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Crohn's Disease Forum » Surgery » Stoma Subforum » T-Minus 16 hours until surgery


05-06-2014, 01:18 PM   #1
vonfunk
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T-Minus 16 hours until surgery

Well until I report to Mt. Sinai at least.

Everything became real when I called to confirm my surgery time a little while ago.
Currently doing that mad scramble to clean the apartment, clear out the fridge, prep/create spare room for my mom (who is briefly visiting post-surgery), pack my hospital bag and ampersand after ampersand.

It's a shame that the growing season is 3 weeks behind, I was not able to plant my garden before surgery. I've a friend who is a landscaper with a degree in horticulture who has pledged to get it in the ground for me.

They say I can eat until midnight, however, because of the hernia it takes 8 hours for food to clear my system. I should probably stop solids around 6pm.
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10/14/1980 - 06/21/2011
Goodnight Sweet Prince

05-06-2014, 01:23 PM   #2
theOcean
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Woo, Mt Sinai. They were always really good to me there.

Good luck with the surgery! It sounds like you'll be in good hands.
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Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
05-06-2014, 01:33 PM   #3
vonfunk
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I like my surgeon, I'm going to ask her to remove my belly button. It just causes issues, and I assume that without it I'll swim faster due to being streamlined.
05-06-2014, 01:56 PM   #4
Nyx
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Good luck with the surgery!! Keep us posted on your progress.
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

05-06-2014, 03:53 PM   #5
Absentminded
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Good luck! Hope it all goes well :-)

Can you remove your belly button?! Wish I'd thought to ask my surgeon about mine button, it's so deep and narrow after surgery it causes me so many problems now.

But yes, keep us updated when you're up to it, and sending lots of healing thoughts!


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Lucinda x

Diagnosed: July 2009

Resection and removal of Enterocutaneous Fistula: Jan 2014
Pelvic infection Drainage: April 2013
Ileostomy reversal: February 2013
Ileocecal resection and temp. ileostomy (Say hello to Norman!): Nov 2012
Current Medication: NONE!

Past medications: Humira, Infliximab, Azapthioprine, Asacol, Budesonide, Prednisolone, Flagyl, Cipro, Cholestyramine (Questran), Fortisips.
05-06-2014, 04:01 PM   #6
vonfunk
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Saving the belly button actually takes effort on their part. I've already been sliced open twice, both times I had issues with the wound closing in the bely button. When I asked if she could just take it out, she said that it would be easier on her than attempting to save it.
People seem to be attached to it, like some sort of strange affectation.
05-06-2014, 04:09 PM   #7
Absentminded
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Thanks for the info! I'm seriously requesting to have it removed next time (should there be a next time....which there probably will be.)

I can understand that people are attached to them, and it would take a bit of getting used to, but mine is constantly getting infected as it's so deep, if be happy to get rid.

I hope you don't have any wound closing issues this time, all the very best wishes :-)


05-06-2014, 05:30 PM   #8
hawkeye
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Good luck on the surgery
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Diagnosed since 1990
Current Medications: None currently. Was on Imuran (150mg/day) and 5-ASA (3000 mg/day) as maintenance meds prior to surgery
Surgeries: Left hemicolectomy 2014.
05-06-2014, 06:47 PM   #9
Ian
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Hope the take down goes well vonfunk! And hope to hear cheery updates from you soon
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Dx Ulcerative Colitis Oct 2005 (age 19)
Dx Crohn's Colitis Feb 2010 (age 23)
Dx Indeterminate Colitis (IBD unclassified) Oct 2011 (age 25)
Dx likely Ulcerative Colitis July 2013 (age 27)

Currently taking:
6MP (75mg daily)
Asacol (3 x 800mg, twice daily)

Have taken: Humira, Infliximab (Remicade), Prednisolone, Predfoam
05-07-2014, 06:14 AM   #10
2thFairy
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Good luck, man!
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Ulcerative colitis

Total colectomy with ileostomy featuring Sideshow Bob since January 2012

"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation
05-07-2014, 12:56 PM   #11
Jimena
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Good luck and let us know how it goes!!!
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Severe Crohn's since 2002. Tried every longterm medicine there is, Pentasa, Azamun, Remicade, Humira...
Temporary colostomy 2013 -> Parastomal hernia
Surgery, mesh, end colostomy 2014 -> deep wounds that didn't heal, three fistulas around stoma
Colon removal and ileostomy 2015 -> So far so good

And after every stoma surgery, nasty Pyoderma Gangrenosum around my stoma.
05-07-2014, 02:00 PM   #12
JoFowler
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Good luck, and speedy recovery wishes!
05-08-2014, 12:37 AM   #13
VeganOstomy
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Mount Sinai is my home away from home. Good luck!

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https://www.veganostomy.ca
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https://www.twitter.com/VeganOstomy

05-08-2014, 01:00 PM   #14
vonfunk
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I'm not dead.

Well the good news is that I no longer have a belly button. The bad news is that I still have a stoma.

My original stoma was an end ileostomy, My surgeon decided to err of the caution for this surgery. She created the internal pouch with a loop ileostomy, and I need to wait 3 months to finally connect everything off
05-12-2014, 01:28 AM   #15
Jimena
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Sorry to hear that you still have your stoma. How do you feel now? Is your hernia repaired? Is it painful?
05-12-2014, 06:25 PM   #16
vonfunk
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Everything is where it is supposed to be. Hernias fixed, the J pouch has been constructed, According to my surgeon I lost a decent about of weight, not sure how much, but she was telling me that due to he amount of weight lost, combined with the extra skin from the hernias the were required to give me a "tummy tuck" before sealing me up. Because of that the scar is going to crazy looking, there is already a weird S shape to it.

Probably going home tomorrow.
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