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07-21-2014, 11:03 AM   #91
dave13
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My coworker can be quite mischievous...I mean caring...and I'm sure she did all she could do to help alleviate his 'cootie' feelings.
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07-21-2014, 12:12 PM   #92
jwfoise
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Sorry I haven't posted much these past few days. R has prescribed a rigorous regimen of hugging, kissing, and cuddling.
As with any prescription, it is very important not to skip a dose.
07-23-2014, 01:04 AM   #93
Orchid
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Somehow, R has never seen the X-Files so we've been watching them together slowly but surely. Finally on the second season! Nothing much has happened the past few days, kinda slow. On the transition front I've started to become sensitive in my breasts, it's an odd sensation.
07-31-2014, 08:40 PM   #94
Orchid
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We've finally made it to season four! In other news, they retrieved enough genetic material for a few attempts at IVF when we're ready for it, We'd like to wait a decade and change before we have a child. Having a child in your twenties strikes us both as overly hasty. We have lives to live and a marriage to forge.

Last edited by Orchid; 08-02-2014 at 02:53 PM.
08-11-2014, 12:20 AM   #95
Orchid
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X-Files project has stalled because she wants to rewatch Twin Peaks. In other news our life has been relatively quiet, I discussed switching to Entyvio with my doctor because Cimzia causes major complications because of R's CF - I'm constantly catching her infections and Tobramycin, the antibiotic used to defend against and treat many CF related infections, consistently knocks me on my ass for days from the vomitting, intense vertigo, and headaches. She claims you get used to it but I think she's the cutest little liar on Earth right now.

We just started reading One Hundred Years of Solitude, I'm a horrible sucker for cyclical stories, especially ones about how we're shaped by our pasts. It's great to finally get out of my genre fiction funk and sink my teeth into real literature again, especially when you have someone who loves arguing about lit in bed next to you every night.

Also, FUCK YEAH POST 666. :3
08-11-2014, 11:06 AM   #96
Patch
 
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Yeah... knocking my immune system back down again is something I'm not looking forward to once I start Humira. I've been having sinus issues over the past week or so, so I've held off on taking the loading dose in case it was an infection. At this point I think it's more likely to be allergies, though.

And congrats on the diabolical post milestone.
08-11-2014, 12:11 PM   #97
jwfoise
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I've been having sinus issues over the past week or so, so I've held off on taking the loading dose in case it was an infection. At this point I think it's more likely to be allergies, though.
The ragweed is pretty high around here for the last week or so; I expect the same for you.
08-11-2014, 01:16 PM   #98
Orchid
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Yeah, you could see if some OTC antihistamines help unless there's a reason you can't take them that I can't remember. God I'm a forgetful bat and I'm only 23 going on 24, the hell am I going to be like at 50.
08-12-2014, 03:55 PM   #99
dave13
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50 isn't that bad,I'm gonna be 51 next month.When replying to a thread I do have to keep scrolling back to re-read what I'm answering...I've only done it twice for this post.I think it was only twice...I can't remember.
08-18-2014, 10:37 AM   #100
Orchid
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R finally gets to start her Lumacaftor/Ivacaftor trial as soon as we take a trip to the CF clinic in Portland and do some baseline lung function tests. I'm desperately hoping she doesn't get placebo. I'm so excited for my little pinch of salt to finally get medication that could let her live to be old and grey with me. :3 It's really profoundly terrifying to lay next to the woman you love with all your heart and hear her breathing so poorly every night, to help her out everytime she has a hacking fit and you think to yourself "Will this be the one that sends us to the hospital?" to see her years dripping away like melting ice in the hot sun because of her disease. I just want to hold her so tight and pretend that means she can't disappear in those moments.

We finished 100 Years of Solitude and the Flame Alphabet and now we're starting Life and Death are Wearing Me Out by Mo Yan, a lot of our friends have been raving about his work and I think we could use something light after those two books.
08-26-2014, 11:53 AM   #101
Orchid
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We finished a bit of Mo Yan's bibliography and I think it's time we moved on to serious lit again, our friends keep raving about John Brandon so we're going to pick up his book Citrus Country next. We're taking our trip to Portland early in September, we'll pick up our Lumacaftor/Ivacaftor from them before we leave. I'm so goddamn excited it hurts.

In awesome news: Oregon reached a great decision, the state healthcare has to cover a variety of transcare - including many forms of SRS and vocal therapy. It's a step on our journey to gain civil recognition and respect.
08-26-2014, 12:04 PM   #102
nogutsnoglory
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That's fantastic to hear about Oregon! I just hate when people say TG/IS medications and surgeries are cosmetic. It's not a choice, why would anyone choose to be so miserable in their biological body? Gender variant people have existed since the dawn of womankind and it's about time the medical community stop pathologizing and making it hard for people to live healthy and productive lives! I don't know why I'm ranting here but I know I'll get agreement and I'm sick of making this argument to so many cis people who just can't or won't grasp it.
08-27-2014, 02:04 PM   #103
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I think if my state started to cover trans surgeries that would really quite possibly be one of the best things ever.

Although ousting our transphobic Secretary of State and allowing us to change gender markers on our drivers' licenses without needing SRS would be nice too.
08-29-2014, 12:00 AM   #104
sickofcrohns
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Orchid, thanks for sharing your story.

As a cis-female who has some experience with grooming, bras, and knitting, I have a few tips for you.

1. Laser hair removal works best on people with light skin and dark hair. The way it works is that the laser is tuned to zap melanin, the dark pigment in hair/skin. The more melanin in the hair shafts, the more the hair gets zapped. The more melanin in the skin, the more the skin gets zapped (ouch!). It sounds like you not only don't have much melanin in your hair, but you also have a low contrast between your hair and skin. In other words -- it would be major pain, minor gain if you even tried it. So don't worry about not being able to afford it -- it wouldn't be appropriate for you anyway.

2. If your sports bra chafes, it's the wrong size/cut for you. See if you can find a proper lingerie store that does fittings. (Check online to see if there are any that have reviews indicating if they're trans-friendly, and/or go with a friend or family member who has gone for many bra fittings herself and can make sure that it's tight in the right spots and looser in the right spots).

3. Definitely do take up knitting/crocheting! I find it stress-busting and a great way to fidget in a socially acceptable manner, especially in hospital waiting rooms. . .. Knitting groups also provide welcoming communities where it's fine to talk if you want to talk or just sit and listen if you feel like doing that. Many are explicitly LGBTQ-friendly. Also check out ravelry.com -- the biggest online knitting/crocheting site -- it's free to join and there are tons of groups for any experience level, interest, location, etc., many of which are only marginally related to knitting, including groups devoted to finding the perfect bra (I'm not kidding at all).

Hope that all the hormones don't give you too much PMS!

Good luck!
08-29-2014, 12:34 AM   #105
Orchid
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Oh god my emotions have become a raging storm I barely know how to control and I am super glad I have a wonderful fiancee whose extremely supportive of my emotional needs/wants to play drunk Borderlands, eat pizza and thinks thats a Good Day. She's the bestest woman ever :3
08-29-2014, 12:26 PM   #106
Patch
 
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Oh yeah, that part is so much fun, yes... >.>
08-31-2014, 10:18 AM   #107
Orchid
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FUCK YEAH WE'RE GONNA EAT CAKE AND DRINK LIGHTNING

I am officially a year older and not a moment wiser. R is obviously planning something because she's grinning more than usual, which is pretty hard for her. I'm not really sure if I should be excited or afraid. In non-birthday news, I just got a new tarot deck for my collection, the Wildwood Tarot. A lot of my tarots are explicitly very modern imagery and I feel I'm lacking a bit in my classical influences. It's a wonderful collection of pagan influences and I really dig it.
08-31-2014, 05:45 PM   #108
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Ah, you do tarot?
08-31-2014, 07:39 PM   #109
Orchid
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I collect tarot decks, I have a complicated relationship with the tarot's actual use. I don't think there's any divine or supernatural breath in it, it's the shuffling of cards and a bit of luck/intuition. There's nothing spiritual about it to me. However I very much like using them as a means to approach problems from alternative perspectives - they force you to think of things a new way.

On a more aesthetic level I like seeing the evolution of the ideas within. It's come from being a deck for card games (and still is in Europe to a large degree) by and for Italian noblemen to attaining this sort of mystical status in North America. The way people reimagine these ideas through different lenses fascinates me.
09-01-2014, 08:25 AM   #110
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Ah. I'm kind of a skeptic on tarot as well, much like horoscopes or fortune cookies, but that doesn't mean they aren't all a little bit fun to think about. Maybe you could do one for me sometime, if you're up for it? Heaven knows I've got plenty of complicated situations I could use a new perspective on.

And I also agree that the interpretations of the different cards and such is very interesting. The particular example coming to mind being Death and how it's very different from what most would expect from the name alone.
09-08-2014, 06:45 AM   #111
Orchid
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sickofcrohns, thanks for the advice. I was a total ditz and forgot to be thank you. Sorry! I don't plan to get laser treatment even though my marriage has opened up a lot of doors with the extra money because I'm getting my testicles removed soon - that'll stunt the growth of facial hair, well what little I have now anyway. And I wasn't used to wearing a bra at that point honestly, now it's comfortable enough to wear that I don't mind. I'm waiting a while yet before I get an actual set of bras because the women in my family usually have large chests for their frames and my growth breast growth has been pretty aggressive, so at this point I'd just outgrow whatever I bought. And I do knit a lot with fiancee now, it helps with my clumsiness and it's an excellent shared activity when she's too sick to get out of bed. I'm knitting one of Tom Baker's oversized scarves because I'm a big nerd. :3

This will be my first Halloween presenting as a girl and I'm super duper excited! I'm going to be Red from Transistor since I have the frame to pull it off - and even red hair! I might post pictures if I get up the courage, the costume I'm working on is going to be the shortest cut dress/skirt I've ever worn so that makes me super duper nervous. One of my friends has been seriously trying to drag me into the world of cosplay and honestly it's hard to resist - I love making things and I think I could enjoy wearing them, I guess how Halloween goes will be the real test.

R's just started taking her possibly Lumacaftor/Ivacaftor (for future reference I'm going to call them Luma and Iva) possibly sugar pills and it's wayyy too early to tell but I swear she's coughing less and that excites me quite a bit. I'd be amazing if she didn't get placebo. She's already one of the brightest, most energetic women I've ever met and the idea of her having all the energy she's using up hacking herself to death everyday or battling severe respiratory infections (and giving them to me) could lead to so much for her, for us, for her career, not mention extend her projected lifespan by decades. Hell, there's so many little things too, sleeping through the night consistently, all the inhalers and pill bottles off the nightstand so we don't have to worry about Lithium knocking them over, or not having a random ten minute hacking fit when we snuggle.

Gonna miss her skin tasting like salt though, maybe she can get it in lipstick.

Last edited by Orchid; 09-08-2014 at 07:35 AM.
09-08-2014, 07:50 AM   #112
dave13
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Wow,Orchid.Can't help flinching a bit reading about removing the teticles.I hope each step is a step closer to your happiness and who you really are.Forgive me if I say something a bit clumsy at times.

Placebo or not,hopefully R will continue to benefit.You write so affectionately about her,your love for her comes through in your posts.It brings a smile to my face.

A Tom Baker scarf is big enough for two to wear on cold nights,good luck with the knitting.I like knitting mittens and hats,they are fairly quick.I tried a sweater once and it was just taking s,o,o,o long to finish.I unraveled the whole thing about a third of the way through.Will you be Red with a Dr. Who scarf?

You have some time to get your costume right for Halloween.It is exciting this will be your first Halloween presenting yourself as a girl.Kinda ironic,Halloween is full of people going out as something they are not.Under your costume will be the young woman that you really are.Hope that came out o.k.,sounded good in my head.

Thanks for being so open on this thread.Perhaps a crohnie who is lurking in the weeds,too shy to open up,will read your thread and it will give them some courage.Crohnies helping crohnies.

Good luck to you and R!
09-08-2014, 08:47 AM   #113
Orchid
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PS: Sorry for party flocking.

PPS: I don't do this often enough but I seriously need to thank TheOcean for encouraging me to say the two hardest words I've ever uttered.

"I'm sorry."

None of this would be happening without her making me to do the right thing. I'd never have told R how sorry I was about how our relationship ended and we wouldn't have tried to pick things up again. Seriously, thanks girl.
09-09-2014, 01:24 AM   #114
Orchid
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Almond milk is p dope. Esp. with a little vodka.

Also thanks dave13, you're a sweetiepie. You are vastly more polite than most people your age who somehow instantly jump to something weird like what's between my legs. R and my doctors are pretty much the only people who have any goddamn business caring. And no, I won't wear that scarf with my Halloween outfit but sharing a scarf sounds cute. Probably wouldn't work very well given our height differences though, I'm 5' 11" and she's 5' 3". I was rather fond of the metaphor's general idea, I think I'll steal it!
09-10-2014, 09:40 PM   #115
Orchid
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I am now almost sure she got the real thing, she had an entire day where she hasn't needed one of her inhalers and barely coughed, she even smells less salty now. Even on her best days in the past she'd need her inhaler once or twice a day and have at least a few coughing fits. Her raw energy for life is great to be part of, she's going to be an amazing architect. :3

I'm thinking of going back to college myself and doing something a bit more chemistry focused this time. Azide chemistry is fascinating to me now and Rose is strongly encouraging me to do it. Mad science, ho!
09-11-2014, 06:12 AM   #116
dave13
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An architect and a mad scientist...h,m,m,m...could be trouble brewing.

Very happy Rose is doing better.Seeing our loved ones heal is a wonderful thing.

I meant to thank you for the sweetie pie comment,but people my age can be so forgetful..I think..I can't remember.
09-11-2014, 06:43 AM   #117
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Awesome to hear about the results with the study. I really hope it only gets better from here. =)
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