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06-24-2014, 11:59 AM   #91
theOcean
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Also, very important update: I got the job at the sewing studio that interviewed me!! I had kind of given up hope at this point and was sending in resumes elsewhere. I would start only two days a week since the kids they'd usually be teaching there are away until end of summer, but after that I'd get more hours.

I get trained next Thursday! I'm excited.

EDIT: Also I guess I should say I worked out yesterday, too. Still battling the withdrawal from Effexor (which is apparently one of the worst medications for it) and exercising actually really helps my moods from it. I went on the treadmill for a bit since I'd just been focusing on the bike for awhile, which felt good. Still interspersing running with speed-walking -- I had to go a little slower at first to get used to it again but it wasn't so bad.

Also beginning to suspect my weight gain was from going on my antidepressant -- because otherwise I really hadn't been eating any different, and I wasn't working out before! So it wouldn't really make sense for me to suddenly gain all this weight. Orchid suggested it'll probably just all come off once it's completely out of my system, and I hope she's right.
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Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
06-24-2014, 01:00 PM   #92
Cat-a-Tonic
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How long does it typically take for Effexor to get out of a person's system completely (or is it different for everyone)? I hope it's completely out of your system soon, it sounds just horrible. But yes, I know what you mean, exercise really really helps with my moods and depression as well. It's wonderful that I can have a stressful day and then go into the gym and just leave it all there. I almost always feel better both physically and mentally after a workout.

Yay, congrats on the job! I'm glad they finally got back to you about it and I'm so glad that you got it! And yeah, 2 days a week isn't great - my hubby typically works 2 days a week at his job in a costume shop - but, now that he's been there a little while and has proven himself to be competent and reliable, the owner has started taking more days off and giving hubby more hours here and there. So hopefully once you learn the job and have been there a little while, they'll be happy to give you more hours too.
06-24-2014, 02:46 PM   #93
theOcean
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I'm not entirely sure... it varies a lot but people online are saying about a month for the dose I was on, and I even tapered to make sure my withdrawal wasn't that bad. I can kind of track it based on if I'm still getting vivid nightmares (fortunately and unfortunately). Hopefully I'll be done with it soon!

And that's good to hear, thank you!
06-24-2014, 07:21 PM   #94
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Everything but 4 5 6 I think. Awakening was pretty fun, certainly better than shadow dragon. Sacred stones is definitely my favorite though, regardless of all the hate it gets online.

More on topic-my hair thinned out noticeably when I took 6mp (for around 8 months) but it came back afterwards.
06-24-2014, 08:06 PM   #95
theOcean
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Yeah, I'm not really sure why Sacred Stones gets so much flack. I guess because of the accessible grinding? But then no one really gets upset about that with Awakening, and because of it (and its casual mode) it became way more accessible to people who had never played FE before. SS is one of my favourites too, though -- definitely enjoyed it more than the Tellius games.

And yeah, that's what I was worried about with 6mp! Mine thinned out really badly on Imuran so I'm pretty worried about that. I'm hoping the Biotin will keep it at bay, or that maybe since my body had Imuran before I might luck out this time and not lose any hair. We'll find out!

Small update: worked out again earlier today since I was feeling really good. Went on the treadmill and then focused on weights for a bit. It's strange how I'm actually missing getting some soreness, now! I just want some proof that I'm improving I guess, though I know it takes time. I see it in my stamina and a bit in my strength, though.
06-26-2014, 12:12 PM   #96
CrohnsChicago
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I have the same thinning issue with 6-mp (and I suspect with Asacol as well). Some of the fullness is coming back since I lowered the dose of both medications over winter. I have also been using the Organix Biotin and Collagen hair shampoo and conditioner to help my hair appear thicker and it seems to help if even a little for me.

Also, congrats on the new job! What type of sewing items will you be working on or will you be selling products? I hope it works out for you!

Time....a word I have a love/hate relationship with when it comes to exercise. But good to hear you are feeling well enough to hop back on the saddle AND seeing improvement. It's proof that time does make some improvements even if not drastic ones right away
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Crohn's-Colitis May 2012
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Prednisone/ Entocort / Flagyl
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Anemia/Borderline Anemia - whole life
Generalized Anxiety Disorder - 2009 (Cognitive Behavioral Therapy, mindfulness meditation)

06-26-2014, 03:03 PM   #97
Cat-a-Tonic
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I wonder if there are any IBD meds that don't cause hair thinning/loss! For me, it was Entocort that caused my hair to start falling out. As soon as I started taking biotin, the hair loss stopped. I've been taking biotin ever since and I've had no hair loss with this round of Entocort, so biotin is still working it seems.

Ocean, did you have your training at the new job today? How did it go?

That's great that you're having less soreness - that means your body is getting accustomed to doing regular exercise. If you legitimately miss the soreness, just try doing something new. I like to think I'm in pretty good shape at this point, but when I do something new/different, ouch! Last winter I tried ice skating - I hadn't been ice skating in something like 10ish years. After about 5 minutes on the ice, my shins were on fire! That was definitely a new kind of soreness! And even if I let too much time pass in between yoga sessions, I get sore then as well. As long as you make your body do something new every once in awhile, you'll feel sore again, I promise.
07-22-2014, 05:18 PM   #98
theOcean
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So, I kind of exist! Or am attempting to. I still don't really feel like I have much energy for the forum, but I'm at least trying to get some replies in today and I'm checking all my sections. Part of the reason for my disappearance is the fact that yes -- I did actually get the job! My schedule's been a bit erratic while I was starting because of training, but now I'm settling into my schedule of Wednesday/Saturdays and my boss is already talking about adding more days. It's a really nice environment and I feel really comfortable there, so it's wonderful.

What I do need to get back to is exercising... I've been pretty terrible about it since I started work, and really haven't had any excuses for it. My mood is at least leveled out again (finally have those stupid antidepressants out of my system) so I don't have to worry about that... but the exercise is still good for me regardless. I might try and get back to it by using the bike again.

Health stuff: 6mp has been treating me wonderfully, and I've stopped getting cramps. No hair loss, possibly thanks to the Biotin I've been taking with it. I also think I figured out the constipation problem that's been plaguing me for almost a year: it's not actually constipation. It's possibly a hemorrhoid I've had for a year that somehow, despite inspections for my fistula and a colonoscopy, no one has managed to mention to me. My GP doesn't think it looks thrombosed but it certainly felt that way -- whenever I would have a BM I would bleed and feel like either crying or screaming from how painful it was. I've been taking Tylenol consistently for the last two weeks which has helped a lot, and upped my Restoralax/Miralax to every night. No pain, but my bowel movements feel incomplete because of how soft they are. The no pain is nice, but I have to keep this up until my GI appointment on the 11th. Hoping to get the hemorrhoid injected so it coagulates so I don't have to deal with this anymore.
07-23-2014, 09:27 AM   #99
Cat-a-Tonic
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Yay, glad to see you around the forum again! I figured you were busy with job stuff. It sounds like you're enjoying the job so that's wonderful! How are the dogs at your job, are you getting more comfortable being around them?

That's too bad that you haven't been exercising, but it's nice that you say you have no excuse for it (so many people make excuses, I'm too busy, it's too hard, I don't have time, etc and I just hate that - if you want to exercise, you make the time, you don't make excuses!). Yes, hop on that bike! Even if you just do it for 20 minutes, I promise you that your body will thank you for it.

That hemorrhoid sounds like a nasty one. Is it internal or external? I've had both, my internal ones seem to bleed but not really hurt, and the external ones can hurt like crazy at times but don't really bleed. Neither type is fun in the least though so I feel for you! Be careful with taking Tylenol, too much of it can affect your liver, and I believe 6mp can also affect the liver? (They're both metabolized in the liver or something like that?) Those two in conjunction may not be the best idea. And I know, there really isn't any other OTC pain med besides Tylenol that isn't an NSAID, so that kind of sucks. But for me, if it's pain I can deal with, then I choose to just deal with the pain rather than risking taking Tylenol (my liver is already kind of messed up so I don't want to make it worse).
07-23-2014, 01:06 PM   #100
CrohnsChicago
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Welcome back theOcean Happy to hear things are turning around for you in a positive way with your job, symptoms and 6-mp, I hope the upward momentum continues for you

I also like that you admit there are no excuses. I haven't exercised in two days. I COULD use a few excuses, but the reality is that there were at least a few minutes throughout my day where I could have incorporated exercise somehow. Every second of activity does count. I hope you can get around to moving some more soon!

Work, especially getting back into a regular work routine after being sick, is definitely exhausting. However you will build up your energy and get a grasp on your schedule and situation with time (there goes that dreaded word again! :P ) Are you still signed up with a trainer?

Good luck with the hemorrhoid situation those are definitely no fun to deal with.
08-11-2014, 11:56 AM   #101
Cat-a-Tonic
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Hey Ocean! I just wanted to tell you, the hubby and I went on a mini road trip this weekend, and one of the places we went was a Japanese grocery store that we really like (Mitsuwa - in the northwest suburbs of Chicago). I remembered your post from awhile ago about that recipe for the purple sweet potatoes. This grocery store carries purple sweet potatoes, so I bought a few and I'm going to try the recipe this week! I'll let you know how I like it (I will be substituting something, maybe rice, for the sesame seeds since I can't have those, and I'll also be peeling the sweet potatoes, so I'm going to slightly change up the recipe to suit my tummy needs). I'm excited though and wanted to share with you that I finally found purple sweet potatoes.
08-11-2014, 12:09 PM   #102
theOcean
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Ahh, I'm glad! Good luck with the recipe, and tell me how it goes!

Also: I've been (purposely) bad about replying to this thread because I didn't want to respond until I'd worked out again... which I finally did yesterday. Went on the bike, did stretches and some weights but have definitely lost some of what I had before. Couldn't work out as long and got tired much quicker, so I need to work myself to the point where I was before again! I could see myself losing muscle tone in my arms and knew it was time to start again.

I'm seeing my GI today in two hours or so about the hemorrhoid situation... I really want it to get taken care of so I can stop existing on Miralax.

I also need to talk about my job situation, I guess... I got let go the other week because I didn't seem naturally social enough when dealing with customers. But when I've talked about it to others they all think it's actually how I was trained, and that it's my boss's own fault. I was fine at admin stuff and picked it up super fast, but in three weeks she only ever briefly showed me the retail area once and never really trained me properly for that or for phones, and then fired me for not being comfortable with those aspects. So I'm back to looking for a job again, and doing a more intensive look at school to see what I might be good at in the future.
08-11-2014, 12:51 PM   #103
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I'm sorry to hear about the job situation. It sounds like it's for the best, though. If their solution is to just fire you rather than talk to you/try to re-train you or work with you on whatever issues, then it sounds like your boss wasn't very good. Good luck with your future searching, I hope you can find a job or school program that fits your personality much better. And I totally empathize - I'm a huge introvert and really awkward, and social-type stuff does not come naturally to me either. I can sometimes fake it, but it's definitely not one of my talents. My extent of faking being social is to ask "how are you" and talk about the weather. If the conversation turns to pets then I get happy because I actually can talk about my pets without feeling too awkward. But yeah, I'm basically socially clueless (sometimes I suspect I might have asperger's as I'm literally that awkward, have a hard time with eye contact, and I fit a bunch of the other criteria too). Then sometimes I vascillate between being an over-sharer or just clamming up completely which is even more awkward. I'm probably the least-fun person at parties - thank goodness I almost never go to parties!

I'm glad you're re-focusing on fitness. Try not to let it slip by the wayside again when you get a new job and/or re-enroll in school! Even if you just take quick walks on your breaks from work or in between classes, you should be able to squeeze in workouts here and there. I work a full-time job but I make time for fitness either on my lunch break or after work - sometimes that means I can't do other things, but it's worth it for me to prioritize fitness over other stuff. Anyway, I'm rambling again. Good luck with figuring out what the next chapter in your life is going to be, whether it's school or work or both!
08-11-2014, 01:05 PM   #104
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Wow, what a jackass. If you were fired for that reason then I have to say it's likely for the best because she was just going to bat you around like a cat toy. Have you considered biking? It's easier on your knees than running and gets you places way faster.
08-21-2014, 11:24 PM   #105
theOcean
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Haven't posted about it (obviously), but I've been working out a bit again the last week or so. I've started using the rowing machine in my building and like it a lot! But I feel like I'm not pushing myself enough, and part of it is because I find I'm just not really a person that sweats. In truth all it would probably take is putting myself back on the treadmill again, which is a good idea anyway because stamina.

Thanks for the comments about the job loss, guys! I'm over it at this point and ready to get back to the job hunt again, sigh. Also looking into school stuff a bit more thoroughly and am hopefully meeting with someone who can give me advice re: future careers. Finding something that a) I actually might like and b) makes me money is pretty difficult. Or at least seems so when I don't know what all my options are...

I also had my GI appointment last week -- I don't have a hemorrhoid! I have an anal skin tag WITH a fissure on it, which is wonderful. I did some quick reading up and it looks like it can be treated somewhat similarly to a hemorrhoid, though... but I've also heard depending on the method there's a risk of incontinence -- I'd guess in case the sphincter muscle is damaged at all?

I need to book an appointment with my surgeon for her to assess. I know that the skin tag appeared around the time all this pain started, so maybe removing that would also deal with this fissure problem because I don't have them anywhere else. I also keep building up a tolerance to Miralax (the only thing that helps keep things livable and pain-free) so then the process just keeps starting over again. I've also been given a topical calcium channel blocker in the meantime but I don't think that will do much, honestly. I just really need to see my surgeon.
08-22-2014, 09:48 AM   #106
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Glad you are back to it! How do you like rowing? I thought about trying it out periodically but the machine looks a bit intimidating and complicated to me lol.

With regards to jobs, what sort of skills do you already have and which ones would you consider/are interested in learning at any point?

I don't know a great deal with regards to hemorrhoids and fissures so I have no comment on the incontinence but I'm sure someone else can chime in on that. Definitely sounds like a localized issue if you have no other pains so hoping that whatever treatment you need will fix your other symptoms.

I know what you mean about Miralax tolerance. I feel like I need a little bit more these days to get things moving if I eat too much fiber or am feeling a bit backed up for whatever reason. The only thing I could maybe suggest is that other ways I manage to get things moving is via ginger tea and juicing fruits and veggies for detox. Maybe take a day if you are able to predominately drink your meals and see if it helps to start cleansing out your system?
08-25-2014, 10:13 AM   #107
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Ocean, when you say you're not a person that sweats - do you mean physically your body doesn't produce sweat (meaning a workout would be very uncomfortable) or do you mean you just don't enjoy sweating?

As for your fissure & skin tag - I've had fissures but never on a skin tag! That sounds pretty awful and I hope you can figure out a way to get it to heal.
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