Crohn's Disease Forum » Tests for IBD » Amount of years between Colonoscopies

04-24-2014, 01:19 AM   #1
Cross-stitch gal
Cross-stitch gal's Avatar
Join Date: Dec 2011
Location: Vancouver, Washington

My Support Groups:
Amount of years between Colonoscopies

I was wondering how often you guys have been told that you need a colonoscopy. Have you been told every 3 years or every 5? My original GI told me that I need one every 3 years. But, I'm finding out every time I turn around that this new insurance does things a bit differently than what I grew up with. I see my GI in about 3 weeks and will be asking him the same thing. But was hoping you guys might tell me what you've heard as well.

Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday

UP Support Group
04-24-2014, 01:32 AM   #2
theOcean's Avatar
Join Date: Jan 2014
Location: Toronto, ON, Canada

My Support Groups:
I've been told every three. I had my first in 2011 and my second in 2014.
Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
04-24-2014, 03:49 AM   #3
Droopy Drawers
Senior Member
Droopy Drawers's Avatar
Join Date: Feb 2011
Location: New York

My Support Groups:
Every other year for me
04-24-2014, 04:05 AM   #4
Super Moderator
afidz's Avatar
Join Date: Jun 2012
Location: Mckinney, Texas

My Support Groups:
I think while you are flaring you should have one at least every year, and then after that I think its suggested every 2 or 3.
Crohn's since 2007
15 Abdominal Surgeries since 2008
Severe Non-repairable abdominal hernia
Ankilosing Spondylitis
Inflammatory Arthritis

Failed meds:
Asacol HD
04-24-2014, 04:22 AM   #5
Cross-stitch gal
Cross-stitch gal's Avatar
Join Date: Dec 2011
Location: Vancouver, Washington

My Support Groups:
Ouch Droopy! afidz, I guess that I can understand having one that often if you're constantly in a flare. I think mostly for the question is that so much is different with this insurance of mine from what I originally was used to that I'm starting to question of what's the real normal and what I grew up with.

If I'm correct, in 2015 I will have my next colonoscopy. Because I switched insurance last year I can't remember if this will be #4 or #5 for me.
04-24-2014, 05:57 AM   #6
Lisa's Avatar
Join Date: Apr 2010
Location: New York

My Support Groups:
Yearly when flaring, right now every other also depends on how long you have had your disease, because the risk of of other complications increases.....

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
04-24-2014, 05:12 PM   #7
Senior Member
poopaholic's Avatar
Join Date: Jan 2011
Location: under dark cloud

My Support Groups:
I had two last year and before that I was getting them about every 10 months or so . I haven't been able to skip a year for about four years . Luckily I get my treatment at the Veteran's hospital so insurance is not an issue. I am finally feeling well . I am going to request to skip this year , barring no health complications . So to answer your question my answer would be too often .
04-24-2014, 08:43 PM   #8
Senior Member
Essieluv's Avatar
My GIs have always said every other year, although I've had more than that just because I always have issues. I do know of some people who go 7+ years without a scope, and these are people who have IBD Kinda jealous, ha.
Meds that failed me: Remicade, Humira, Cimzia, Entocort.

Waiting for a cure!
04-24-2014, 08:47 PM   #9
nogutsnoglory's Avatar
Join Date: Sep 2009
Location: New York

My Support Groups:
I have at least one a year sometimes two if things are very bad.

04-24-2014, 09:26 PM   #10
Senior Member
Lam123's Avatar
I'm every 3. Unless I'm having issues, then sooner. Depending on situation.
Crohns for 26 years
Previous meds: Pentasa, Imuran
Current meds:
Humira weekly
- multi vitamin and vitamin D
- B12 shots monthly
Mother of one beautiful boy and a puppy! 👪🐶Happily married to an amazing and patient man, that I call my best friend❤️I'm just living life one day at a time and trying to figure out this crazy disease! 🍀🌞⭐️
04-26-2014, 11:09 AM   #11
RenGen's Avatar
Join Date: Apr 2014
Location: Wisconsin

My Support Groups:
I was told every 7 years.
04-26-2014, 11:30 AM   #12
Senior Member
Samboi's Avatar
Join Date: Jan 2012
Location: Australia

My Support Groups:
Every two years for me.
But I always end up having them more frequently.
And I'm ok with that.
Dx - Crohns Disease - 1992
Ileostomy - Jan 2012, Reversed Aug 2013
Pred works, all else seems to fail
Filgotinib trial Jan 2018
04-26-2014, 12:26 PM   #13
Senior Member
highlandsrock's Avatar
Join Date: Jun 2012
Location: Surrey, United Kingdom

My Support Groups:
After my reversal operation (June 2011) the GI consultant wanted me to have a colonoscopy after 6 months, to see how the join was going, and then yearly. However because they both showed clinical remission we substituted a calprotectin test for the colonoscopy that was due December 2013. (Research has shown that there is a good correlation between calprotectin results and what is found with a scope)

This is a win-win situation. The calprotectin test costs the NHS a lot less than a colonoscopy and uses far less consultant's time. The lower cost means that I can have them routinely done every 6 months and there's no prep required. (It's done on the understanding that if the calprotectin shows active disease then a scope will be carried out)
Wrestling The - the companion website to my, shortly to be published, book on 4 decades of Crohn's and other issues

Not taking Crohn's meds at present. In the past - pred, pentasa, aza, entocort, infliximab - with varying degrees of success

Currently on :
Loperamide/Colesevelam to keep the BAM at bay
Propanolol/Omeprazole for PVT
B12 injections

Twitter - @crohnoid
04-26-2014, 11:24 PM   #14
Forum Monitor
SupportiveMom's Avatar
Join Date: Mar 2013
Location: Toronto, Ontario

My Support Groups:
We have never been told a schedule. We just do them when the GI says. We have had 2 in 1.5 yrs. I don't think that common though. If there doesn't show much outward change thinking there is inflammation i'd think 2-3 yrs would be good.

Mom of 16 yr. girl w/Indeter.Colitis Sep. 2012(age 11) Nov.2012 Crohn's Sep. 2014 Crohn's Colitis, UC Nov 2015, Crohn's Feb. 2016

Ileostomy surgery July 2015

Current Meds: None!
Previous Meds: Humira, Remicade, Methotrexate, Cipro, Flagyl, Zofran, Cortifoam, 5-ASA suppository, Questran, Mezavant, EEN (Peptamen Jr. 1.5) by NG tube, Antibiotic Cocktail (Vancomycin, Metronidazole & Doxycycline), Simponi, Prevacid, Imuran, prednisone ☆
04-27-2014, 04:50 AM   #15
Senior Member
bigtruck's Avatar
Join Date: Feb 2009
Location: United Kingdom
Had crohns from 1993 and never had one.
04-27-2014, 09:00 AM   #16
Senior Member
scottsma's Avatar
Join Date: Jan 2012
Location: Tynemouth, United Kingdom

My Support Groups:
Proctitis since 2006 and only one when diagnosed.
04-27-2014, 09:44 AM   #17
Forum Monitor
Twiggy930's Avatar
Join Date: Feb 2012
Location: Canada

My Support Groups:
We've been told every 10 years if in remission and no issues going on. That was by a pediatric GI so maybe a adult GI would tell us something different.
Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
05-03-2014, 10:32 AM   #18
Senior Member
Join Date: Jul 2012
Location: United Kingdom

My Support Groups:
It was 10 years for me and I only had one so we could see if any damage before we started trying for children.
Azathoprine 100mg
Just started actimel sept 13
05-03-2014, 11:06 AM   #19
Forum Monitor
Trysha's Avatar
Join Date: Aug 2009

My Support Groups:
So far every two years but was told it is likely to be every three.,can't say with a new GI
who is far better than the first.Of course it does depend on need when problems arise.
Sometimes with that prep I forget to be grateful---but we are so fortunate to have these dedicated professionals looking after us.,and who can be just as upset as we are when they find something.
05-04-2014, 07:52 AM   #20
Forum Monitor
Farmwife's Avatar
Join Date: Apr 2012
Location: Michigan

My Support Groups:
I believe for Grace I was told every three years but at a certain age it will be six years.
Of course that's if she ever finds remission.
She's already been scoped twice in a year and looking to add a third time if she gets worse.
I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
05-04-2014, 08:11 AM   #21
Join Date: Feb 2014
Location: Vermont

My Support Groups:
Every year for me
05-14-2014, 05:17 PM   #22
Cross-stitch gal
Cross-stitch gal's Avatar
Join Date: Dec 2011
Location: Vancouver, Washington

My Support Groups:
My GI said depending on if it's Crohn's or Colitis & where your inflammation is it's every 2 years after you've been diagnosed for 10 or 18 years.
05-23-2014, 12:39 AM   #23
Join Date: Mar 2013

My Support Groups:
I was diagnosed at 19. I had my first colonoscopy in 2003 (diagnosis), and then did not have one again until 2010 (severe flare). Switched to a new GI who is a Crohn's subspecialist, we did another one in 2012 to check the efficacy of our medication plan. Now that I am over 30 the standard of care is for a colonoscopy annually. Apparently once you have Crohn's for more than 10 years the risk factor for colon cancer increases, requiring the annual colonoscopy.

As I am not a fan of this procedure, I did a little searching and found that the latest journal articles do recommend the annual colonoscopy every 10 years. For me thats a bit much, so I'm trying to stretch them out a little further.

Crohn's Disease Forum » Tests for IBD » Amount of years between Colonoscopies
Thread Tools

All times are GMT -5. The time now is 07:59 AM.
Copyright 2006-2017