Share Facebook


 
05-24-2014, 03:44 AM   #1
Ckk4
 
Join Date: May 2014
Location: Greenfield, Indiana
Humira?

Hey I'm new here. I've been diagnosed with Crohn's since 07. I am going through an awful time right now. I've been in and out of the hospital and am currently on prednisone (60mg). I'm waiting on insurance to approve me to be on Humira. Has anyone ever taken this? I hate being on the prednisone! But it does help. My blood pressure is high and I can't sleep! So I'm ready to start tapering off and starting the new meds. Just wonder if there's anyone else who's also on Humira, and how it is going for you.
05-24-2014, 09:46 AM   #2
Juuh
 
Join Date: Dec 2013
Location: Arctic Circle, Finland

My Support Groups:
I bet there are a lot of people on Humira here. I am on azathioprine and Humira. It seems to work for me. I did not have much symptoms but colonoscopy revealed things were not right. I was put back on Remicade but that did not suit me so I switched to Humira. Been on it for one month now. Second colonoscopy showed that its improving, either from one shot of Remi or Humira.
05-24-2014, 10:50 AM   #3
theOcean
Moderator
 
theOcean's Avatar
 
Join Date: Jan 2014
Location: Toronto, ON, Canada

My Support Groups:
Hello there! I was highly allergic to Remicade and switched to Humira last November. It's been amazing for me and I'm currently in complete remission, even though I had a very severe case of fistulizing Crohn's. I had a colonoscopy in February and my GI said I had healed so well it didn't look like I had IBD at all!
__________________
Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
05-24-2014, 04:19 PM   #4
Ckk4
 
Join Date: May 2014
Location: Greenfield, Indiana
Thank you so much for replying! That is great news! I'm so happy for you! I just got the Humira today, and I plan on starting it Monday. I'm really hoping this works as well for me as it did you!
05-24-2014, 04:21 PM   #5
theOcean
Moderator
 
theOcean's Avatar
 
Join Date: Jan 2014
Location: Toronto, ON, Canada

My Support Groups:
I hope so too! Definitely let us know how it goes!
05-26-2014, 08:33 PM   #6
Ckk4
 
Join Date: May 2014
Location: Greenfield, Indiana
My medicine finally arrived on Saturday! I've been waiting over a month for insurance to go through and all that. Now I just need to let my Dr know I have it. When you guys took it, did you have a nurse come to your house and show you how to do it? Just curious about how all tht happens.
05-26-2014, 08:42 PM   #7
theOcean
Moderator
 
theOcean's Avatar
 
Join Date: Jan 2014
Location: Toronto, ON, Canada

My Support Groups:
I had a nurse train me, yes! Are you having a nurse help you, too?
05-26-2014, 09:23 PM   #8
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Nurse trained me at the clinic to give the humira shots to my son.
Good luck with humira.
DS has had a good run with it so far .
__________________
DS - -Crohn's -Stelara
05-26-2014, 10:03 PM   #9
SupportiveMom
Forum Monitor
 
SupportiveMom's Avatar
 
Join Date: Mar 2013
Location: Toronto, Ontario

My Support Groups:
We went to the hospital outpatient clinic for our loading dosages. My daughter had a severe reaction to Remicade so insurance wanted to make sure she was somewhere they could monitor her in case of a problem. She had absolutely no adverse reaction, just complaint of multiple needles.

I thought Humira was much easier to fit into our schedule of life. Hope it works well for you!

__________________
Mom of 16 yr. girl w/Indeter.Colitis Sep. 2012(age 11) Nov.2012 Crohn's Sep. 2014 Crohn's Colitis, UC Nov 2015, Crohn's Feb. 2016

Ileostomy surgery July 2015

Current Meds: None!
Previous Meds: Humira, Remicade, Methotrexate, Cipro, Flagyl, Zofran, Cortifoam, 5-ASA suppository, Questran, Mezavant, EEN (Peptamen Jr. 1.5) by NG tube, Antibiotic Cocktail (Vancomycin, Metronidazole & Doxycycline), Simponi, Prevacid, Imuran, prednisone
ibdsupportivmom.wordpress.com ☆
05-30-2014, 04:44 AM   #10
Ckk4
 
Join Date: May 2014
Location: Greenfield, Indiana
They said they would send someone to my house to train me. I am beyond frustrated with this whole process. I've been waiting over a month! The med has been in my fridge since Sat. and still no one has contacted me. I've made several phone calls. I've been on 60mg of prednisone, now I'm starting to wean down. I just can't take the side effects anymore. Ugh!
05-30-2014, 05:19 AM   #11
n00b
Senior Member
 
Join Date: Oct 2011
Location: Suffolk, United Kingdom

My Support Groups:
Dont want to give you bad advice here but to be honest there is not much to the injections. Very simple and the injections themselves dont hurt much.

Is there not some instructions on the Humira website?
05-30-2014, 02:29 PM   #12
Ckk4
 
Join Date: May 2014
Location: Greenfield, Indiana
There are instructions, but they act like it's a huge deal, so I just thought it was lol. Hubs and I have talked about going ahead and doing it. I just hope if I did go ahead and do it, that it doesn't mess with my insurance coverage. I sure am getting impatient though.
06-12-2014, 05:51 AM   #13
Ckk4
 
Join Date: May 2014
Location: Greenfield, Indiana
My husband ended up just giving the med last monday. Finally, a nurse called me yesterday and made an apt to come out. I haven't noticed any changes with my stomach yet.
06-12-2014, 06:41 AM   #14
SupportiveMom
Forum Monitor
 
SupportiveMom's Avatar
 
Join Date: Mar 2013
Location: Toronto, Ontario

My Support Groups:
It can take a while for it to kick in. Some it works in a few weeks, others take months. Good luck!

06-12-2014, 07:17 AM   #15
M West
 
Join Date: Mar 2014
Location: Winston-Salem, North Carolina

My Support Groups:
I started Humira 2 months ago. Just now beginning to notice changes. Others I've spoken to on the drug notice fairly immediate results.

I have noticed no serious side effects from the drug. I use the syringe. Quick and almost painless (to me anyway).

Good luck if you decide Humira is for you.

Miles






)
07-13-2014, 07:08 AM   #16
Ckk4
 
Join Date: May 2014
Location: Greenfield, Indiana
I've been on it 1 mo and a half, no changes yet! I hope it kicks in soon!


07-13-2014, 07:22 AM   #17
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
It took 4 - 6 months for DS .
We almost stopped it but after a dose increase ( he was on kiddie dose -20mg)
It took a few more months and he was good ever since.
Good luck
07-13-2014, 07:44 AM   #18
Ckk4
 
Join Date: May 2014
Location: Greenfield, Indiana
Wow thanks! Gives me hope!


07-14-2014, 10:48 AM   #19
Plissken
 
Plissken's Avatar
 
Join Date: Jan 2014
Location: United Kingdom
I'm starting on it next week as I reacted badly to Azathioprine and 6-MP.

Was basically given two options: Have surgery now and removed the small infected area, apparently it is only a small part of my bowel and I wouldn't even need a bag. The consultant advised me to go for the surgery.

I really didn't want surgery until I'd tried Humira first though, so will give it a few months if it doesn't help then I guess it's time to go under the knife
07-14-2014, 11:56 AM   #20
Ckk4
 
Join Date: May 2014
Location: Greenfield, Indiana
Just be cautious before ever having surgery. I did have the surgery and my dr says the scar tissue from the surgery I had is inflamed. Looking back I wish I never had to have surgery. I wouldn't have that scar tissue and would be better off!


07-16-2014, 05:07 AM   #21
Plissken
 
Plissken's Avatar
 
Join Date: Jan 2014
Location: United Kingdom
Thanks Ckk4. Seems plenty of people say the same thing, surgery is definitely a last resort for me. I don't want to end up having to have regular snips I'd rather try and control it in one piece first
07-16-2014, 11:27 AM   #22
Scaryman
Forum Monitor
 
Scaryman's Avatar
 
Join Date: Jul 2012
Location: Atlanta, Georgia

My Support Groups:
Yes Humira works great at least for me thus far. I started it last October. At first it was a very rough introduction period. I had folliculitis and tiredness, no energy etc. It was very mean to me at first. Not to scare you but everyone reacts differently.

Ifg your having issues with the drug just remember to let your doctor know. It usually takes 12 -16 weeks to properly gauge the effectiveness of the drug. Abbvie has a patient protection plan, this can help with your co pays on Humira. I've heard of people paying $5- with their insurance.

Hope this helps.
__________________
Diagnosed 2003
5-ASA- failed
Imuran-failed with a strange reaction-paralysis
Remicade- failed with infusion reaction.
Mesalamine-another failure
Entecourt - fail- no help.
currently on Methotrexate 25mg and Humira combo.
Folic Acid Supplement
Hyclosomine,Ultram,vicoden for pain as needed
Extended right Hemocolectomy 5/24/13 Univ.Of Chicago
11/7/13- small crohns ulcer at surgical site (active).
07-16-2014, 02:28 PM   #23
mish2575
Senior Member
 
mish2575's Avatar
 
Join Date: May 2013

My Support Groups:
Everyone is different. It works wonders for a lot of us, not me though. It was keeping my extra-intestinal manifestations (episcleritis, hidradentis, & Psoriasis) under control but did not help my fistulas and actually caused depression slowly over many years. Apparently depression happens to the tiniest percentage of users.

Remicade worked GREAT for me but I built up immunities.

So my advice is to give Humira a chance for a few months. If it doesn't work or causes adverse reactions ask to switch to another biologic. I think there are about 5 available for Crohnnies now.

Good luck.
08-07-2014, 03:44 PM   #24
Plissken
 
Plissken's Avatar
 
Join Date: Jan 2014
Location: United Kingdom
So today was the day of my loading doses.

First two doses at 10am, I had the the nurse in charge of Humira shots. She administered the shots with me standing up, just pressed the pens a few inches either side of my belly button didn't pinch my skin or anything. Barely hurt and I thought phew this is going to be easy....

I go back in the evening and a different nurse has been assigned to do my next two shots. My concerns began instantly as she couldn't even get the lid off the pen and had to ask a colleague. She then pinched the fat on my belly and injected and wasn't steady, it hurt like buggery! so yeh I won't be taking the 'pinch' approach when I do my own. I will be just pressing against the skin as the first nurse did....I also won't be going near that 2nd nurse again
08-07-2014, 04:13 PM   #25
theOcean
Moderator
 
theOcean's Avatar
 
Join Date: Jan 2014
Location: Toronto, ON, Canada

My Support Groups:
Oh dear... I'm sorry you managed to get a bad nurse! I use the pinch method too, but I use emla patches (they have lidocaine cream on them) and put them on an hour before my injections. I don't even feel the shots because of it, which is great.
08-07-2014, 07:45 PM   #26
Ckk4
 
Join Date: May 2014
Location: Greenfield, Indiana
Oh wow that's awful! Ya know, it hurts badly every time I get my shots. Theocean, where do you get those? I need to get some!
08-09-2014, 02:50 AM   #27
theOcean
Moderator
 
theOcean's Avatar
 
Join Date: Jan 2014
Location: Toronto, ON, Canada

My Support Groups:
I'm in Canada, but I just ask my pharmacist for them since they're OTC! You should hopefully be able to ask for these or for similar numbing patches.
08-09-2014, 06:01 PM   #28
Plissken
 
Plissken's Avatar
 
Join Date: Jan 2014
Location: United Kingdom
Does icing the area make much difference? I remind myself that 10 seconds of pain is better than 12 hour flare ups of pain!
08-11-2014, 12:35 PM   #29
SupportiveMom
Forum Monitor
 
SupportiveMom's Avatar
 
Join Date: Mar 2013
Location: Toronto, Ontario

My Support Groups:
We ice every time but my kid still screams. The numbing cream is better but still hurts. My kid is really hoping to drop Humira. She hates it but knows it is a necessary evil. Too bad it isn't IV. That she can handle easily.
08-13-2014, 02:57 PM   #30
Carrie
Senior Member
 
Carrie's Avatar
 
Join Date: Mar 2011
Location: San Mateo, California

My Support Groups:
Personally, I always thought icing made it hurt more. I think it makes the skin super-sensitive instead of numbing it. The real key is to let the medicine come up to room temp (so let it sit out for 30 minutes before) before. Doesn't make it painless, but it does make it less painful.
Reply

Thread Tools


All times are GMT -5. The time now is 08:22 AM.
Copyright 2006-2017 Crohnsforum.com