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04-14-2015, 04:25 PM   #61
JenS
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I have Gerd too. I've noticed when I stay on Prevacid for more than a few weeks, my iron deficiency anemia gets worse (my blood counts drop). Anyone else?
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Mild Crohn's 1997-2004
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04-14-2015, 04:31 PM   #62
Ann Morgan
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I just got diagnosed with c-diff and I guess PPI's can help cause c-diff ? PPI's, I believe, are medications like the one I have been taking every morning for a long while....Pantoprazole ( Protonics) ( for my acid reflux).
04-14-2015, 04:53 PM   #63
JenS
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I just got diagnosed with c-diff and I guess PPI's can help cause c-diff ? PPI's, I believe, are medications like the one I have been taking every morning for a long while....Pantoprazole ( Protonics) ( for my acid reflux).

Yikes!! Take care!
04-15-2015, 08:54 AM   #64
FrozenGirl
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PPIs (like pantoprazol) can help contibute to C diff because they lower the amount of acid in the stomach making it easier for C Diff to flourish I believe. It's definitely a trade off based on what you are will to risk and how bad the reflux is.
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04-15-2015, 09:45 AM   #65
nogutsnoglory
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I take plenty of probiotics with my Prevacid to ensure I don't get c-diff.
05-06-2015, 07:11 PM   #66
Ann Morgan
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I have had acid reflux for several years now. I had my gallbladder out in 1995 ( does this have anything to do with acid reflux ). I take Pantaprozole 40mg each morning. It really does work for me and I don't think I could live without it. If I occasionally eat something with a lot of acid in it ( spaghetti sauce ) then I will also take one Extra Strength Gaviscon. With some foods that I occasionally eat I will end up burping up the food all day long. I have not had a bad acid reflux attack since I starting taking prescription medication for it.
Okay, I am "quoting" myself..............but the other day I had a terrible uncomfortable acid reflux attack. Acid all the way up to my throat, but not into my mouth. My throat hurt afterwards. I have not experienced this for years. I was recently on Vancomycin and am off it now. And I now take a Probiotic every day. Could either of these things cause an acid reflux attack ? I was also diagnosed with C-diff a month ago. I don't want another attack like that ! Over the last week or two I have experienced heartburn/indigestion and I don't normally get that every week, just once in a "blue moon" as they say. I have been taking my Extra Strength Gaviscon a little more often lately.
Thanks for listening.
05-06-2015, 07:15 PM   #67
Ann Morgan
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Yikes!! Take care!
Okay, so some people I meet in person or people that I write to online act like this C-diff is a big deal ( and I have done some online reading about it ).

And some people I meet in person or people that I write to online act like it is NOT a big deal.

I know this is a GERD sufferers Support Group, but I thought I would just mention it. I will go over to the C-diff Support Group now.

05-06-2015, 07:19 PM   #68
Ann Morgan
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I take plenty of probiotics with my Prevacid to ensure I don't get c-diff.
I just started taking one Culturelle probiotic capsule each day. I was eating Plain Greek Yogurt in my daily smoothie before that. I have temporarily stopped making my smoothies and I will eventually do back to drinking one each day.
05-06-2015, 07:19 PM   #69
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Just a FYI you can be refluxing and not even know it. My reflux is so bad I have to take 40 mg Protonix twice a day and sometimes that's not enough. Mine was under control until I had my gallbladder removed. Upped to 40/twice day and that was fine until I started another flare. I'm on LDN now and I'm finding the night dose interferes with taking my nightly Protonix. So I'm going to try taking Carafate at night instead of the Protonix to see if that settles things down. I'm hoping after my system gets used to the LDN my reflux will get better.
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05-06-2015, 09:51 PM   #70
Ann Morgan
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Just a FYI you can be refluxing and not even know it. My reflux is so bad I have to take 40 mg Protonix twice a day and sometimes that's not enough. Mine was under control until I had my gallbladder removed. Upped to 40/twice day and that was fine until I started another flare. I'm on LDN now and I'm finding the night dose interferes with taking my nightly Protonix. So I'm going to try taking Carafate at night instead of the Protonix to see if that settles things down. I'm hoping after my system gets used to the LDN my reflux will get better.
Thanks for your help. I take 40 mg of Pantoprazole each morning ( generic for Protonix ? ). I have been taking prescription acid reflux medication for some time now. My old PCP gave me something, I cannot remember the name. Then I took over-the-counter stuff at one time. I had my gallbladder removed in 1995. The last endoscopy I had, I think, was in 2009 ?
05-07-2015, 12:32 AM   #71
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Just a FYI you can be refluxing and not even know it. My reflux is so bad I have to take 40 mg Protonix twice a day and sometimes that's not enough. Mine was under control until I had my gallbladder removed. Upped to 40/twice day and that was fine until I started another flare. I'm on LDN now and I'm finding the night dose interferes with taking my nightly Protonix. So I'm going to try taking Carafate at night instead of the Protonix to see if that settles things down. I'm hoping after my system gets used to the LDN my reflux will get better.
Yep. I didn't realize it was reflux until I had an upper GI barium study showing severe reflux. I though it was just a super uncomfortable stomach feeling. It was only later I started having actual reflux of acid into my mouth.
05-07-2015, 06:14 AM   #72
nogutsnoglory
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After trying nearly every other PPI and antacid I'm now giving Aciphex a go. A friend said it's the only one that worked for her. I like that I have tablets and don't need to wait 30 min to eat. Well see how this goes.
05-07-2015, 06:37 AM   #73
LodgeLady
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After trying nearly every other PPI and antacid I'm now giving Aciphex a go. A friend said it's the only one that worked for her. I like that I have tablets and don't need to wait 30 min to eat. Well see how this goes.
Thanks! I am going to bring this up next week at my GI appt. Maybe all I need is a med change.
05-07-2015, 02:10 PM   #74
Ann Morgan
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I have had Aciphex, Prilosec, and Pantoprazole...with a bit of Extra Strength Gaviscon.
05-07-2015, 05:10 PM   #75
nogutsnoglory
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How's gaviscon? That's basically like mylanta right?
05-07-2015, 05:51 PM   #76
Ann Morgan
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I use the Gaviscon chewable. I just chew one tablet and swallow with at least 8 ounces of water. If I decide I want to eat something like pizza or spaghetti and meatballs ( stuff with tomato sauce) I will take one Gaviscon chewable tablet before or after eating that kind of food. Actually on the label it says you can take 2-4 chewable tablets at one time ! I have never needed to take more than one. Gaviscon tablets are nothing like Tums. The Gaviscon tablets have a different consistency and taste. I rarely eat pizza because grease is a trigger for me to have diarrhea. And IF I eat spaghetti and meatballs I never get the meat sauce because the fat in the meat makes me have diarrhea. Long answer.....sorry! Boring, today I ate Rice and then some crackers and cheese later on. I really want McDonalds or Taco Bell !!!!!
05-12-2015, 10:25 PM   #77
Ann Morgan
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Try organic unpasteurized apple cider vinegar and baking soda...I used to take 60 mg of omeprazole a day and still have heartburn occasionally. I started using acv/baking soda (2tbl spoons acv/ 1/2 tsp of baking soda) twice a day and I have been able to get down to 1 omeprazole a day and plan to try to stop that. Vaporizing cannabis oil seems to quell acid reflux for me as well. But I was amazed how much the acv/baking soda has helped.
I don't take any home remedies for any of my health conditions, but I have always heard good things about apple cider vinegar. But isn't an unpasteurized product dangerous because it has not been pasteurized ? I think I tried drinking apple cider vinegar 20 years ago when I was a vegetarian. I wish I was as dedicated and motivated now as I was then. Back then I lost a lot of weight, rode my bike every weekend, walked every morning and was a vegetarian. That was the best I had ever felt in my life. Unfortunately just a few short years later I started having the diarrhea. Bummer.
05-13-2015, 05:05 AM   #78
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Can you not still be vegetarian if that's what you would like to do? I know there are many fruits and vegetables that can give people with Crohn's - or UC in your case - problems. And I know I've seen you post that that's the case for you, but there must be some things you can tolerate which aren't meat.
05-21-2015, 10:20 PM   #79
Ann Morgan
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Having more acid reflux lately. Don't know if it is poor food choices, eating too much st one time, ?? I normally have to eat a little bit at a time throughout the day. I would rather have my food room temperature, nothing ever real cold or real hot. I don't refrigerate my bottled water. And I don't mind my one cup of morning coffee to be somewhat room temperature either. Right now....bloated. Today....took Extra Strength Gaviscon again. Good Night for now.
05-22-2015, 06:35 AM   #80
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I take Tecta 40mg/once a dayfor mine and boy, did I ever find out just how much I depend on it! My husband changed jobs and therefore insurance companies. I thought my card was coming in a couple of days and I ran out of Tecta, so I figured I'd be fine taking Ranitidine 150 in the interim- I was so wrong! I had searing heartburn the minute I swallowed a bite of food. It was awful!
05-28-2015, 11:27 PM   #81
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I have both crohns and GERD and have been suffering for over 6 years. I finally had surgery to remove my colon but found out there is still active crohns disease in my stomach and small intestine. And my GERD is just getting worse even with all the meds. any advise to settle it down a bit? It gets very very painful and frustrating at night time.
05-30-2015, 10:34 PM   #82
Ann Morgan
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I am taking one Extra Strength Gaviscon every day and I have never had to do that on a regular basis. I had C-diff in April, I don't know if that has anything to do with it ? I already take Pantoprazole each morning.
05-30-2015, 10:35 PM   #83
Ann Morgan
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Oh, I DID start taking Culturelle probiotics once a day in April.
05-30-2015, 10:41 PM   #84
Ann Morgan
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Should I ask for an endoscopy ? I have a new Gastroenterologist and I don't think he would recommend one for me. My last endoscopy in 2009? I am not sure if I like this new doctor ? My favorite Gastroenterologist is no longer on my Insurance plan !!!!!
06-07-2015, 03:24 AM   #85
Ann Morgan
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Just a FYI you can be refluxing and not even know it. My reflux is so bad I have to take 40 mg Protonix twice a day and sometimes that's not enough. Mine was under control until I had my gallbladder removed. Upped to 40/twice day and that was fine until I started another flare. I'm on LDN now and I'm finding the night dose interferes with taking my nightly Protonix. So I'm going to try taking Carafate at night instead of the Protonix to see if that settles things down. I'm hoping after my system gets used to the LDN my reflux will get better.
Yeah, everything seems to get worse after everyone gets their gallbladder removed ! And doctors act like we don't need our gallbladder ? Well, it must be there for SOME REASON ! Where is all of that Bile going ? I still have never figured it out. I had my gallbladder out in 1995, a Laparascopic Cholestectomy......I don't know how common those were back in 1995 but gallbladder surgeries used to be major surgeries where they really cut you open. Now they just make three incisions and use a camera.
How often are we supposed to get an endoscopy to check out to make sure we don't have scaring and all of that ?
07-04-2015, 06:04 PM   #86
Ann Morgan
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Does everyone who has their gallbladder removed have GERD/Acid Reflux ? Is GERD and Acid Reflux the same ? I had my gallbladder taken out in 1995. So if my gallbladder has a purpose in my body and it is gone now, what happens to all of that bile ? Well, this may be off topic, I don't know. Thanks for listening.
07-04-2015, 06:16 PM   #87
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I was diagnosed with GERD and a hiatal hernia approximately 10 years ago. Vomiting in the morning for 20 years, nausea, and acid reflex became the norm.

Recently, I was diagnosed with gallstones as well as a fatty liver and started taking milk thistle to try to save my gallbladder from being removed.

Milk thistle is clinically proven to reverse liver damage, which may help with gallbladder attacks as the 2 organs are connected.

It helped with my excruciating gallstone pain/attacks. I believe this all has to do with the liver. An unhealthy liver causes a huge list of health problems, fatigue, digestive problems etc. 70% of North Americans have fatty liver. Milk thistle has shown to reverse liver damage at a rate of 20% per month. It has even shown to reverse cirrhosis.

I would suggest you try milk thistle as it did help me. I bought the more expensive stuff at a health food store, about $30 but you can get it cheaper from a drugstore.

For those asking what your gallbladder does, it stores the bile. Without it, the bile is dumped directly into your colon and may cause major digestive disorders. It also unfortunately increases your risk for colon cancer as bile is not supposed to directly be dumped non-stop into your colon.

If you are experiencing gallbladder problems, try to save your gallbladder if you can. Detoxing the liver is the only way to try to clean it up. I don't know that liver flushes work as I haven't tried them but you can support your liver and gallbladder by using milk thistle and digestive enzymes. If you've already removed your gallbladder these can still help you, especially if you are still suffering phantom gallbladder pain and digestion issues. These issues can manifest as weight gain or even weight loss depending on if you are still able to eat. It also leads to malnutrition in some cases as your body doesn't use the bile efficiently anymore which causes you to improperly digest food and gain nutrients that you need.

A low fat diet will help and if you are missing your gallbladder or are experiencing gallbladder attacks, milk thistle and digestive enzymes will change your life.
07-04-2015, 06:50 PM   #88
Ann Morgan
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a_woman

Yeah, grease/fat is a "trigger" for me and makes me have bad diarrhea. I cannot eat fried fast food. Some pre-made pasta salads are coated in oily salad dressing. And some restaurants have bread on the table that is supposed to be dipped in olive oil before you eat it.

I just became a vegan, so I am sure that I will be eating a lot less fat/grease now. I have been reading my labels very carefully. I have a lot more to learn. But I will need more supplements now, I am sure. I am going to see a Nutritionist soon.

Thank goodness that I had my gallbladder taken out as a Laparascopic Cholestectomy. Just three little incisions and I felt fine the next day ( except for lifting ). Thanks for listening.
07-04-2015, 10:17 PM   #89
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Hi Ann Morgan,

Going vegan will probably help you, although I am not convinced this is a long term solution. I know a lot of people say you can still get proper protein from sources outside of fish and meat but I'm not convinced of this. Everything in moderation as no one has figured out the perfect diet yet otherwise we would all be healthy if we just followed 1 diet. Freud once treated alcoholism with cocaine. Boy, was he ever wrong...lol...

Have you tried apple cider vinegar? A couple tablespoons of the stuff daily can eliminate acid reflux and GERD completely as well as balance your PH level, turning your body from acidic to alkaline. When your body is alkaline, most of these symptoms will cease. ACV is completely safe to drink. The best ACV and the only one I would recommend is BRAGG's. It's not too expensive and works the best. It has the 'mother' in it which are all the nutrients so make sure you shake the bottle well to stir it all up before you consume it. I highly recommend you try milk thistle daily as well as you might find your triggers go away as well as your body is better equipped to digest fat. Digestive enzymes would help as well.
07-05-2015, 01:53 AM   #90
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I'm a little confused about ACV as it is acidic - are there any published papers about how this can have the opposite effect and increase alkalinity?


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