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05-21-2014, 08:28 AM   #1
DiPuM
 
Join Date: May 2014
Location: Ireland
My Story

Hi folks,

I'm 34, diagnosed almost 2yrs ago. I was really relieved with the diagnosis as all the symptoms pointed to something much much worse!!! But a little concerned that my Gastro believes I may have had it for up to 5yrs due to the area affected!

I am currently experiencing an extended flare up as my Remicade dose wasn't increased to match my weight gain...i know I'm showing off - weight gain!! So I am back on steroids as a stop gap until Tuesday when I get my next infusion!

I will say that Crohn's has completely changed my life both good and challenging. Over here, Ireland that is, because it's an infusion I have to be admitted as a day patient (for the few hours of the infusion) on a cancer day ward...I know fun times. But this helped give me a whole new perspective to life and my outlook towards it. I am generally a more happy, more giving and just better person because of this experience. However, the flare ups, the extreme exhaustion at times and the limits on what foods I can eat are the not fun side along with the expense of the traveling, consultations and treatment. Which I am sure you all have also experienced.

Crohn's has also given me the drive to take a complete 180 in my life career wise and I am returning to education in the fall and I cannot wait.

Anyway that's a quick background. I do have a more specific question to ask the forum but that should be in the next day or so.

DiPuM
05-21-2014, 08:38 AM   #2
Hope345
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DiPum,

thank you for your comments.
You have such a wonderful attitude and it is very inspiring.
__________________
Daughter (age 17) diagnosed with Crohns Colitis/UC 1/2012 Mod/severe changed to U.C.: 11/7/2014 anemia:blood transfusion current: Flare, weaning from Prednisone, still bloating: Meds ,Pentesa: 2000mg twice daily, Vegan diet, mesalamine enemas .Previous: mercaptopurine, Remicade (13 treatments), Imuran, prednisone ), Flagyl, iron infusions, cortifoam,
Continue to be hopeful
Daughter: age 21, undiagnosed: GI issues
05-21-2014, 10:25 AM   #3
DJW
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Join Date: Jul 2013
Location: Ontario

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Hi DiPum.

Welcome to the forum.
__________________
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

Living in Ontario with no drug benefits?

Trillium Drug Program:
http://www.health.gov.on.ca/en/publi..._trillium.aspx

Dave
05-21-2014, 10:32 AM   #4
valleysangel92
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Join Date: Dec 2012
Location: United Kingdom

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Hello, welcome to the forum.

I am sorry to hear that you are currently in an extended flare up. Have your doctors spoken about increasing your remicade now that you are flaring if the current dose doesnt match your weight?

I hope you get this flare up under control soon and you feel better .
__________________


Nicola
coeliac disease/Osteopenia /Crohns/Arthritis/
laperoscopic hemicolectomy 25/06/ 2013

Meds- Vedolizumab, sulfasalazine, Lansoprazole, Vitamin D, prochlorperazine, Oramorph, MST, B12 shots My journey with crohns: http://glutenfreecookiemonster.wordpress.com/

Allergic to - inflectra, aza

Non CD meds - Gabapentin, paracetamol, ventolin
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