-2014, 09:45 AM   #8
nogutsnoglory
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You shouldn't hesitate to seek out another doctor for a consultation if this one can't provide answers.

05-07-2014, 03:33 PM   #9
Okitsme
 
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Hello all,

Had my first MRI today after seeing my gi again. Seems to have gone well. Will see him again next week to get my results.

Take care everyone.
05-17-2014, 05:51 PM   #10
Okitsme
 
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Hello all, got the results from my MRI, it's showed thickening in various places. My bloods were slightly low but nothing exceptional. So now I have a colonoscopy booked for Friday next week to get some biopsies.

On Friday morning I woke up with a fever, cramping and muscle aches, today the fever is gone but the cramping is still going. I am so tired of feeling ill, it feels (drama queen) like I will never feel normal again.

Well that's my update.
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